Search found 24 matches

by gramcjk
Fri Aug 23, 2019 8:57 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Re: Can the JC virus be killed before PML

The WebMD info is outdated. Because of all of the monoclonal antibody medications out there and the risk they create, more effort is being done to address the need to rid ourselves of the JC virus. If you look into how Mefloquine and Cidofovir and Brincidofovir (CMX001) might be players in the JC vi...
by gramcjk
Wed Aug 21, 2019 9:53 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Re: Can the JC virus be killed before PML

I'm taking Tecfidera. If I can find a way to kill off the JC virus I will go off the Tecfidera and get rid of the JC virus. To me getting rid of the JC virus is more important than treating the MS.
by gramcjk
Wed Aug 21, 2019 8:21 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Re: Can the JC virus be killed before PML

That is exactly the reason why I am trying to determine if there is a way to kill off the JC virus before exposing myself to PML risk. It seems that the newer medicines with higher efficacy usually come with PML risk.
by gramcjk
Mon Aug 19, 2019 6:27 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Re: Can the JC virus be killed before PML

The Rebif and Copaxone were not taken at the same tine but it was the sequence. I was taking Rebif and the injection site reaction was so bad my almost my entire body was a huge flaming sore so I was switched to Copaxone but the Solu-Medrol was administered between them.
by gramcjk
Sun Aug 18, 2019 5:26 pm
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Re: Can the JC virus be killed before PML

According to my pharmacist it was my Solu-Medrol infusions interacting with my Rebif and Copaxone.
by gramcjk
Sun Aug 18, 2019 9:48 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Re: Can the JC virus be killed before PML

My doctor is far from the newest treatments. He had never heard of Tecfidera when I approached him to start me on it after FDA approval. My doctors like mine do not act, they only react. There is a new antiviral drug being developed by Chimerix called Brincidofovir (CMX001) that might be applicable ...
by gramcjk
Sat Aug 17, 2019 11:56 am
Forum: General Discussion
Topic: Can the JC virus be killed before PML
Replies: 21
Views: 1092

Can the JC virus be killed before PML

After recently discovering that I am JC virus positive I have been reading about the possibility of being able to kill off the JC virus before it can trigger PML. I have been reading that drugs like Mefloquine and Cidofovir might be effective in destroying the JC virus before it can trigger PML rath...
by gramcjk
Tue Jul 16, 2019 2:15 pm
Forum: Site Support
Topic: Go back to the old format
Replies: 1
Views: 1821

Go back to the old format

Go back to the old format. This new (whatever you want to call it) stinks. People who are computer stupid have not figured out in any way how to use this. I log in, try, and get beyond frustrated and leave the site! This used to be great place for info and warm uplifting feelings. No more. gramcjk
by gramcjk
Mon Jan 14, 2019 11:19 am
Forum: Site Support
Topic: Site feedback
Replies: 2
Views: 697

Site feedback

This new format is beyond a pain!!!! It is not non-computer user friendly. I will not be back on this site again. :oops: Go back to the old system. gramcjk
by gramcjk
Mon Sep 19, 2016 1:07 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: For those of you thinking about starting on Tecfidera
Replies: 8
Views: 5095

Re: For those of you thinking about starting on Tecfidera

Hello. I have posted several times since starting Tecfidera how very happy I am with the results of this new drug. I started it as soon as it was approved! I had to fight doctors to prescribe it for me. Changed to a new doctor that was as willing to take a chance with this new drug as I was. I have ...
by gramcjk
Thu Jul 14, 2016 4:14 pm
Forum: General Discussion
Topic: How many relapses since diagnosis?
Replies: 8
Views: 838

Re: How many relapses since diagnosis?

I have MS, BUT MS does not have me. I refuse to accept DX. Just try to be positive every moment of the day!!

GRAMCJK
by gramcjk
Sun Jul 10, 2016 3:20 pm
Forum: Introductions
Topic: Anyone tried Chelation Therapy?
Replies: 4
Views: 1514

Re: Anyone tried Chelation Therapy?

I have undergone chelation to remove high lead levels in my blood system, and I would recommend extreme caution. Only have the procedure under the supervision of a medical professional. People have died from hypocalcemia during chelation therapy. During treatment other needed essential nutrients are...
by gramcjk
Fri Aug 14, 2015 4:40 pm
Forum: Betaseron
Topic: What are the benefits of Betaseron?
Replies: 8
Views: 7058

Re: What are the benefits of Betaseron?

hello David 1949 gramcjk to you,. I took betaseron for almost 2 years. Any side effect you could have, I had. UGLY!! Then nothing for 2 years , started relapses. Copaxon for 2 years. Tired of being a human pin cushion, for no obvious good results. Have now been on Techfidera for 2 years. Last MRI sh...
by gramcjk
Wed May 27, 2015 2:26 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Great MRI
Replies: 2
Views: 2104

Re: Great MRI

Hello stiti, As long as I eat a had boiled egg in the a.m. with breakfast, I have no gastro issues. No egg, upset tummy, pepto bismal works wonders. Very minimal flushing when I first started, not even sure you could call it flushing. I have had no pml testing, and have no problems with lymphopenia ...
by gramcjk
Fri May 22, 2015 5:20 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Great MRI
Replies: 2
Views: 2104

Great MRI

I've been on Tecfidera since FDA approval and I would like to share my recent good news. Late last year I had my first MRI after taking Tecfidera for about a year and a half and after reviewing the MRI and comparing it to previous MRI's my neurologist told me that there was no new activity and that ...

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