Search found 80 matches

by MSandI
Wed Sep 30, 2015 8:37 am
Forum: Drug Pipeline
Topic: Aubagio... any experience?
Replies: 29
Views: 11763

Re: Aubagio... any experience?

Aubagio became an ineffective treatment for me. My mri scan and 2 additional relapses ended this treatment. The aubagio was flushed out with horrible tasting stuff in a package that was mixed with H2O. Fast forward, those two last relapses have knocked the wind out of my sails and have ended my work...
by MSandI
Fri Mar 27, 2015 6:46 am
Forum: General Discussion
Topic: This is it!!! Beginning of the End!!!
Replies: 33
Views: 5044

Re: This is it!!! Beginning of the End!!!

Keep writing celeste 485 I am enjoy your writing.
Ann
by MSandI
Wed Dec 24, 2014 1:28 pm
Forum: Introductions
Topic: It's PPMS, I'm certain. Good bye guys, sorry for the rant.
Replies: 5
Views: 1743

Re: It's PPMS, I'm certain. Good bye guys, sorry for the ran

PLEASE STOP WHAT YOUR DOING AND THINKING!!!!!!!!!!! CALL 911.. Please think about your mom, I am a mom, this is aweful please call someone for help


Ann
by MSandI
Mon Oct 27, 2014 5:00 am
Forum: General Discussion
Topic: This is it!!! Beginning of the End!!!
Replies: 33
Views: 5044

Re: This is it!!! Beginning of the End!!!

Great information Celeste I will read this entire post, you have touched on something that is relevant to me. I do believe that you were NOT comparing heroin and the flu shot per say. I believe your meaning was that not necessarily what was in the vial itself. But how the brain perceives the pin pri...
by MSandI
Fri Oct 10, 2014 3:12 pm
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

Hi mkbmomma I do agree with you about different drs having different opinions. I have chosen not to cover my right eye for the reason the two gave me. I was on avonnex for some time, got some bad side effects then went of all dmds for 8 months. I thought I was going to cure myself through diet, exer...
by MSandI
Fri Oct 10, 2014 10:37 am
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

Hi mkbmomma, I am much like you with my ON. I have seen my ophthalmologist 2 times since sept 20th. I saw my neuro yesterday, they are both in agreement that I do not cover my right eye. It was explained to me that both eyes need to look straight ahead. If you cover the blind eye it MAY lose its spo...
by MSandI
Sun Oct 05, 2014 6:17 am
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

Thank you JL,
I will be on the search for foods rich in zinc. I am grateful for your insight in this matter.
Ann
by MSandI
Sat Oct 04, 2014 4:56 am
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

Hi jackd Thank you for the information. I only had the 3 day course of intravenous, but no oral steroids afterwards. I am just waiting to regain the sight in my right eye. They tell me the wait time is different for everyone, but no guaranties either. His words were.... "I am not telling you that yo...
by MSandI
Fri Oct 03, 2014 5:00 am
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

Hi youarethecure I had steroids for 3 days. The pain in the eye is gone (thank goodness). I still get a wicked headache, I can see better when I cover the right eye, I am more fatigued than I normal, and my walking is better when I close the right eye. I went to the eye specialist, had some testing ...
by MSandI
Thu Sep 25, 2014 5:34 am
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

I have a blind spot in my right eye and it is making my vision fuzzy when looking through both eyes. Please offer suggestions that have helped to restore your vision..... Please help me.
Ann
by MSandI
Sat Sep 20, 2014 1:41 pm
Forum: General Discussion
Topic: Optic Neuritis
Replies: 29
Views: 4707

Re: Optic Neuritis

Hi I was just wondering does ON fall into the category of a relapse? I have RRMS, and treating with Aubagio. I went to the ER this am and was given intravenous steroids and for the next 2 days. Any ideas that could help would be great. I also had a weird taste in my mouth... it tasted like metal, th...
by MSandI
Thu Jul 24, 2014 4:09 pm
Forum: Drug Pipeline
Topic: Aubagio... any experience?
Replies: 29
Views: 11763

Re: Aubagio... any experience?

Hello I have been so busy. I have had a rotten cold for 2 1/2 weeks. BP will not lower so now taking meds for that. GP visit revealed new mri. It shows 4 new plaques in the left frontal lobe. I am so disappointed....truly thought things were looking up, I guess I was hoping. There explained that it ...
by MSandI
Thu Jun 26, 2014 3:54 am
Forum: Drug Pipeline
Topic: Aubagio... any experience?
Replies: 29
Views: 11763

Re: Aubagio... any experience?

Hi LC
My MCV is 94.4 fl. What does that mean?
Thanks Ann
by MSandI
Wed Jun 25, 2014 2:41 pm
Forum: Drug Pipeline
Topic: Aubagio... any experience?
Replies: 29
Views: 11763

Re: Aubagio... any experience?

I am now almost at the 6 week mark. I have had a few glitches a few days ago. BP went high, 150/86. That was not good. I am feeling better now. I have lost 5lbs in 6wks, I am sure it is due to gi issues. All my blood tests results are in.... and I got a copy of my test results before I started the m...
by MSandI
Sun Jun 15, 2014 9:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Long term results
Replies: 18
Views: 3446

Re: Long term results

Hi Everyone I am just wondering about all those who have posted here. What is your ms type? I personally know of 4 ppms that have had ccsvi and only 1 of the 4 had a decent result. The 1 with decent recovery only lasted about 2 months and has gone back to her wheelchair. I belive that they were pref...