This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks, Sarah. I will stick at it. Just a quick one, please... Shall I carry on with my gap in tablets (I'm well passed the 12 months) or shall i go back to taking the tablets daily. This flare-up has come right in the middle of the gap in taking antibiotics. Could that be the reason for the attack?...

Thanks so much for your reply. So, relapses 18 months or more into the Wheldon Protocol aren't rare? Because I'm 18 months into the protocol, I'm taking pulses every 2 months, would you go back to taking the full course of antibiotics? I thought I read all the material on the protocol before I start...

Hi, everyone It's been 2 18 months on the antibiotics and I'm devastated. Things were goinggreat... I seemed to be improving all the time, handling the pulses better and better, but 3 weeks ago, I suffered an attack. I'm numb all down my right side, dragging my right leg around and unwell altogether...

Hi, Sarah! Does the heat still effect you in the same way it did before you started CPN? Obviously, by my above posts, the heat/weather seemed to bring out all my old symptoms. It was like I hadn't started CPN, as though the antibiotics hadn't done anything the months I'd been taking them. They had ...

Thanks, Lori

The diary started today on my laptop!
It's so easy to get greedy with this protocol and want everything now. I've learned to treat the good days AND the bad days with the same attitude...
I won't give u, Lori. Thanks for your motivation.

Craig

Thanks so much, Willing. My dramatic improvement in the first few months of starting CAP, i imagined it would continue. We are programmed to expect to improve like a broken bone improves, a continuous incline. But this illness and this treatment I'm sure doesn't work like that. I just thought I'd go...

Hi again, guys. An update on the last three months and a bit of advice, please... May's pulse I managed three days and June, again managed only three days. I was dreading July's pulse to the point of considering quitting the protocol. I slapped myself in the face for even thinking such a thing and o...

Thanks for saying that, guys. I felt like I was just 'taking' from the site.

You're very welcome and in response, you've already helped me greatly.

So, thank you

Craig

You've got artwork on the Queen Mary 2? Wow, congratulations. I have seen one of your paintings and it looks excellent. It's amazing how many creative people have this illness. I had MS for years before I was diagnosed, also. In 1997 my right eye stopped moving which rectified itself and in 2000 in ...

Brilliant, thank you. That's just the peg-up I needed. I can totally understand why you felt that way. The amount of times you must have felt like packing it all in... especially when you were losing touch with reality? Did you feel like that? I'll go again in May on the pulse front. Shall I continu...

I've only managed one day and a bit of the pulse this month. I've kept up the Doxy and the Azith- never missed one day since November- but really struggled with the pulse this month. I pulsed for 5 days, December, Jan, Feb and March, but couldn't stomach it at all this time. It may have been a bug o...

Thanks, I'll do my best to keep my progress updated... Tried my pulse again, yesterday and was fine all day until I went to bed and lay down... then threw up again! I've felt rough and spaced all day, today. I have noticed, the ALA and the ACL that have been introduced could be the reason why I'm th...

Thank you, thank you, thank you for replying to my post. I have just joined the CPn Help website and read a few helpful stories and forums of information. I have started my pulse again today and have purchased a big bag of Chlorella to mop up. I will keep you posted of my progress. I feel like I'm '...

Thanks so much for the reply, robot The antibiotics were bought from River Pharmacy which to my knowledge, has a good reputation. The beginning of the week- 1st April, 2014- should have been the start of my pulse week, I took the first 2 tablets after breakfast, and by dinner time I was throwing my ...

Hello everyone, My name is Craig and I am 39 years old. I was diagnosed with MS on my 30th birthday, even though they could trace it back to 1997. After failed attempts on conventional treatments- the ineffective Rebif, to be precise- I started on LDN in 2009 with improved my symptoms immensely... a...