This Is MS Multiple Sclerosis Knowledge & Support Community

Vesta, in rereading your original post I would like to suggest you consider a minor adjustment to a couple of your recommendations dealing with protein: "For protein emphasize wild Fish : Raw fish in Sushi is excellent (avoid raw Salmon) but cooked fish is better than meat because the latter has sat...

Your best bet would be to get a referral from your PCP or directly from your insurance company.

Again, if you are going to see a neurologist, it is a very, very good idea to see one that specializes with MS.

Welcome to TIMS. Sorry to hear your wife is not doing well. Since MS is suspected, it may be a good idea to see a Neurologist that specializes in MS - that doctor will, if MS is truly a possibility, likely suggest a MRI of her spine and also possibly a LP (spinal tap). Keep in mind that there are ma...

"I am not sure how much I can 'regain'" Time will tell, but you might be able to improve quite a bit it you find the right treatment(s). A TENS unit is a good idea. It is something I would definitely be using if I could (I have a Pacemaker). Keep in mind that recently there have been reports of peo...

Found this info doing some unrelated research and thought it was noteworthy. It is certainly not without risk (low risk but like virtually all medical procedures there is some) and is probably only for extreme cases and mainly for Parkinson's patients anyway but they do list it as a treatment for so...

"therefore dietary elements of recovery methods cannot necessarily be generalized to all ms patients" This may be true, no way of knowing for sure, but the fact is that some people with more advanced MS like PPMS and SPMS have seen improvements through a number of different protocols is very encour...

Dr. Terry Wahls. There are probably others too! Some of the new treatments seem to be effective helping people with more advanced stages of MS.

NHE you are absolutely correct which is why there are so many claims of cures. Remission can last a very long time and certainly give the illusion of being cured. The reality at this point in time is that likely none of them truly work. I doubt there is even anything established to determine how som...

"5. It has been clinically shown to STOP progression in some patients after 2 years of infusions." in some patients? FACT: The progression in some patients stops without any intervention of any kind. This is the case for the majority of those with MS. Clinical trials are easy to add bias, all too ea...

Happy with the improvements, thanks again!

"Right now I am mostly focused on starting the Ocrevus." IMHO, meds are a good idea but cannot be relied on, and the implementation of improvements in diet/nutrition/nutritional supplements, exercise, sleep, and stress elimination are critical factors and as important if not more important than a D...

Yes, I basically follow this type of diet and have been for about 5 years. My overall health is excellent and my MS is currently under control and has been since I started this diet. One EXTREMELY important consideration, the meats for health reasons for those with MS IMHO must be 100% grass fed and...

"Is a referral needed for an MS specialist?"

Possibly/likely, but it depends on your medical insurance. Check with your PCP or your insurance administrator.

MRIs can sometimes be difficult to read, even for an expert. Was the neurologist you saw a MS specialist? If not you may want to consider seeing one since you seem to suspect MS BUT, keep in mind, there are many, many diseases that mimic the symptoms of MS and MS can sometimes be difficult to diagno...

Welcome to TIMS. Sorry you are not feeling well. "anyone with 2-3 attacks per year" While every case is different, 2-3 attack in a year is not unusual but either is no attacks per year. "Will ocrevus have sufficient "stopping power" to halt the disease now or will there be more attacks?" No one know...