Search found 32 matches

by christobelle
Mon Apr 28, 2014 1:22 am
Forum: Undiagnosed
Topic: Holo TC Assay - jimmylegs….do you know?
Replies: 3
Views: 1708

Re: Holo TC Assay - jimmylegs….do you know?

Thanks very much for all that info. Reading through it seems my 40 reading combined with the 283 B12 means it isn't classified as deficient, even though it doesn't hit the 400 or 500 mark for the B12 itself. That is how I understood from the reading. So much information to digest. I'm not quite sure...
by christobelle
Tue Apr 22, 2014 2:57 am
Forum: Undiagnosed
Topic: A little nervous..
Replies: 10
Views: 2158

Re: A little nervous..

Well it's official. I've been diagnosed with MS. I'm sorry to hear that Luckynites. The people on here are a fountain of information - ask as many questions as you need to, and there is more than likely someone on here who will be able to offer at least something. That is one small comfort - there ...
by christobelle
Tue Apr 22, 2014 2:22 am
Forum: Undiagnosed
Topic: Holo TC Assay - jimmylegs….do you know?
Replies: 3
Views: 1708

Holo TC Assay - jimmylegs….do you know?

Hi all, but in particular jimmy legs with your super knowledge!!!

I just got my levels back for the transcobalamin - Holo TC Assay.

Do you know much about what these mean?? My level was 40 pmol/L

Thanks very much :)
by christobelle
Mon Apr 14, 2014 2:17 am
Forum: Undiagnosed
Topic: So the latest…...
Replies: 1
Views: 1250

So the latest…...

I had an appointment with the neuro today following on from a cervical spine MRI last week. The MRI was normal. But, massive difference this time to several months ago. My neuro has said that there is categorically something physical and neurological going on. Findings on examination and reflexes et...
by christobelle
Fri Apr 04, 2014 2:50 am
Forum: Undiagnosed
Topic: What does it mean
Replies: 1
Views: 989

What does it mean

What does it mean when you can't do one/some of the neuro tests? I had an appointment yesterday as the one month follow up to the last appointment where nothing was seen on brain MRI and so off I was sent. Since that time my legs have become affected. Anyway, I could do 2 steps of heel toe walking b...
by christobelle
Thu Apr 03, 2014 5:13 pm
Forum: Undiagnosed
Topic: I wish I could read an MRI
Replies: 7
Views: 2045

Re: I wish I could read an MRI

Oh thanks very much for that!!! incredibly helpful!!!
by christobelle
Wed Apr 02, 2014 4:33 am
Forum: Undiagnosed
Topic: I wish I could read an MRI
Replies: 7
Views: 2045

Re: I wish I could read an MRI

Thanks ElliotB. I have already changed my diet but it could still use work, exercise has been horrendous for me so I now need to try to explore other alternatives that don't raise my body temperature (like pilates and yoga I guess), lifestyle changes have been forced upon me, and I don't know what D...
by christobelle
Wed Apr 02, 2014 1:09 am
Forum: Undiagnosed
Topic: I wish I could read an MRI
Replies: 7
Views: 2045

Re: I wish I could read an MRI

Thanks THX1138. My mind is as open as is humanly possible right now lol. I'm just so frustrated with it all. And now my walking is affected it is really starting to bother me. These legs aren't mine. They can't be. They feel so foreign. I could swear I must have run a marathon yesterday they are tha...
by christobelle
Tue Apr 01, 2014 5:28 am
Forum: Undiagnosed
Topic: I wish I could read an MRI
Replies: 7
Views: 2045

I wish I could read an MRI

That's all. I wish I was a doctor. I wish I could work out what the hell is going on. I wish that when I'm at work and my chin starts twitching I knew why. I wish I knew why my legs suddenly felt as though someone had injected them with lead. I wish I Knew why everything is going to pot. That's all....
by christobelle
Thu Mar 20, 2014 5:14 am
Forum: Undiagnosed
Topic: Jimmylegs help please.....
Replies: 12
Views: 1859

Re: Jimmylegs help please.....

LOL I don't even know what my zinc numbers should be!!!!! This is the thing - we trust blindly those who are trained to treat us. Yet we never question…. Unless we get the printouts…. or if we have some of this radical stuff happen to us that makes us wonder what the actual hell is going on…. That's...
by christobelle
Thu Mar 20, 2014 2:29 am
Forum: Undiagnosed
Topic: Jimmylegs help please.....
Replies: 12
Views: 1859

Re: Jimmylegs help please.....

Thanks so much for all that information. Immensely helpful!! I particularly like the comparison of nutritional values chart. Brilliant!!! I have been doing quite a bit of reading to see if specific foods inhibit the absorption of iron and have read that coffee can do so by up to 60%. I drink a lot o...
by christobelle
Wed Mar 19, 2014 3:44 am
Forum: Undiagnosed
Topic: Jimmylegs help please.....
Replies: 12
Views: 1859

Re: Jimmylegs help please.....

Thanks so much for your very detailed response!!! I read through your regimen post. Um. Wow. That is pretty full on. Hugely informative too. Now I haven't had my zinc levels tested at all. Nor have I Had magnesium levels tested. As regards the B12, what is the best way to bring that up to 500 odd? A...
by christobelle
Wed Mar 19, 2014 1:59 am
Forum: Undiagnosed
Topic: Jimmylegs help please.....
Replies: 12
Views: 1859

Re: Jimmylegs help please.....

Ferritin was 66 ug/L
Hello!!!

Iron 7 umol/L

Transferrin 2.7 g/L

Transferrin Sat 10 %

Does that help??
by christobelle
Wed Mar 19, 2014 1:47 am
Forum: Undiagnosed
Topic: Jimmylegs help please.....
Replies: 12
Views: 1859

Re: Jimmylegs help please.....

I should add too that transferrin sat was 10.

Ta
by christobelle
Tue Mar 18, 2014 8:33 pm
Forum: Undiagnosed
Topic: Jimmylegs help please.....
Replies: 12
Views: 1859

Jimmylegs help please.....

I got some more blood tests done and have some more results and was hoping you could help.... Vitamin D is now at 69 (last test was 39). I'm taking 2000iu daily. Vitamin B12 is at 283. Iron is at 7 (which is apparently quite low). What do these levels mean in the context of any of the neurological s...

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