Search found 12 matches

by NytViolet
Fri Aug 01, 2014 9:47 pm
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

WELL, I finally grew a pair. Fortunately, our new insurance just kicked in through my husband's union, and I went to an internist that I trust and respect. He ordered a CMP and TSH (normal), and referred me to a neurologist for 8/4/14. Due to the extreme fatigue, overall weakness, twitching and my n...
by NytViolet
Sun Jul 27, 2014 5:40 pm
Forum: Undiagnosed
Topic: I hope they say MS.. Crazy?
Replies: 10
Views: 3109

Re: I hope they say MS.. Crazy?

I'm in the same boat. I'm dragging myself to work with the worst exhaustion I've ever had. Nonstop twitching all over, burning feet, left arm and leg feel weak and I also get sharp shooting pains in my legs and hands. My PA ordered an X-ray of C-spine and sent me to an ortho who wants MRI (c-spine o...
by NytViolet
Thu Jun 19, 2014 11:38 am
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

Well, I finally got up the nerve to visit my primary doctor, and START THE WHOLE PROCESS OVER AGAIN. As usual, I see the PA (never a doctor), and she didn't so much as test a reflex. She chided me for not losing weight, then ordered an X-ray of the C-spine and T-spine. Then I go back in two weeks, a...
by NytViolet
Mon Jun 16, 2014 6:10 am
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

Thank you so much for these findings; it always amazes me that the medical community sets parameters for "normal", then ignore people who fall at the very high/low end of those numbers. Perhaps a given "normal is 8-18, and a person tests at 8.0 -- you would think that this would warra...
by NytViolet
Sun Jun 15, 2014 3:19 pm
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

Thanks for your reply. My primary issue is this: I must GROW A PAIR. I have horrible white coat syndrome and become a mumbling stuttering mess at the doctor's office lol. To say my job is killing me would be an understatement. Already dx'd with Fibro, I feel that the sedentary nature of my job combi...
by NytViolet
Sun Jun 15, 2014 12:34 pm
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

Thank you for the intelligent and thoughtful reply. I haven't been on antidepressants for many years, but do take BP meds. My doc has run myriad blood work and didn't mention anything abnormal except low iron (which subsequently tested normal). They're pretty cut and dry at this docs office: take hx...
by NytViolet
Sun Jun 15, 2014 12:24 pm
Forum: Undiagnosed
Topic: 17 years without a real answer
Replies: 2
Views: 1504

Re: 17 years without a real answer

Thanks -- I'll look for it now :)
by NytViolet
Sun Jun 15, 2014 10:10 am
Forum: Undiagnosed
Topic: 17 years without a real answer
Replies: 2
Views: 1504

17 years without a real answer

I posted this on the MS General Discussion Board, but thought it would be more appropriate here: At age 25, I had a sudden onset of severe fatigue which lasted 3 years. Gradually, it improved and my MD said I'd had an acute EBV infection and CFS. Thrilled to be in remission at age 29, I proceeded to...
by NytViolet
Sun Jun 15, 2014 10:06 am
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

I neglected to add that I have tested (BOTH pos and neg) for ANA, RA, EBV and anemia. Our bodies are forever in flux, and I am a strong proponent of healing through natural means. But fibromyalgia is called the "million dollar disease", because of the extraordinary amounts if time and mone...
by NytViolet
Sun Jun 15, 2014 9:08 am
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

I am exceedingly thankful to you both for your comments and suggestions. As I states, I'm 49 and have been dealing with symptoms that are slowly worsening for 17 years. I am educated, and have practically made a career out of studying diet, herbs, and vitamins. I also own a juicer and NUTRIBULLET to...
by NytViolet
Sat Jun 14, 2014 10:54 pm
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

Re: 17 years - no diagnosis

How rude of me...I'm new here, and am 49, married and reside in Central Florida. I'm still working as a Social Media Admin for a communications company. I'm hoping this board will yield some answers. Best Regards
by NytViolet
Sat Jun 14, 2014 10:38 pm
Forum: Introductions
Topic: 17 years - no diagnosis
Replies: 19
Views: 8041

17 years - no diagnosis

At age 25, I had a sudden onset of severe fatigue which lasted 3 years. Gradually, it improved and my MD said I'd had an acute EBV infection and CFS. Thrilled to be in remission at age 29, I proceeded to engage in a strenuous exercise program to lose the 35 lbs I'd gained. I worked my way up to a 3 ...

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