Search found 10 matches

by rhs1040
Mon Sep 29, 2014 10:47 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Re: Waiting... waiting... waiting

So, tomorrow I see an MS specialist at UC Davis Neurology Dept after waiting over a month for my referral to go through. Any recommendations for what I should prep for, push for, expect?
by rhs1040
Sat Aug 30, 2014 4:01 pm
Forum: Undiagnosed
Topic: Does this sound familiar?
Replies: 2
Views: 1389

Re: Does this sound familiar?

It doesn't sound familiar, but terrifying.
by rhs1040
Sat Aug 30, 2014 3:57 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Re: Waiting... waiting... waiting

Over the last week, my lower body has been feeling noticeably weak, lots of general soreness even when resting. I thought maybe I overdid it last Saturday when I went for a swim, but I shouldn't be feeling the same one week later! I have been noticing lots of muscle twitches/spasms in my hamstrings,...
by rhs1040
Thu Aug 28, 2014 9:02 pm
Forum: Undiagnosed
Topic: cold sensation on top of my head or sides
Replies: 12
Views: 131774

Re: cold sensation on top of my head or sides

Any update mar? I know this topic was bumped from a year ago, but your experience and symptoms sound so much like mine... Wondering if you've got any answers yet.
by rhs1040
Thu Aug 21, 2014 11:13 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Re: Waiting... waiting... waiting

Appreciate everyone weighing in! So, neurology appt was today... got copies of the spinal results. Neuro says very little chance of MS due to lack of oligoclonal bands in my CSF. The lab report says that "Approximately 5 percent of patients with clinically definitive multiple sclerosis will hav...
by rhs1040
Tue Aug 19, 2014 7:46 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Re: Waiting... waiting... waiting

Thanks everyone for the tips and advice. I've been hearing people talk about the benefits of going to a big clinic (i.e. Sansum) so that everything is in-house and answers tend to come sooner. I might give that some consideration if the waiting game continues with my local neurologist and/or look in...
by rhs1040
Mon Aug 18, 2014 11:00 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Re: Waiting... waiting... waiting

Is there anyone that could address my last question? Is there a way to test "negative for MS"? I meet with my neuro Thursday and I want to make sure I ask the right questions.
by rhs1040
Fri Aug 15, 2014 10:45 pm
Forum: Undiagnosed
Topic: Not sure where to go from here... Help!
Replies: 8
Views: 2593

Re: Not sure where to go from here... Help!

Your symptoms seem quite a bit like mine, except that I haven't experienced skin itchiness or tremors and I *did* have lesions show on my brain MRI. The dizziness, facial numbness, feelings of fogginess, etc. ring true with me. Lots of additional things I've felt randomly, like limb weakness, pins-a...
by rhs1040
Thu Aug 14, 2014 6:16 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Re: Waiting... waiting... waiting

OK... now I'm even more confused. Neurologist called today to let me know that spinal tap results were all negative. Negative for Lyme. Negative for Valley Fever. Negative for West Nile. Negative for MS!!!?? From what I read, I thought there was no test for MS... that it was a diagnosis of exclusion...
by rhs1040
Mon Aug 11, 2014 2:47 pm
Forum: Undiagnosed
Topic: Waiting... waiting... waiting
Replies: 20
Views: 5067

Waiting... waiting... waiting

Appreciation for anyone who reads this lengthy post, as I just want to get everything off my chest somewhere... I am a 32 year old male, never had health issues before... At 8:30am on June 4th of this year, I'm sitting at work when a deep coolness enters the left side of my brain... I can FEEL it in...

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