Search found 8 matches

by GeneticTrainwreck
Sat Nov 08, 2014 4:21 pm
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

Hi Chris, I looked at your first post but didn't see reference to whether you "passed" the VEP, lumbar puncture/spinal fluid panel, or other tests as you did the tests at the doctor's office? Do you have spinal cord lesions or just your brain? If the latter, that may be one reason you are ...
by GeneticTrainwreck
Sat Nov 08, 2014 11:14 am
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

Youarethecure wrote: Maybe some marijuana? That always helps me in many ways hehehe.
I'm with you there--if there's an upside to this, it's that a positive dx would qualify me for medical mj. That would be AWESOME.
by GeneticTrainwreck
Sat Nov 08, 2014 10:33 am
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

if it is MS, it sounds like primary progressive MS in my opinion. It is a very slow onset, can be unnoticeable to some even. Hi, What makes you think it sounds like the primary progressive type? To me it seems like IF my odd health problems are from MS, it's very episodic; often these episodes hit ...
by GeneticTrainwreck
Fri Nov 07, 2014 7:23 pm
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

I apologize if my statements were interpreted as sarcastic. My quotation marks were used to repeat your words, to indicate that these were not my words. I am not acquainted with the term "scare quotes" and only meant to use quotation marks as simple punctuation. My use of italics was to e...
by GeneticTrainwreck
Fri Nov 07, 2014 6:26 pm
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

Well if it is MS or a disease you can at least take this as a good thing in my opinion. If you have so much already going on but are doing well that is good. Your body and brain can compensate for the damage that has happened. Hopefully its a more "mild" case of MS, if that is what it is....
by GeneticTrainwreck
Fri Nov 07, 2014 4:52 pm
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

One must trust that a "well-regarded neuroscience center" has thoroughly ruled out any possibility of a B12 deficiency. And with that off the table, it's on to exclude the other possible causes for your symptoms – all the best to you. Well that doesn't sound at all sarcastic. Which is goo...
by GeneticTrainwreck
Thu Nov 06, 2014 11:38 am
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Re: Every test but brain MRI neg for MS, Neuro still wants t

Hello, Thank you both, but I did have my B12 levels checked recently and they were well in the "really good" range. I don't remember the actual number (I'd have to dig it out) but my doc said I might even be "over-supplementing." Not like that's damaging, but it's unnecessary. I ...
by GeneticTrainwreck
Wed Nov 05, 2014 6:03 pm
Forum: Introductions
Topic: Every test but brain MRI neg for MS, Neuro still wants to Dx
Replies: 17
Views: 4796

Every test but brain MRI neg for MS, Neuro still wants to Dx

Hi Everyone, New here and in a weird situation. Of course, we all are, but mine seems like the inverse of most people's stories and I don't know what to think! A year ago I had a sudden hearing loss in left ear. I was supposed to get an MRI but blew it off b/c of other health issues I was dealing wi...

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