Search found 11 matches

by MomOf4Kids2Dogs
Sat Nov 22, 2014 11:07 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Surprised by diagnosis, no symptoms, is Tysabri right for me
Replies: 10
Views: 3768

Re: Surprised by diagnosis, no symptoms, is Tysabri right fo

Follow on question -- they gave me 5 days of Solumedrol (1000 mg infused per day) and that plus the spinal tap and blood patch to fix the leak of spinal fluid have me feeling pretty wretched. I probably should have asked questions before accepting the steroids but I was scared about the idea of losi...
by MomOf4Kids2Dogs
Sat Nov 22, 2014 10:40 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Surprised by diagnosis, no symptoms, is Tysabri right for me
Replies: 10
Views: 3768

Re: Surprised by diagnosis, no symptoms, is Tysabri right fo

Thanks cheer, others had been suggesting that I read your research and I had been looking for it. I have been talking with my husband and kids about not taking Tysabri and it is a relief that they said I wouldn't be letting them down by considering other alternatives, even though my neurologist has ...
by MomOf4Kids2Dogs
Thu Nov 20, 2014 4:10 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Surprised by diagnosis, no symptoms, is Tysabri right for me
Replies: 10
Views: 3768

Re: Surprised by diagnosis, no symptoms, is Tysabri right fo

Wow NHE, the 1 in 75 statistic is certainly making me pause right now. It's hard to accept that when you feel fine. I thought I could try this medication but I felt panic when the infusion center called today and feel even more reading this.
by MomOf4Kids2Dogs
Thu Nov 20, 2014 7:14 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Surprised by diagnosis, no symptoms, is Tysabri right for me
Replies: 10
Views: 3768

Surprised by diagnosis, no symptoms, is Tysabri right for me

Hi friends, over the past 3 weeks, after an unexpected MRI result for a different issue showed lesions on C4 and my brain and my spinal fluid was positive, I was diagnosed with MS. I have no symptoms other than GI issues a year ago that were fairly serious and led to a temporary colostomy. But I am ...
by MomOf4Kids2Dogs
Sun Nov 09, 2014 1:34 pm
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Re: Lesions were a surprise, can colon issues be an MS sympt

Thanks for that information cheerleader, they have asked me to see a rheumatologist next Friday and since she will be the right specialist to ask about Hughes I will add it to the list. I appreciate the suggestion. Fingers crossed I don't get diagnosed with more than one thing!
by MomOf4Kids2Dogs
Thu Nov 06, 2014 6:07 pm
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Re: Lesions were a surprise, can colon issues be an MS sympt

OK to close out this thread, I have been given a diagnosis of MS this morning based on the results of the spinal tap. I have also been asked to make sure that I don't have lupus because I had several miscarriages in my 30's and apparently those could have been a lupus symptom, but they are pretty co...
by MomOf4Kids2Dogs
Wed Nov 05, 2014 6:41 pm
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Re: Lesions were a surprise, can colon issues be an MS sympt

Thank you mmpetunia for that story, I am still processing the shock I got last week while I wait for spinal tap results to most likely confirm the two MRI session results. The spinal tap was 10/30 so hoping I will get news soon. I am also waiting for the blood patch to finish settling my spinal head...
by MomOf4Kids2Dogs
Mon Oct 27, 2014 4:59 am
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Re: Lesions were a surprise, can colon issues be an MS sympt

Thanks you guys, I am getting a feel for how this works, and I really appreciate all the opinions. I appreciate all the different points of view. AAA7353 -- I appreciate your comments about meds because my doc was saying that I could slow down the cognitive issues by starting early intervention as s...
by MomOf4Kids2Dogs
Sun Oct 26, 2014 5:23 am
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Re: Lesions were a surprise, can colon issues be an MS sympt

Thanks euphoniaa, you have no idea how much relief I feel hearing that you were given a quick diagnosis. I was in tears yesterday because I hadn't heard of even one person who got a fast diagnosis without years of searching. Just to know one person like you had a possibly similar experience makes me...
by MomOf4Kids2Dogs
Sat Oct 25, 2014 6:17 pm
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Re: Lesions were a surprise, can colon issues be an MS sympt

I'm sorry I didn't know what information to provide. I have had very recent complete blood work since having my sigmoid colon removed. I remain at normal levels for B12, D, glucose, organ function etc. I am negative for parasites and disease markers. I have had about every digestive test in the book...
by MomOf4Kids2Dogs
Sat Oct 25, 2014 4:12 pm
Forum: General Discussion
Topic: Lesions were a surprise, can colon issues be an MS symptom?
Replies: 16
Views: 2730

Lesions were a surprise, can colon issues be an MS symptom?

I have been in the care of a neurologist for about 7 years for severe migraines but had never had an MRI. Last week, I learned through an MRI intended to confirm osteoarthritis in my neck (which was thought to be making my migraines worse) that I had a C4 lesion. Two days later an MRI with contrast ...