Search found 29 matches

by mystery1980
Sat Aug 29, 2015 1:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan and everyone else. Just a short message, at sunday a have a "normal" MRI to see if the syrinx is shrunken and if the hernia is complete gone in order from the neurosurgeon. At monday I first have a appointment with the physician assistent neurology, because my general pr...
by mystery1980
Mon Jul 20, 2015 12:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan and everyone else :) Thanks for the reply, today I have the appointment with the neurosurgeon I'm curious... When I went to the neurosurgeon in the other hospital they make a MRI and said I had no Chiari. I copy and paste a image from the MRI, but I don't know how I can post it he...
by mystery1980
Fri Jul 17, 2015 12:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan and everyone else :) It's been a while I was here because the thoracic surgery, and thanks to Robnl to give an update here about me :) The thoracic hernia is gone, but at this point 7 weeks further, my boyfriend and I do not notice that the complaints are less then before the surg...
by mystery1980
Thu Feb 26, 2015 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Thank you for your answer Dr. Flanagan,

I have to translate your text, but the hernia is at level T4/T5 so thoracic.
And so if I understand it right, there is no connection between syringomyelia and MS?

Kind regards
by mystery1980
Thu Feb 26, 2015 1:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Mystery, I apologize for not replying sooner but for some reason I was not receiving any email from TIMS. Let me know when you PM me with your images. Do you have nerve pain? The elevated vitamin B6 level may be related to peripheral neuropathy. Do you have any problems with digestion or elimi...
by mystery1980
Fri Jan 23, 2015 12:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan and everyone, It is a while a go that I was here because problems with my body. I still have to look for the mRI images, if I found them I will send them in a pm to you Dr. Flanagan, because I don't want that the images are on the forum. Also I have a question, are you knowable wi...
by mystery1980
Sun Jan 04, 2015 8:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan, I have to translate your text later on. But here is the picture from the "battle sign" how the neurologist it calls. The picture is taken a while after I fell of the stairs, I don't know anymore how long after it. http://s26.postimg.org/npbxswbad/143.jpg I remembered an...
by mystery1980
Sun Jan 04, 2015 3:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan, Thank you very much for your extensive answer. What I don't understand is that the neurosurgeon in Germany also did some tests with me and he said that most of the complaints can explain with the syrinx and my situation is properly "dangerous". The neurosurgeon in the N...
by mystery1980
Sat Jan 03, 2015 10:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan, I checked the papers what I have from the reports and here are some enumeration: In 2004 has the cardiologist written in the report: sinus tachycardia and sinus arrhythmia based on a Holter test ( and some other tests ). I came by the cardiologist because the "attacks",...
by mystery1980
Thu Jan 01, 2015 7:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Francis, I am trying to get a better perspective on the chronology of your condition. It certain conditions are caught early enough the prognosis is better. Has anyone thoroughly tested the muscles in your arms and legs including: !) fingers, wrists, arm, and shoulder muscles and 2) toes, fee...
by mystery1980
Mon Dec 29, 2014 12:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan,

I'm using the wheelchair for quite a while now ( I think about 1,5 year ) but only for, for example with my mother to the market or go shopping year.
Also I have a scootmobile since june this year.

May I ask why are you asking it?

Kind regards,

Francis
by mystery1980
Sun Dec 28, 2014 7:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan,

The text you post before is about the Dutch doctors if I read it right isn't?
And if I read it right in Amerika it calls Chiari 0?

Do the complaints I wrote before say something to you? :oops:

Kind regards,

Francis
by mystery1980
Sun Dec 28, 2014 4:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Hello Dr. Flanagan and all the others, I forgot I apologize but I hope everyone had a nice Christmas? I can't find the images of before at the moment, so they follow later.. I haven't write all of the complaints because I think they are not important or they are there sometimes. But I write them now...
by mystery1980
Sat Dec 27, 2014 2:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Thanks,

Maby if I found the old mRI images I can show you better what I mean, if you want to see them?

And thats a good sign, but how can I feel the neuralgia then?

Kind regards,

Francis
by mystery1980
Sat Dec 27, 2014 2:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 982645

Re: CCSVI and CCVBP

Thank you for your answer Dr. Flanagan! The e-mail is on his way to the German doctor. If I have an answer on it, I let it now. Now at this time I have 2 more questions for you: I have Gabapentine and Carbamazepine for neuralgia and a while ago I had a SSEP and MEP research ( at that time I had only...

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