This Is MS Multiple Sclerosis Knowledge & Support Community

my sister has gone to emergency, she finished a three day course of high-dose intravenous prednisone and then a couple days later kind of collapsed, she's feeling very "ill" and weak, legs have suddenly gone out on her. i'm trying to google side effects, can anyone give me an idea of whats...

The problem with the twin study is that Traboulsee is taking $1M in funding from the donations of MS patients, and their families and communities. And he's using it for a research that won't even come close to answering their question of whether this treatment does or does not help them. I have a be...

Kyle, regarding that wait, I've sent you a PM with some ideas

kyle, can you clarify, a six month wait for the initial appointment... or insurance approval...or for the treatment?

I went to John Hopkins last month for my appointment with the Revimmune team. It went well, they approved me for the therapy, now just waiting to see if BlueShield will cover the costs. The team seemed to feel there was a reasonable chance that the treatment will be covered. I have minimal disabilit...

I want to agree with everyone who said the team at JH is incredible. I phoned Carrie Trecker, got phoned back by one of the doctors on the team, who spent more time reviewing my status/symptoms than my neurologist has in total over two years. His careful detail made me feel very positive about the t...

I was very sorry to hear of your sad loss, Harry. I hope you remain active with us on this site. I've always looked forward to your posts.

I've noticed same. I have minor balance issue, only apparent when I'm walking slowly. Running, climbing stairs, no. I read the article below some time ago and it influenced me to try to try training better balance on my own, since I can't apparently get any physio, by hiking/running on challenging r...

Gibbledy, yeah, I saw that as well. Any infection probably raises IL-6, thats probably why gum disease is linked to cardio disease//overall mortality.

(Sharon: I'm sending you nyt article by PM and will see if I can track down DHEA/IL6 study it referenced).

This is hugely interesting. I'm going to look further but I happened to be on NYTIMES website and searched IL-6 and came up with a health article on DHEA indicating that when the hormone is given to older men and women it produced lower levels of interleukin-6 (along with higher levels of infection-...

Actually, I think this should go under "general" rather than diet. NICK could you possibly comment on this?? It seems to support the Ashton Embry theory (as I understood it) re leaky gut/food antigen. And, err, also seemed to support LYON theory that deliberate introduction of bacteria/par...

Hey, I got a copy of the full article, but its a really bad fax/pdf. I'm glad to email to anyone (until I find a site I can post these docs to). FYI the dose given was 1-2 gram daily with the goal of exceeding (not meeting) normal blood serum level. And, as Dignan's abstract pointed out, not only we...

Thanks Cureo/Lyon. Lyon, I actually don't think that either "Tim" or his father are getting rich. My guess is that Opexa's IR/PR guy encouraged or placed the "Tim" posts as a carny way of priming the investment market...and priming the ms community. Its not sanctionable, but its ...

Cureo/thanks for idea/but it created a jpeg file much too large to download to photobucket, I'll try to find another site.