Search found 153 matches

by ljm
Tue Apr 05, 2011 7:44 pm
Forum: General Discussion
Topic: please help: reaction to high dose intravenous steroids
Replies: 4
Views: 2031

please help: reaction to high dose intravenous steroids

my sister has gone to emergency, she finished a three day course of high-dose intravenous prednisone and then a couple days later kind of collapsed, she's feeling very "ill" and weak, legs have suddenly gone out on her. i'm trying to google side effects, can anyone give me an idea of whats happening?
by ljm
Thu Feb 11, 2010 9:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UBC Limits Research to Twins !!
Replies: 10
Views: 2167

The problem with the twin study is that Traboulsee is taking $1M in funding from the donations of MS patients, and their families and communities. And he's using it for a research that won't even come close to answering their question of whether this treatment does or does not help them. I have a be...
by ljm
Tue Jul 08, 2008 5:05 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Have sent my records to JH for HiCy
Replies: 10
Views: 3397

Kyle, regarding that wait, I've sent you a PM with some ideas
by ljm
Tue Jul 08, 2008 4:23 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Have sent my records to JH for HiCy
Replies: 10
Views: 3397

kyle, can you clarify, a six month wait for the initial appointment... or insurance approval...or for the treatment?
by ljm
Sun Jul 06, 2008 5:49 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Have sent my records to JH for HiCy
Replies: 10
Views: 3397

Just waiting for health insurance approval

I went to John Hopkins last month for my appointment with the Revimmune team. It went well, they approved me for the therapy, now just waiting to see if BlueShield will cover the costs. The team seemed to feel there was a reasonable chance that the treatment will be covered. I have minimal disabilit...
by ljm
Wed Feb 06, 2008 6:55 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Have sent my records to JH for HiCy
Replies: 10
Views: 3397

Have sent my records to JH for HiCy

I want to agree with everyone who said the team at JH is incredible. I phoned Carrie Trecker, got phoned back by one of the doctors on the team, who spent more time reviewing my status/symptoms than my neurologist has in total over two years. His careful detail made me feel very positive about the t...
by ljm
Tue Oct 02, 2007 12:07 pm
Forum: General Discussion
Topic: Sad news
Replies: 78
Views: 15321

My thoughts are with you Harry

I was very sorry to hear of your sad loss, Harry. I hope you remain active with us on this site. I've always looked forward to your posts.
by ljm
Fri Aug 10, 2007 6:53 am
Forum: General Discussion
Topic: walking adaptations
Replies: 3
Views: 2210

I've noticed same. I have minor balance issue, only apparent when I'm walking slowly. Running, climbing stairs, no. I read the article below some time ago and it influenced me to try to try training better balance on my own, since I can't apparently get any physio, by hiking/running on challenging r...
by ljm
Tue Jan 02, 2007 10:59 pm
Forum: General Discussion
Topic: IL-6 and MS
Replies: 14
Views: 3275

Gibbledy, yeah, I saw that as well. Any infection probably raises IL-6, thats probably why gum disease is linked to cardio disease//overall mortality.
by ljm
Sat Dec 30, 2006 12:05 am
Forum: General Discussion
Topic: IL-6 and MS
Replies: 14
Views: 3275

(Sharon: I'm sending you nyt article by PM and will see if I can track down DHEA/IL6 study it referenced).
by ljm
Fri Dec 29, 2006 5:42 pm
Forum: General Discussion
Topic: IL-6 and MS
Replies: 14
Views: 3275

This is hugely interesting. I'm going to look further but I happened to be on NYTIMES website and searched IL-6 and came up with a health article on DHEA indicating that when the hormone is given to older men and women it produced lower levels of interleukin-6 (along with higher levels of infection-...
by ljm
Fri Dec 22, 2006 12:24 pm
Forum: Diet
Topic: Food allergies and the immune system
Replies: 7
Views: 4570

NICK? LYON? what about this article?

Actually, I think this should go under "general" rather than diet. NICK could you possibly comment on this?? It seems to support the Ashton Embry theory (as I understood it) re leaky gut/food antigen. And, err, also seemed to support LYON theory that deliberate introduction of bacteria/parasite migh...
by ljm
Tue Nov 28, 2006 9:46 pm
Forum: Natural Approach
Topic: uric acid
Replies: 159
Views: 60151

Hey, I got a copy of the full article, but its a really bad fax/pdf. I'm glad to email to anyone (until I find a site I can post these docs to). FYI the dose given was 1-2 gram daily with the goal of exceeding (not meeting) normal blood serum level. And, as Dignan's abstract pointed out, not only we...
by ljm
Mon Nov 27, 2006 8:02 pm
Forum: General Discussion
Topic: Asthma
Replies: 28
Views: 4601

Thanks Cureo/Lyon. Lyon, I actually don't think that either "Tim" or his father are getting rich. My guess is that Opexa's IR/PR guy encouraged or placed the "Tim" posts as a carny way of priming the investment market...and priming the ms community. Its not sanctionable, but its questionable, and th...
by ljm
Sat Nov 25, 2006 11:09 pm
Forum: General Discussion
Topic: Estrogen Induced Neuroprotectio (article available)
Replies: 4
Views: 2058

Cureo/thanks for idea/but it created a jpeg file much too large to download to photobucket, I'll try to find another site.

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