Search found 15 matches

by Damjan
Tue Aug 19, 2008 10:48 am
Forum: General Discussion
Topic: My vascular (?) problems - related to MS?
Replies: 16
Views: 15772

My vascular (?) problems - related to MS?

Hi to all, first of all, I have my MS diagnosis since 2004, had about 15 relapses since then, remission incomplete. I've been reading about MS as a vascular disease and want to ask you something. This year I have noticed some strange blood spots emerging spontaneously under the skin. They are not br...
by Damjan
Thu Jul 31, 2008 10:11 pm
Forum: General Discussion
Topic: Tysabri: 2 new cases of PML
Replies: 20
Views: 7728

I certainly hope that PML with Tysabri isn't just a matter of time... WHEN, not IF...
by Damjan
Mon Jul 14, 2008 9:35 am
Forum: Rebif
Topic: I am just asking......
Replies: 12
Views: 6279

Let me just say hello to you (we are from the same small country): Lepo, da si se opogumila tudi tukaj na precej bolj globalnem forumu. Glede rebifa ti žal ne morem pomagati, ker nisem na nobenih injekcijah - kljub težavam. Od tu naprej se pogovarjamo pa na domačem terenu ;) - msforum. So much about...
by Damjan
Mon Jul 14, 2008 9:28 am
Forum: General Discussion
Topic: Temporary paralysis - ten second flashes
Replies: 14
Views: 8900

Thank you for your post. I'm obviously not the only one. Sorry to hear that you're not getting better for two years... How long do your "flashes" usually last? Can you walk at that time? I lose my strength almost completely during those 10 seconds and if it were my leg I would have to stop...
by Damjan
Sun Jul 13, 2008 2:36 am
Forum: Drug Pipeline
Topic: Minocycline trial risults
Replies: 4
Views: 3158

Any dosage info?

I'm interested in ABX but I can't find any useful info about the regime (dosage, timing...).

Can you provide some useful links?

Thank you.
by Damjan
Thu Jul 10, 2008 11:17 pm
Forum: General Discussion
Topic: Temporary paralysis - ten second flashes
Replies: 14
Views: 8900

Reading the article about seizures: http://en.wikipedia.org/wiki/Seizure Seizures can cause involuntary changes in body movement or function, sensation, awareness , or behavior. A seizure can last from a few seconds to status epilepticus, a continuous seizure that will not stop without intervention....
by Damjan
Thu Jul 10, 2008 12:38 pm
Forum: General Discussion
Topic: Temporary paralysis - ten second flashes
Replies: 14
Views: 8900

Thank you both for sharing your thoughts. First, I have been tested for Lyme. CSF and blood tests were negative during my first real relapse in 2004... I'm from Europe though (Slovenia), thank you for not noticing ;). Maybe I should repeat the test... Second, I'm 28 (I know, I didn't mention before,...
by Damjan
Thu Jul 10, 2008 11:52 am
Forum: General Discussion
Topic: Temporary paralysis - ten second flashes
Replies: 14
Views: 8900

I do have official diagnosis for 4 years (based on my neurological status, positive MRI, LP and SEP). Had second MRI scan last year, which confirmed the diagnosis (14 or so lesions). I talked to my neuro over the phone but he thought it was weird too. I'm not sure what tests should I do next to get ...
by Damjan
Thu Jul 10, 2008 10:45 am
Forum: General Discussion
Topic: Temporary paralysis - ten second flashes
Replies: 14
Views: 8900

No ideas? I'm thinking of some possible reasons: - mini relapses/remissions (but 10 seconds??? - that's what should be called RRMS!) - MS is causing some kind of ...lepsy (like "narcolepsy" - but only some parts of my body falls asleep) - it isn't MS at all, something else is causing this ...
by Damjan
Sun Jul 06, 2008 11:46 am
Forum: General Discussion
Topic: Temporary paralysis - ten second flashes
Replies: 14
Views: 8900

Temporary paralysis - ten second flashes

Hi to all, I have a question. For about a month I'm getting partial temporary paralysis to my left hand and parts of my face - mostly lips, chin and the right eye. It happens every few (15 or so) minutes for about 10 seconds - I can't use my left hand, can't speak, I kind of freeze. After 10 seconds...
by Damjan
Thu May 29, 2008 9:52 am
Forum: Drug Pipeline
Topic: Cellcept
Replies: 11
Views: 6682

Just ran into this info: May 16, 2008 — The FDA today underscored the risk of miscarriage and birth defects in women taking the immune-suppressing drugs CellCept or Myfortic. Those drugs are approved for use by organ transplant patients to prevent organ transplant rejection. They're sometimes used &...
by Damjan
Wed May 07, 2008 7:26 am
Forum: Drug Pipeline
Topic: Research presentation movie
Replies: 14
Views: 4793

I have some questions about this movie, maybe worth of discussion: Are all the cells that use the "red" potassium channel bad? It seemed to me that those are the cells that sustain our life-time immunity (some of them attacking our own body chronically)... Wouldn't blocking those cells (an...
by Damjan
Tue May 06, 2008 8:44 am
Forum: Drug Pipeline
Topic: Research presentation movie
Replies: 14
Views: 4793

Research presentation movie

Not really an FDA approved (yet), but looks promising... Worth watching, at least was for me... Any comments?



Regards from Slovenia, Europe.
by Damjan
Sun Mar 05, 2006 12:24 am
Forum: Drug Pipeline
Topic: Genomed
Replies: 3
Views: 2882

I felt pretty much the same, watching those two videos. Almost like a bad commertial...
by Damjan
Sun Jan 29, 2006 7:09 am
Forum: Drug Pipeline
Topic: Hype? Rituximab
Replies: 3
Views: 3283

Anybody noticed safety warnings on Rituxan homepage? Important Safety Information WARNINGS Fatal Infusion Reactions: Deaths within 24 hours of RITUXAN infusion have been reported. These fatal reactions followed an infusion reaction complex which included hypoxia, pulmonary infiltrates, acute respira...

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