Search found 45 matches

by vender
Wed Oct 31, 2018 6:50 am
Forum: General Discussion
Topic: Fed up PRMS looking for anything !!
Replies: 14
Views: 868

Re: Fed up PRMS looking for anything !!

You are going to hate me but I'm going to disagree with everyone. Number one true MS is not controlled by diet. I wish it was. Also Ocrevus and this is directly from Genatech should work immediately after your very first infusion. The studies done by them are garbage. This is what I hate about MS ju...
by vender
Wed Oct 31, 2018 6:38 am
Forum: Ocrevus (Ocrelizumab)
Topic: Second Infusion two weeks away, I feel like death? Any other
Replies: 11
Views: 1410

Re: Second Infusion two weeks away, I feel like death? Any o

Sorry for disagreeing with you but the studies conducted by Ocrevus are some of the worst data collection statistics ever. Don't believe what the drug companies tell you. There are studies are complete garbage I worked in statistical process control for 10 years so I know the stats
by vender
Tue Oct 30, 2018 1:32 pm
Forum: General Discussion
Topic: Fed up PRMS looking for anything !!
Replies: 14
Views: 868

Fed up PRMS looking for anything !!

I was diagnosed about five years ago. How is it possible for something to destroy you so quickly? There is got to be an answer that will get my life back. I have tried your Gilenya now trying Ocrevus. Nothing, no change at all. The past three months has been hell! I told my neurologist I would wait ...
by vender
Wed Oct 17, 2018 11:58 am
Forum: Ocrevus (Ocrelizumab)
Topic: Second Infusion two weeks away, I feel like death? Any other
Replies: 11
Views: 1410

Re: Second Infusion two weeks away, I feel like death? Any o

No real changes from 1 to 2 to 3. I'm due for 4 now. So why continue? I got my second infusion no change at all so I am done. The only thing that seems to help me is Solu-Medrol infusion. Just waiting to get it. There should be a money back guarantee like everything else you buy in life if it doesn...
by vender
Wed Oct 03, 2018 11:57 am
Forum: Ocrevus (Ocrelizumab)
Topic: Second Infusion two weeks away, I feel like death? Any other
Replies: 11
Views: 1410

Second Infusion two weeks away, I feel like death? Any other

Hello I get my next infusion in 10 days it will be my second infusion and was wondering does anyone else feel like complete shit? Yeah for the past 2 1/2 months I’ve been feeling worse than never. Is the second infusion the trick? Anyone else experiencing feeling horrible before their second infusio...
by vender
Sat Sep 22, 2018 3:26 pm
Forum: Introductions
Topic: Diagnosed Hello All! Any help for ophthalmoplegia?
Replies: 36
Views: 3195

Re: Diagnosed Hello All! Any help for ophthalmoplegia?

I am just going to say there is no cure or treatment for TRUE BINO. I have tried PT in the past. That's great for people who are seeing better but they simply do not have BINO. They are just getting used to whatever it is that is causing them issues. Sorry for dropping out. My pelvic floor dysfuncti...
by vender
Wed Sep 12, 2018 6:01 am
Forum: General Discussion
Topic: Trouble swallowing esophagus being pushed over?
Replies: 34
Views: 1200

Re: Trouble swallowing esophagus being pushed over?

I see my Neuro Friday at 2:30. I will discuss this with her. Thank you for all your help.
by vender
Tue Sep 11, 2018 6:58 am
Forum: General Discussion
Topic: Progressive MS symptoms leading up to not being able to walk
Replies: 11
Views: 1060

Re: Progressive MS symptoms leading up to not being able to

I have always been able to push through and keep going. This is a new form of fatigue that literally takes me out. I had thought that my legs couldn't get any worse I was wrong. The pain is truly unbearable and I have a very high tolerance for pain. I take no pain medications and this is getting to ...
by vender
Tue Sep 11, 2018 5:04 am
Forum: Ocrevus (Ocrelizumab)
Topic: After first infusion no change in progression
Replies: 4
Views: 835

After first infusion no change in progression

Hello all after my first infusion five months ago I feel no different at all. I am coming up on my second infusion and was wondering should I even bother? I feel as if everything is progressing at the same alarming rate. I have been told after the first infusion I should feel better but I am not. I ...
by vender
Tue Sep 11, 2018 4:04 am
Forum: General Discussion
Topic: Progressive MS symptoms leading up to not being able to walk
Replies: 11
Views: 1060

Re: Progressive MS symptoms leading up to not being able to

FYI. I started taking 800mg of GNC super magnesium. Is that enough? I’m trying anything. I need energy!! Cocaine? Meth? Speed? I no longer care as this is not living. “I would do anything to feel like shit again!”
by vender
Tue Sep 11, 2018 4:00 am
Forum: General Discussion
Topic: Trouble swallowing esophagus being pushed over?
Replies: 34
Views: 1200

Re: Trouble swallowing esophagus being pushed over?

FYI. I started taking 800mg of GNC super magnesium. Is that enough? I’m trying anything.
by vender
Mon Sep 10, 2018 1:01 pm
Forum: General Discussion
Topic: Progressive MS symptoms leading up to not being able to walk
Replies: 11
Views: 1060

Progressive MS symptoms leading up to not being able to walk

Progressive MS symptoms leading up to not being able to walk.

Hello I was wondering if for those who don’t walk anymore. Anything you can remember leading up to no longer walking? Extreme pain, tightness in the legs/calf? Extreme fatigue beyond MS tired?
by vender
Wed Sep 05, 2018 8:47 am
Forum: General Discussion
Topic: Trouble swallowing esophagus being pushed over?
Replies: 34
Views: 1200

Re: Trouble swallowing esophagus being pushed over?

I do not have any issues with my bowel or urinary. It is simply a stabbing pain never goes away because my pelvic floor is in constant constriction.
Meds
Baclofen Valium modafinil and Ocrevus infusion. And 50,000 vitamin D once a week. My vitamin D was super super low
by vender
Wed Sep 05, 2018 7:53 am
Forum: General Discussion
Topic: Trouble swallowing esophagus being pushed over?
Replies: 34
Views: 1200

Re: Trouble swallowing esophagus being pushed over?

I have bilateral internuclear ophthalmology. It makes it very difficult to see. And type. I also have pelvic floor dysfunction my muscles are in constant spasm. It never ends. My leg spasticity is horrible lately.
So spasticity yeah I'm familiar
by vender
Wed Sep 05, 2018 6:20 am
Forum: General Discussion
Topic: Trouble swallowing esophagus being pushed over?
Replies: 34
Views: 1200

Re: Trouble swallowing esophagus being pushed over?

Yes sorry I have to do voice to text. Thank you for finding that information! I have a hard time looking at screens