Search found 21 matches
- Thu Jul 21, 2016 10:35 am
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
All of my labs came back normal, including the ones the neuro quack ordered. I don't have the lab results in hand at the moment, but I will gladly share the results once I get done cooking our lunch. And I agree about the nutrient levels & testing being important. My calcium & magnesium were...
- Thu Jul 21, 2016 3:56 am
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
I might add too that even with the Gabapentin, I still have no feeling in the tips of my index, middle & ring fingers, although I can finally feel my thumb after 5+ years of zero sensation!!
- Thu Jul 21, 2016 3:23 am
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
Yes, going to Florida or mobile is my only option, as there is no specialist in my county that accepts my insurance. Universitiy of South Alabama is the closest one. My GP has already given me a referral to go there, so will try to do so. As far as the Vit D testing, I have requested this 3 separate...
- Tue Jul 19, 2016 2:54 pm
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
***RANT*** So I went back for my follow up appt today, and I think my neurologist just "fired" me as his patient!! He said ALL my labs are normal (can't get actual numbers cuz he refused to give them to me), my BRAIN ONLY MRI was within normal limits for age. He refuses to do a spinal or n...
- Fri May 20, 2016 3:24 pm
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
Since this whole MS thing is new to me, I don't know which neurologists around here are MS specialists. My GP did inform me that there are no neurology groups that accept my insurance in my own county, which means I either have to go to someone in Florida, or to the University of South Alabama, in M...
- Thu May 19, 2016 3:27 am
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
My GP understood how I feel about the un professionalism of the neuro I'm currently going to, and said for me to find a new one that takes my insurance, let him know & he will gladly give me a referral. He also stated that the ICD diagnostic codes DO in fact mean that he has made a diagnosis, an...
- Wed May 18, 2016 9:06 am
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
Thank you all for your input, it is greatly appreciated. I am at my GP's office now, and asking for a referral to a new neuro. I don't like feeling like an income source & a basic number, lol, I want to be treated as an individual with a physician that actually cares!
- Tue May 17, 2016 1:41 pm
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Re: Frustrated & thoroughly confused with my neurologist
I have been keeping a journal of all my symptoms, and the dates they occur. I had this with me at both visits, but he doesn't stay in the room long enough for me to really talk to him. I'm sure this is not normal behavior for a professional that is supposed to care about their patient's well being o...
- Tue May 17, 2016 6:06 am
- Forum: Undiagnosed
- Topic: Frustrated & thoroughly confused with my neurologist
- Replies: 16
- Views: 3056
Frustrated & thoroughly confused with my neurologist
I went to my neurologist for the 1st time on Apr 7. He didn't spend much time with me... Basically introduced himself, had me walk while he watched, checked reflexes & strength, and did a brief, handheld buzzer thing to my arms & legs. He then asked me if any of my Dr's have ever brought up ...
- Thu Apr 07, 2016 3:30 pm
- Forum: Undiagnosed
- Topic: Undiagnosed.... Single mom freaking out
- Replies: 26
- Views: 4949
Re: Undiagnosed.... Single mom freaking out
*** UPDATE *** I finally had my neurology appointment today. After a lengthy discussion, he watched me walk, and I only had to take 3 steps before I started dragging & nearly tripped over my foot, at which point he had me come back to the exam room. He then did some neurological exam, using a vi...
- Sun Mar 13, 2016 8:18 pm
- Forum: Undiagnosed
- Topic: Undiagnosed.... Single mom freaking out
- Replies: 26
- Views: 4949
Re: Undiagnosed.... Single mom freaking out
lyndacarol... He did not give me specific B12 levels but did say that it was more than double what would be considered a deficiency level. I did ask him twice about this, but he keeps insisting I keep my appt w/ Neuro in April (no prob!). On the plus side, my shirt isn't hurting me like it was the ...
- Sun Mar 13, 2016 7:27 am
- Forum: Undiagnosed
- Topic: Undiagnosed.... Single mom freaking out
- Replies: 26
- Views: 4949
Re: Undiagnosed.... Single mom freaking out
lyndacarol... He did not give me specific B12 levels but did say that it was more than double what would be considered a deficiency level. I did ask him twice about this, but he keeps insisting I keep my appt w/ Neuro in April (no prob!). On the plus side, my shirt isn't hurting me like it was the l...
- Sat Mar 12, 2016 11:22 am
- Forum: Undiagnosed
- Topic: Undiagnosed.... Single mom freaking out
- Replies: 26
- Views: 4949
Re: Undiagnosed.... Single mom freaking out
*UPDATE* NCV done 2wks ago showed no peripheral nerve problems in my legs, but did show I may have Carpal Tunnel in my arm. The lumbar X-Ray was perfect. I know xrays don't detect MS, but what about NCV? Is that used to rule it out? The vertigo & ringing has gotten worse, my retrobulbar optic ne...
- Sun Feb 07, 2016 1:31 pm
- Forum: Undiagnosed
- Topic: Undiagnosed.... Single mom freaking out
- Replies: 26
- Views: 4949
Re: Undiagnosed.... Single mom freaking out
Unfortunately I haven't been seen by the neuro yet... The soonest available appt for new patients was Apr 7, so I do have to wait yet again. Meanwhile my eye issue is getting more frequent, which worries me. From what I've read, it could lead to complete loss of vision, which honestly scares the cra...
- Tue Feb 02, 2016 8:49 am
- Forum: Undiagnosed
- Topic: Undiagnosed.... Single mom freaking out
- Replies: 26
- Views: 4949
Re: Undiagnosed.... Single mom freaking out
*UPDATE* I am still fighting w/ my insurance about necessity of MRIs. Apparently for this type of test to be covered by them, there has to be recent head trauma, or a solid Neurological diagnosis.... SMH! My GP already stated that he suspects MS, but won't give me a diagnosis until he's looked at my...