Search found 10 matches

by EvaKay
Thu Jul 21, 2016 9:59 am
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Update: This afternoon is my appointment with neurologist number 2. Number 1 was a kook. He insisted that I couldn't possibly have ms as I have/had family members that have/had ms. This despite multiple lesions on my c-spine and 12 lesions on my brain. He wasn't interested in all of the symptoms nor...
by EvaKay
Mon Apr 25, 2016 4:51 pm
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Scott,
Thank you! I found that link interesting and am going to discuss that information with my primary care.
I particularly found the mention of retinol and premature babies interesting as I was a preemie.
Carrots are on my shopping list!
How much carrot juice would you suggest as a daily?
by EvaKay
Mon Apr 25, 2016 4:48 pm
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Hi Oddity, I am taking 600mg every 8 hours. I started out on 300mg every 8hours for a month. It seemed to wear off before I was due for another dose so it was increased. The only side effect I have noticed was initially maybe a little increased drowsy / foggy thinking but that passed quickly as I go...
by EvaKay
Thu Apr 21, 2016 3:41 pm
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Thanks,Scott. I'll check out that link. As far as pain, yes I have pain. I've got a horrid burning that runs down my right arm. Rather like a hot iron rod being rammed down it. The amitryptiline is supposed to help me sleep through the night. Primary care seems to think that will help with fatigue. ...
by EvaKay
Mon Apr 18, 2016 11:33 am
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

A bit of an update: According to my primary care, she is now leaning toward MS as a very likely possibility. The EMG report by a second neuro stated that the neurologist reading the EMG felt that I likely have 2 issues. Cervical radiculopathy and "demyelination". I have an MRI tomorrow. Pa...
by EvaKay
Thu Mar 03, 2016 8:25 am
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Thanks, Scott. I have a neurology appointment on May 5. Thats the soonest appointment I could get. My primary care is forwarding results of every test and all imaging to the neurologist she referred me to and is in communication with him. Maybe they'll get me in sooner after they have EMG results an...
by EvaKay
Wed Mar 02, 2016 1:03 pm
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Hi,Scott. I am waiting to see a neurologist. I am taking advice from my primary care physician. The initial onset of symptoms sent me to the ER.The ER doctor was the one who first said that I needed a referral to a neurologist to be evaluated for MS. That was the neurology consult they called in tha...
by EvaKay
Tue Mar 01, 2016 11:53 am
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

This is a long drawn out battle! I'm now scheduled for an EMG on the 15th. I'm on 600mg gabapentin and hydrocodone for pain. The c-spine showed moderate degeneration of C-4C-5and C-6 with several bone spurs. My PCP isn't satisfied that this is the only issue I have going on though. Along with the el...
by EvaKay
Mon Feb 22, 2016 6:04 am
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Re: Seeking advice

Hi,Lyndacarol. My vitamin d level on the 25 hydroxy D test was shown as 37ng/mL with a range of 20-50ng/mL being considered normal. My B12 level is also normal. I'd have to look at the report but my B12 was in the neighborhood of 625-650. I feel like a pin cushion from all the lab work. My TSH was 1...
by EvaKay
Fri Feb 19, 2016 8:21 am
Forum: Undiagnosed
Topic: Seeking advice
Replies: 16
Views: 3668

Seeking advice

Ok so here's my story.....I'm 34,female, have asthma, previously treated for anxiety and depression later determined to be PTSD, previous history of migraine as a teenager, have fibroids and gallstones NO PREVIOUS neurological issues..... about 3 months ago I started getting tingling sensation an nu...

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