This Is MS Multiple Sclerosis Knowledge & Support Community

Sorry, between feeling rotten and being swamped at work, I haven't had time to answer all of your questions and respond to your posts. Just wanted to say quickly that three weeks ago a movement disorders specialist diagnosed my spasms and twitches only (not my other symptoms) as paroxysmal nonkinesi...

Can't believe it's been five months since my last post and I still don't have a diagnosis. Here's an update. Any advice is appreciated (and yes, I know it can't replace a medical opinion. Believe me, I'm seeing an incredible number of doctors.) I've had all sorts of bloodwork, and it's all come bac...

This sounds all too familiar to me. After being misdiagnosed in July 2015 with achilles tendinitis, misdiagnosed in August 2015 with tarsal tunnel, and misdiagnosed in September 2015 with "nerve inflammation", I was misdiagnosed in January 2016 as having spine issues based on MRIs showing ...

Can't believe it's been five months since my last post and I still don't have a diagnosis. Here's an update. Any advice is appreciated (and yes, I know it can't replace a medical opinion. Believe me, I'm seeing an incredible number of doctors.) I've had all sorts of bloodwork, and it's all come back...

I have one lesion in the corpus callosum (which is "oriented perpendicularly from the flexor surface") and one in the cerebellar white matter.

Well, this was unexpected. I just got the report on my brain MRI and there are two "multifocal abnormal white matter lesions with characteristic appearance and location for demyelinating disease such as multiple sclerosis." Everything else looks fine. The radiologist concluded that the fin...

Thanks, that's really helpful information on the B12. I am indeed using cyanocobalamin instead of methylcobalamin, so I will look for the latter the next time I go to the store. I am still waiting for MRI results. In the meantime, I've become overwhelmed by lightheadedness and a feeling of being dis...

Thanks for your response! Sorry I wasn't clearer. I have had my vitamin D tested a few times a year for several years because of low levels and was originally on 2000 units a day, then upped to 4000 units a year ago. I do not stop taking the supplements before tests, and my D level is usually in the...

I've been trying to get a diagnosis for over a year. The doctors thought I had an orthopedic problem, then another orthopedic problem, then a neurological problem, then another neurological problem, then an orthopedic problem again. My symptoms kept getting more severe and more widespread, and now m...