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It does sound like you are getting good care and the doctors have your best interest in mind. For me it is a different story in this state. I went to my primary last week and she says over and over again that brain lesions can't cause my symptoms nor can infections. Then she tells me I need to go to...

That's good news to hear that Dr. Goyal is stating SFN can be reversed or just go away. If things start to deteriorate for me I may make an appointment with UCI. My problem is I live in Las Vegas. I lived in Orange County my whole life then a few years ago I decided to move to Henderson, NV. I think...

Hi Rich, I read some of the responses here. I have thought the same thing many times as you about all the people on here recommending vitamins and books. While I think some of them are sincere it does make you wonder if some of them don't have allterior motives. Some of these recommendations have se...

Your doctors do sound good. It is strange they have not ordered a brain MRI. I would assume it was because you have passed the Neuro physical exam without any issues. I just read a book about vitamin b12. The author states that low b12 levels can mimic MS ME and even cause non specific white matter ...

Hi Rich, your story sounds similar to mine. I'm a 46 yr old male. Up until a little over a year ago I was working out 4- 5 times a week. Then bam strange weakness and pain in my legs, twitching in my calves and some upper body tremors. I'm surprised you have not had a brain MRI. I have had 3 and all...

This could be anxiety. Maybe a good yoga class will help? I also recommend staying away from an OPEN MRI. Due to claustrophobia I went in an OPEN .7T machine. What a mistake and waste of money. It made my brain look normal compared to the 1.7 and 3T machines I went into. If you are claustrophobic, s...

I was under the impression that the C Clinic would have tested further to continue to rule out MS. Things like evoked potential tests, etc. I had also originally been to a well respected neurologist in California who had strongly hinted that my symptoms were due to MS. I then felt it appropriate to ...

When the MS Specialist shocked me with that diagnosis, I was fully prepared to receive an MS diagnosis, I said to her then we should get a biopsy for that. She said her Cleveland Clinic location did not perform this test. She said the ones they had done in the past were contaminated so she does not ...

http://s1067.photobucket.com/user/oddity11/library/

This may link better to my MRI images.

The Cleveland Clinic is where the MS specialist I saw is at. I have had my initial assessment there where the specialist looked at the two previous MRI's I had. The specialist said the .7 open MRI images were worthless. She looked at the 1.5T results and said this did not look like MS to her, but sh...

That's the funny thing. I went to a regular neurologist initially. She said it very well could be MS. Let's just say she made some mistakes such as allowing me to go into an open MRI with only .7 Tesla. This was my second MRI after my first, in a 1.5T machine, showed numerous non-specific lesions. A...

The MS Specialist says this is not MS. Current symptoms are mainly itchy bilateral pain in both legs, which is intermittent. The weirdest symptom is a cold pain in both calves. This is more pronounced in the afternoons. I live in a very hot climate and I am almost to the point that I cannot wear sho...

Hi, I also test positive for EBV, which was a big surprise to me because I cannot remember having mono. I was told that most people will test positive. I'm assuming you may have a very high EBV titter value or you are IGM positive. Without this, I'm not sure how I would be able to get a provider to ...

Thank you for your reply. I do believe this is from an infection. I was in a relationship with someone that disclosed to me they had herpes. I had no idea one could contract the virus when the carrier showed no symptoms. While I have never had a traditional outbreak and now have chronic red bumps on...

The MS Specialist I recently had a followup with after another brain MRI in a 3T machine says my "numerous" lesions are not consistent with MS. She said there were no new lesions from my last MRI that was done six months ago. She said my lesions are also not typical for MS since they are f...