This Is MS Multiple Sclerosis Knowledge & Support Community

Says to use the microphone. Where is it? I like to use my iPad.

How would I arrange to get ccsvi venoplasty from Dr Zamboni? --July 2019.

So wonderful that you have communicated on this forum again, Dr. Sclafani. Thank you. One thing I’ve wondered about: Fifty years ago I observed an angiogram up to the heart. Ten years ago I did not pass a heart stress test, and the cardiologist wanted me to have an angiogram. I asked our family doct...

Thank you for these diagnoses and codes.

Several of us are wondering similarly.

I think coding has changed (it's 7 years later, now), but this is something to start with.

"5 mg of benadryl every 4 to 6 hours"... A caplet is 25mg, per the Benedryl site. I get mine as a generic equivalent. I think it would be possible to use a pill cutter to cut it into roughly 4 parts, which would be close enough for me. I've been taking one caplet at bedtime for the past months, help...

Lyme testing results are merely indicators, not definitive. IGENEX lab is usually considered the best. There are lots of different types of Borrelia besides the Borrelia burgdorferi, which is "Lyme", and testing may well not test for other strains. I probably got Borrelia persica in the Middle East....

My local family practice MD saw me a few days before I was to leave for NYC. He noticed swelling in my left neck (where I ache nearly every morning) and jaw. He thought I might have a failed root canal. Said not to fly! So disappointed. I have been trying to accomplish this for 6 months or so. The e...

Thank you Cece. Interesting about bumpy vs. smooth. If Dr. makes a comment regarding this after my procedure, I'll post it. Dr. A. could not get his instruments up the jugulars due to bony blockages, so I've been doing Atlas Orthogony for a couple of years. The jugular valves were occluded and abnor...

Right, Dr. Sclafani has written that the venoplasty treatment of CCSVI should be evaluated and considered for neurologic disease in addition to MS.

If anyone learns more about brain drain, CCSVI, and Alzheimers, please post. I need to know.

When I first read your post I got concerned, because I just now wrote Dr. Sclafani again about scheduling my 2nd ccsvi treatment. So what you mean by CCSVI is the condition of having jugular veins stenosis, not the CCSVI treatment, right? That brain lesions already exist due to oxidative stress, and...

Yes, please reply regarding having CCSVI in Albany with Dr. S. Do you mean Dr. Sclafani? In Albany, not Brooklyn. You wish you hadn't had it. I'm about to have it again. What were your side effects?

(Should this --also?--be in a different topic? I'm still new here. Can we move it appropriately?)

Dr Arata, who helped me in 2015, refers me now to Dr Sclafani. Dr. S. had me fill out a detailed symptoms questionnaire before he said I'm a candidate. I'm about to fly to NYC (Brooklyn) from Northern California. Procedure date not yet confirmed as of today, October 16, 2017, however. (I do not have...

Viruses like EBV, various herpes esp. HHV-6, various Borrelia species not only burgdorferi ("Lyme")... My boyfriend of --gasp--40 years ago, has had MS for decades. I didn't know until after I was on disability over ten years ago, supposedly due to complications of treatment for Lyme Disease. You te...

You are lots more scientific than I. All I know is my doctor told me a lot about hyperbaric oxygen chambers helping regenerate mitochondrial DNA in the brain. He has me using a home chamber with room air only. I believe that's because this mild hbot is best for neurological conditions, at least mine.

Just a comment, not necessarily on point. The 3-day cancer prevention program at the old Livingston-wheeler Clinic in San Diego used BCG vaccines to up patients' immune power. I got, and felt better. I've been looking for where to get it again. One time when I researched it, there was something abou...