Search found 17 matches

by violin
Thu Aug 08, 2019 10:04 pm
Forum: Daily Life
Topic: Don't Like Typing? ... Type with your Voice - Fast and Easy & Free
Replies: 6
Views: 2190

Re: Don't Like Typing? Type with your Voice - Fast and Easy

Says to use the microphone. Where is it? I like to use my iPad.
by violin
Sat Jul 20, 2019 11:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to arrange to see Zamboni?
Replies: 2
Views: 150

How to arrange to see Zamboni?

How would I arrange to get ccsvi venoplasty from Dr Zamboni? --July 2019.
by violin
Sun Jun 30, 2019 10:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 34
Views: 6004

Re: Is Dr. Sclafani still around?

So wonderful that you have communicated on this forum again, Dr. Sclafani. Thank you. One thing I’ve wondered about: Fifty years ago I observed an angiogram up to the heart. Ten years ago I did not pass a heart stress test, and the cardiologist wanted me to have an angiogram. I asked our family doct...
by violin
Tue Jan 09, 2018 11:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: does anyone know the correct Billable codes for a venaplasty
Replies: 6
Views: 2432

Re: does anyone know the correct Billable codes for a venapl

Thank you for these diagnoses and codes.

Several of us are wondering similarly.

I think coding has changed (it's 7 years later, now), but this is something to start with.
by violin
Tue Jan 09, 2018 4:16 pm
Forum: Regimens
Topic: Low dose benadryl: An unknown treatment for MS
Replies: 6
Views: 6755

Re: Low dose benadryl: An unknown treatment for MS

"5 mg of benadryl every 4 to 6 hours"... A caplet is 25mg, per the Benedryl site. I get mine as a generic equivalent. I think it would be possible to use a pill cutter to cut it into roughly 4 parts, which would be close enough for me. I've been taking one caplet at bedtime for the past months, help...
by violin
Sat Jan 06, 2018 12:32 am
Forum: Undiagnosed
Topic: Lyme test
Replies: 5
Views: 1561

Re: Lyme test

Lyme testing results are merely indicators, not definitive. IGENEX lab is usually considered the best. There are lots of different types of Borrelia besides the Borrelia burgdorferi, which is "Lyme", and testing may well not test for other strains. I probably got Borrelia persica in the Middle East....
by violin
Thu Dec 28, 2017 3:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 34
Views: 6004

Re: Is Dr. Sclafani still around?

My local family practice MD saw me a few days before I was to leave for NYC. He noticed swelling in my left neck (where I ache nearly every morning) and jaw. He thought I might have a failed root canal. Said not to fly! So disappointed. I have been trying to accomplish this for 6 months or so. The e...
by violin
Thu Nov 02, 2017 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 34
Views: 6004

Re: Is Dr. Sclafani still around?

Thank you Cece. Interesting about bumpy vs. smooth. If Dr. makes a comment regarding this after my procedure, I'll post it. Dr. A. could not get his instruments up the jugulars due to bony blockages, so I've been doing Atlas Orthogony for a couple of years. The jugular valves were occluded and abnor...
by violin
Wed Oct 25, 2017 9:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: brain drain
Replies: 5
Views: 1444

Re: brain drain

Right, Dr. Sclafani has written that the venoplasty treatment of CCSVI should be evaluated and considered for neurologic disease in addition to MS.

If anyone learns more about brain drain, CCSVI, and Alzheimers, please post. I need to know.
by violin
Wed Oct 25, 2017 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Could it be that CCSVI just makes MS worse?
Replies: 6
Views: 1491

Re: Could it be that CCSVI just makes MS worse?

When I first read your post I got concerned, because I just now wrote Dr. Sclafani again about scheduling my 2nd ccsvi treatment. So what you mean by CCSVI is the condition of having jugular veins stenosis, not the CCSVI treatment, right? That brain lesions already exist due to oxidative stress, and...
by violin
Tue Oct 17, 2017 8:58 am
Forum: General Discussion
Topic: Over-the-counter antihistamine repairs myelin damage in MS..
Replies: 10
Views: 1444

Re: Over-the-counter antihistamine repairs myelin damage in

Yes, please reply regarding having CCSVI in Albany with Dr. S. Do you mean Dr. Sclafani? In Albany, not Brooklyn. You wish you hadn't had it. I'm about to have it again. What were your side effects?

(Should this --also?--be in a different topic? I'm still new here. Can we move it appropriately?)
by violin
Mon Oct 16, 2017 10:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Dr. Sclafani still around?
Replies: 34
Views: 6004

Re: Is Dr. Sclafani still around?

Dr Arata, who helped me in 2015, refers me now to Dr Sclafani. Dr. S. had me fill out a detailed symptoms questionnaire before he said I'm a candidate. I'm about to fly to NYC (Brooklyn) from Northern California. Procedure date not yet confirmed as of today, October 16, 2017, however. (I do not have...
by violin
Wed May 10, 2017 4:31 am
Forum: General Discussion
Topic: Ms incidence in non related partners
Replies: 22
Views: 1473

Re: Ms incidence in non related partners

Viruses like EBV, various herpes esp. HHV-6, various Borrelia species not only burgdorferi ("Lyme")... My boyfriend of --gasp--40 years ago, has had MS for decades. I didn't know until after I was on disability over ten years ago, supposedly due to complications of treatment for Lyme Disease. You te...
by violin
Tue May 09, 2017 9:38 pm
Forum: MS Etiology and Pathogenesis
Topic: Rab32 connects ER stress to mitochondrial defects in MS
Replies: 2
Views: 918

Re: Rab32 connects ER stress to mitochondrial defects in MS

You are lots more scientific than I. All I know is my doctor told me a lot about hyperbaric oxygen chambers helping regenerate mitochondrial DNA in the brain. He has me using a home chamber with room air only. I believe that's because this mild hbot is best for neurological conditions, at least mine.
by violin
Wed May 03, 2017 9:06 pm
Forum: Veterans and MS
Topic: BCG vaccine in the military medical exam?
Replies: 1
Views: 5588

Re: BCG vaccine in the military medical exam?

Just a comment, not necessarily on point. The 3-day cancer prevention program at the old Livingston-wheeler Clinic in San Diego used BCG vaccines to up patients' immune power. I got, and felt better. I've been looking for where to get it again. One time when I researched it, there was something abou...