Search found 4 matches

by lwhite1027
Fri Jul 29, 2016 4:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular stents gone terribly terribly wrong - advice please!
Replies: 9
Views: 2499

Re: Jugular stents gone terribly terribly wrong - advice ple

So I had my venogram this morning and it showed some interesting findings. While my stents are mangled and ugly, there was some flow and the pressures were on the normal side. But..... the bad news, he had me do some venous maneuvers with my head and when my head is turned to the left and facing dow...
by lwhite1027
Wed Jul 27, 2016 3:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular stents gone terribly terribly wrong - advice please!
Replies: 9
Views: 2499

Re: Jugular stents gone terribly terribly wrong - advice ple

I was on (unfortunately) - anti-platelet therapy instead of anti-coagulants, mistake #234. Once the clot was discovered (after I forced myself on the surgeon after repeated emails), I was put on a heparin drip and then they attempted to balloon the clot. But it's still there. This entire stenting ha...
by lwhite1027
Wed Jul 27, 2016 10:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular stents gone terribly terribly wrong - advice please!
Replies: 9
Views: 2499

Re: Jugular stents gone terribly terribly wrong - advice ple

The stents are huge and are almost the entire length of the jugular (I believe they are renal stents). The right stent is broken/fractured because it was compressed between my C1/styloid (which my jugular was pre-stent). I have vascular Eagles Syndrome (styloid compression syndrome) so my jugulars w...
by lwhite1027
Mon Jul 25, 2016 6:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugular stents gone terribly terribly wrong - advice please!
Replies: 9
Views: 2499

Jugular stents gone terribly terribly wrong - advice please!

This is my first postthank you for letting me join your group. I do not have MS so I hope you do not mind me posting here. However the past six months I have had stents inserted into my left and right jugulars. I have had nothing but serious complications, including a deep vein thrombosis in my left...

Go to advanced search