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OK....time and patience it is.

It seems to be a blury line? MS or acute demylination of the brainstem with persisitent symptoms?? Tricky....

Thanks for all your feedback.
Laurence

No she is not on any medications. This is what I'm a little concerned about as my reading says disease modifying treatments if taken early can delay the onset of MS symptoms in the long run. It wont stop the symptoms from happening but will delay.... I raised this with the neurologist and he believe...

thanks I'll check NMDA antibody testing out. This has not come up in any discussion with neurologist yet.

Rgds,
laurence

sorry - yes they did test for the MGO antibodies and nothing...

Thanks everyone for posting....I'll try and answer all in the one hit. Yes, my daughter is seeing a neurologist. She has been having MRI'S at first 3 monthly. She hasn't had one since mid April. At that time, 2 lesions had disappeared and 1 was shrinking. Since that time her hand tremor and fatigue ...

HI there, im new to this forum. 12 months ago my 16 yr old daughter was admitted to RCH in Melb Australia and after a torrid 3 weeks in ICU - she was diagnosed with acute demylination of the brainstem - a clinically isolated syndrome. Her MRI showed 3 large lesions in the brainstem. She experienced ...