Search found 7 matches

by jaredboy
Fri May 12, 2017 5:13 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 7040

Re: Ocrevus questions

Thank you very much, there's a lot of good info in there. As mentioned I am leaning towards Ocrevus at the advice of my Neuro (versus Lemtrada, she gave me a choice and said do some research) However I am still going to speak to someone my mother met at the market who is on Ocrevus now. I don't know...
by jaredboy
Fri May 12, 2017 2:52 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrevus questions
Replies: 17
Views: 7040

Re: Ocrevus questions

I'm going to bump this thread instead of starting my own as I have the same question. I was given the choice of Ocrevus or Lemtrada. Both have risky side effects it seems, can anyone out there share their experience thus far taking either one of these? My mom ran into a lady at the market recently w...
by jaredboy
Fri Dec 09, 2016 3:09 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fatigue?
Replies: 27
Views: 12933

Re: Fatigue?

Hey I just wanted to report back. So I stopped taking Tecfidera to test it out, initially I felt great... and then a few hours later bam the dizziness/weakness hit. I tried a 2nd day, but was dizzy the entire day. I went and saw the Dr. yesterday and she recommends I stay off it for 2 more days whil...
by jaredboy
Wed Dec 07, 2016 2:45 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fatigue?
Replies: 27
Views: 12933

Re: Fatigue?

ok thanks for that information, that is helpful. You are probably right that its the same test. The thing is, If I were at 17 or whichever low number below the standard of 40 you mentioned below, why wasn't I feeling lightheaded and fatigued for many months prior? This all started around the time I ...
by jaredboy
Tue Dec 06, 2016 4:50 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: First Month on Tecfidera Going Suspiciously Well...
Replies: 13
Views: 3922

Re: First Month on Tecfidera Going Suspiciously Well...

I just wanted to comment on the OP's first post and the topic of PML/JCV/bloodtests: My first neuro did all the right things in diagnosing me and checking CBCs and put me on Tecfidera even though I am JCV+ I took Tecfidera for about 2 mos and did not have any side effects except for flushing occasio...
by jaredboy
Tue Dec 06, 2016 4:24 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fatigue?
Replies: 27
Views: 12933

Re: Fatigue?

Hi thanks! I do not believe I have had that specific test, but as part of seeing a new neuro who specializes in MS, she has ordered a pleothora of tests and bloodwork. My vitamin D from blood tests is low, (I dont remember the actual number I want to say 17?) and she wants it at 70. Again i dont kno...
by jaredboy
Mon Dec 05, 2016 10:11 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fatigue?
Replies: 27
Views: 12933

Re: Fatigue?

Sorry to necro an old thread from 3 years ago but it deals with my current question. I am dealing with extreme fatigue and would love some feedback: I started tecfidera 11/7/16. The next day I felt tired, but lasted through the day at work. The 2nd day was so bad (feeling dizzy, lightheaded or so I ...