Search found 3356 matches

by CureOrBust
Tue Jun 18, 2019 11:58 pm
Forum: Exercise and Physical Therapy
Topic: Revitive TENS
Replies: 3
Views: 226

Re: Revitive TENS

Let me start by saying I am not a physical therapist. Plain directed physical exercise may be a simple alternative you can try at home right now. For example, I noticed I found it difficult to stand from a squatted position, so I started doing deep knee bends every day, and now its easier. I often t...
by CureOrBust
Tue Jun 18, 2019 11:53 pm
Forum: General Discussion
Topic: Vibration
Replies: 3
Views: 275

Re: Vibration

Study results like the above are very questionable. They did not compare it to an alternative core strength exercise such as planking. Testing against nothing? really?
by CureOrBust
Mon Apr 15, 2019 2:03 am
Forum: General Discussion
Topic: tACS Brain Stimulation Boosts Working Memory
Replies: 3
Views: 235

Re: tACS Brain Stimulation Boosts Working Memory

Yes, one should never read anything into a scientific journal beyond what is actually stated. However, the article referenced above, as written, implied that they saw no end (ie all while they measured, for 50min). On the other hand, the article I read said there was a definite measurable end. A big...
by CureOrBust
Thu Apr 11, 2019 10:49 pm
Forum: General Discussion
Topic: tACS Brain Stimulation Boosts Working Memory
Replies: 3
Views: 235

Re: tACS Brain Stimulation Boosts Working Memory

And their working memory remained sharp for as long as the researchers continued testing it, for 50 minutes.
I remember (without stimulation) reading a similar article on the event, and I was certain that in the source I had read, the effects were transitory.
by CureOrBust
Mon Apr 01, 2019 3:54 am
Forum: Suggestions
Topic: EBV forum?
Replies: 1
Views: 310

EBV forum?

Considering how persistent the link has been between EBV and MS, it recently occurred to me that the site does not have a specific forum on the topic. I am not suggesting I would be posting heavily in an EBV forum, but I know I have over the years read a number of articles and posts regarding it, in...
by CureOrBust
Thu Mar 28, 2019 4:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Role of cerebral hypoperfusion in MS
Replies: 5
Views: 399

Re: Role of cerebral hypoperfusion in MS

Although the drug they tested sounds like a risky option in itself, what I do see (in the half full cup) is an opportunity to better understand the disease, and what may improve matters, by the way the drug causes its effects.
by CureOrBust
Mon Mar 18, 2019 12:16 am
Forum: Gilenya
Topic: FDA Warning on Stopping Gilenya
Replies: 5
Views: 729

Re: FDA Warning on Stopping Gilenya

NHE wrote:
Sun Mar 17, 2019 12:12 am
What trial are you joining?
I have joined, and already received my first dose for: https://clinicaltrials.gov/ct2/show/NCT03283826

NB: the nine month washout for Gilenya has been removed, but was part of the original exclusion criteria when I first applied.
by CureOrBust
Sat Mar 16, 2019 3:05 pm
Forum: General Discussion
Topic: Antiretroviral Drugs
Replies: 4
Views: 367

Re: Antiretroviral Drugs

I have found something similar. Depleting EBV with artificial T-cells also works, even in progressive stage. Epstein-Barr virus–specific T cell therapy for progressive multiple sclerosis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6302936/ see: https://www.thisisms.com/forum/viewtopic.php?f=13&t=3...
by CureOrBust
Sat Mar 16, 2019 2:54 pm
Forum: Gilenya
Topic: FDA Warning on Stopping Gilenya
Replies: 5
Views: 729

Re: FDA Warning on Stopping Gilenya

I am not suggesting or recommending anyone to do what I did, as it was simply based on my own thoughts based no scientific basis. So, I wanted to participate in a new trial, but it had a 9 month washout period for Gilenya. So, the sooner I stopped taking it, the sooner I could start the trial. I kne...
by CureOrBust
Tue Mar 12, 2019 12:43 am
Forum: Humor
Topic: Soylent
Replies: 4
Views: 1775

Re: Soylent

I saw a documentary about this a few years back. there were rats running around.
by CureOrBust
Fri Nov 23, 2018 3:16 am
Forum: Humor
Topic: Bohemian Rhapsody by The Muppets
Replies: 1
Views: 779

Re: Bohemian Rhapsody by The Muppets

the following has been a long time favorite of mine
by CureOrBust
Fri Nov 23, 2018 2:10 am
Forum: Drug Pipeline
Topic: MSRV Retrovirus, phase 2
Replies: 55
Views: 20023

Re: MSRV Retrovirus, phase 2

Fred1208 wrote:It seems.

A revolution.

Phase2b results :

http://www.geneuro.com/data/news/geneur ... -ms-en.pdf
But I dont see any results regarding actual EDSS changes? or did I skim read too fast...
by CureOrBust
Fri Nov 23, 2018 2:07 am
Forum: Drug Pipeline
Topic: Progressive MS Pipeline
Replies: 38
Views: 44722

Re: Progressive MS Pipeline

Hi, The next treatment for SPMS (and also PPMS I guess) will probably be this one: https://multiplesclerosisnewstoday.com/2018/10/10/fda-ema-accept-to-review-siponimod-as-treatment-for-spms/ Expected in US in March 2019 Later (so I guess end of the year) in Europe This trial http://www.thisisms.com...
by CureOrBust
Fri Oct 26, 2018 7:35 pm
Forum: General Discussion
Topic: Biotin, good news (in french)
Replies: 18
Views: 1655

Re: Biotin, good news (in french)

"5 to 10 mg per day caused significant hair loss" ... Dr. Google says: “Biotin deficiency is rare and low levels may result in brittle nails and hair loss, however, hair loss and brittle nails may have multiple causes and taking biotin supplements may actually halt this process and even help to rev...
by CureOrBust
Wed Jul 25, 2018 4:30 am
Forum: MS Etiology and Pathogenesis
Topic: Dysregulated EBV infection in MS. Old but relevant.
Replies: 2
Views: 712

Re: Dysregulated EBV infection in MS. Old but relevant.

They know since 2007 that EBV is to blame. What are they waiting for to try antiviral therapies?? .... we interpret these findings as evidence that EBV persistence and reactivation in the CNS play an important role in MS immunopathology. One groups evidence does not constitute proof. And others hav...