Search found 328 matches

by Zyklon
Fri Jun 21, 2019 2:39 pm
Forum: Introductions
Topic: Hello
Replies: 285
Views: 25170

Re: Hello

Small update: Close to becoming a Q-Grader (arabica coffee grader/expert/gourmet, 5000 in the world, not sure about any with MS) For 1 week, I was able to wake up and sleep just like a normal person. So I guess it is all psychologic. Almost the same regimen. Really intense training, lots of effort. ...
by Zyklon
Tue May 21, 2019 8:00 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Re: Accidental MS Treatment Discovery

You can't label anything a discovery with your observations. You need proof. It is not scientific.

Massage can be beneficial. It may have the potential. I am just against labeling your experience as a treatment discovery. It can work for you but we don't know if it will destroy someone else.
by Zyklon
Tue May 21, 2019 5:16 am
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Re: Accidental MS Treatment Discovery

I can find an idiot who claims feeling better with drinking lead...

Please science, sources, data...
by Zyklon
Mon May 20, 2019 1:11 pm
Forum: General Discussion
Topic: Accidental MS Treatment Discovery
Replies: 9
Views: 275

Re: Accidental MS Treatment Discovery

This is far away from a discovery...
by Zyklon
Tue May 14, 2019 2:16 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1500

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Be careful with your blood sugar. 7 days x 1 gram cortisol messed up my levels.

Magnesium and D3 are extremely important during recovery.
by Zyklon
Sun May 12, 2019 2:24 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1500

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Trust your body, it can do ALOT of repairs. You just need to boost it.
by Zyklon
Sun May 12, 2019 6:28 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1500

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

DMD is kinda a trial and error thing. Your first goal must be going into remission. If CRAB (interferons) does the job, consider yourself lucky. I prefer needles over PML risk.

We share a very similar story and I think it may help you. Take care and everything will be fine (Imamoglu wins...)
by Zyklon
Thu May 09, 2019 1:25 am
Forum: Introductions
Topic: Hello
Replies: 285
Views: 25170

Re: Hello

I am much better now. Still a little bit emotional, no signs of panic attacks but my sleep cycle is messed up. I plan to stay on 10 mg for a month and halve again.

These coffee exams will unveil if I have any taste/smell/sensory loss.
by Zyklon
Sat May 04, 2019 1:48 pm
Forum: Introductions
Topic: Hello
Replies: 285
Views: 25170

Re: Hello

I decreased my anti-depressant citoplaram to half the dose 3 days ago. Way too many effects. Anxiety, stress, emotions, all have increased. I know this will take some time and I want to discontinue citoplaram.

I am about to be a Q-Grader (Coffee tasting expert) in June. Yea MS and coffee. Why not? ;)
by Zyklon
Sat Apr 27, 2019 5:08 pm
Forum: Natural Approach
Topic: Step 1: Assess/Correct Your Essential Nutrient Imbalances
Replies: 4
Views: 194

Re: Step 1: Assess/Correct Your Essential Nutrient Imbalances

Yea good one, thanks J.

I have 3 additional things:

1) Normal is not normal for MSers
2) Regular blood testing is important if you take supplements
3) It is a discovery process about dosage efficiency
by Zyklon
Sat Apr 27, 2019 5:03 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1500

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, I have a very similar story. Please read my hello thread. It will be better for you to take care of your body as if you have MS. Taking D3 with magnesium, staying away from stress, eating healthy, make your mind and body happy. With some self-care and luck, MS is a manageable disease. Kinda like...
by Zyklon
Sat Apr 27, 2019 4:27 pm
Forum: Mayzent (Siponimod)
Topic: Siponimod reduces risk of disability progression by 21%
Replies: 2
Views: 709

Re: Siponimod reduces risk of disability progression by 21%

I agree with NHE. Not much improvement and lots of possible side effects.
by Zyklon
Wed Apr 17, 2019 6:22 am
Forum: Introductions
Topic: Hello
Replies: 285
Views: 25170

Re: Hello

2 years and 2 months after diagnosis. I am still NEDA after MRI. Happily living with MS. Big thanks to J and all friends here :YMHUG:
by Zyklon
Sun Apr 14, 2019 7:13 am
Forum: Introductions
Topic: Hello
Replies: 285
Views: 25170

Re: Hello

Zinc is very low, 78. I am going to double zinc and copper. 15 days later I will test again.
by Zyklon
Mon Apr 08, 2019 5:05 am
Forum: Introductions
Topic: Hello
Replies: 285
Views: 25170

Re: Hello

Hi all, Today I have visited my neuro. Right feet Babinski Sign positive, some days I feel weird about leg-arm movement coordination. She says I am EDSS 0.5/1. Injection sites are OK. So I am clinically very good despite my very heavy first attack of EDSS 5.5/6. She wants to see my MRI results 10 da...