Ocrevus year one update. A stable MRI and one of my spinal lesions regressed. I still take lots of vitamins/minerals. Everything is good but high cholesterol. Some more exercise and it will be OK.
Take care all.
Search found 401 matches
- Thu Oct 31, 2024 6:26 am
- Forum: Introductions
- Topic: Hello
- Replies: 350
- Views: 177727
- Sat Feb 10, 2024 5:57 am
- Forum: General Discussion
- Topic: The NERVGEN-291 miracle!
- Replies: 32
- Views: 45182
Re: The NERVGEN-291 miracle!
Very promising.
Re: Sugar 101
An old adage says:
Stay away from the 3 whites. Sugar, salt and refined flour. True evils...
Stay away from the 3 whites. Sugar, salt and refined flour. True evils...
- Fri Nov 17, 2023 12:27 am
- Forum: Introductions
- Topic: Hello
- Replies: 350
- Views: 177727
Re: Hello
I'm done with injections. Five years of Rebif is enough 
Lipoic acid seems promising. I just want to see some phase 3 studies.

Lipoic acid seems promising. I just want to see some phase 3 studies.
- Thu Nov 16, 2023 10:33 am
- Forum: Introductions
- Topic: Hello
- Replies: 350
- Views: 177727
Re: Hello
Thank you NHE.
- Thu Nov 16, 2023 8:55 am
- Forum: Introductions
- Topic: Hello
- Replies: 350
- Views: 177727
Re: Hello
I got my first Ocrevus infusion today. It was reaction-free. I feel a little bit dizzy after 5 hours. The second half-dose is 15 days later. I want my NEDA back. Let's play the game again 

- Sat Oct 21, 2023 3:35 am
- Forum: Introductions
- Topic: Hello
- Replies: 350
- Views: 177727
Re: Hello
I have a new silent C6 spine lesion one millimeter in diameter. Since it is a spinal lesion, I will not risk anything and change my DMT to a stronger one. Mavenclad or Ocrevus if my doctors give the green light. Another NEDA journey will start soon :) Don't forget your MRI and other checks. As you s...
- Tue Sep 19, 2023 3:19 am
- Forum: General Discussion
- Topic: At a cross roads and need advice/opinions.
- Replies: 5
- Views: 5899
Re: At a cross roads and need advice/opinions.
Scott1 is extremely correct. Take action with evidence from your MRI comparisons. If I were you, I would get a new MRI and ask my doctor for a comparison with the years-old MRI. Lesions are one side of the story. At your age damage mechanism of MS greatly moves toward brain atrophy rather than new l...
- Sun Sep 17, 2023 2:11 pm
- Forum: General Discussion
- Topic: At a cross roads and need advice/opinions.
- Replies: 5
- Views: 5899
Re: At a cross roads and need advice/opinions.
Hello, Northern doc is right. You will experience fewer relapses. However, brain atrophy will increase. It must be your primary concern. As I know dimethyl fumarate is not very effective against brain atrophy. Ask your docs for your brain atrophy status. Maybe they change your medicine. Ask them if ...
- Tue May 16, 2023 1:09 am
- Forum: General Discussion
- Topic: New MRI with 15μm Resolution
- Replies: 2
- Views: 1363
Re: New MRI with 15μm Resolution
Impressive
- Thu May 04, 2023 1:12 am
- Forum: Undiagnosed
- Topic: Symptoms at 18 years old
- Replies: 4
- Views: 10366
Re: Symptoms at 18 years old
Even though I am diagnosed with MS, Dr. Google can still trick me and make me feel terrible. Trust real doctors.
- Thu May 04, 2023 1:09 am
- Forum: Introductions
- Topic: Hello
- Replies: 350
- Views: 177727
Re: Hello
Well well well. I am very much surprised. From my last message: The last 30 days were a rollercoaster for me. Ups and downs. Fatigue (Liver ALT increase maybe?), vision issues, dizziness, ataxia, and diarrhea. Nothing lasts more than 2 days, mostly some hours. I plan to get an MRI to see if I have a...
- Sun Apr 16, 2023 3:50 am
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Any more positive from Tecfidera
- Replies: 8
- Views: 16899
Re: Any more positive from Tecfidera
Does your neurologist think there are better options but not available in Taiwan? If so, any chance that you can get your medicine from somewhere else?
Did you try Vitamin B12 and other Bs lately? Any tests?
Did you try Vitamin B12 and other Bs lately? Any tests?
- Sat Apr 15, 2023 6:49 am
- Forum: Aubagio (Teriflunomide)
- Topic: Aubagio and Hair Loss side effect
- Replies: 46
- Views: 114714
Re: Aubagio and Hair Loss side effect
Time to share my experience after 2 months.
My body hair is weaker and falls much more. Surprisingly my hair is all OK for now. I take 15 mg of zinc picolinate and 5000 mcg of biotin every day.
Not any side effects after the first 10 days. Diarrhea, fatigue, maybe some neuropathy.
My body hair is weaker and falls much more. Surprisingly my hair is all OK for now. I take 15 mg of zinc picolinate and 5000 mcg of biotin every day.
Not any side effects after the first 10 days. Diarrhea, fatigue, maybe some neuropathy.
- Sat Apr 15, 2023 6:42 am
- Forum: Natural Approach
- Topic: Gummie supplements
- Replies: 6
- Views: 11780
Re: Gummie supplements
14 grams of pure inflammation in a cute bear form...