Search found 116 matches

by LisaH
Fri May 11, 2018 8:47 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

I finally got a reply to my last message to the neurologist. First, let me say that on my first visit to this guy, he pointed to the parietal lesion on my MRI that was loaded on his computer. He told me that it enhances, could be scarring or possibly bleeding, and that it could be causing my gait sy...
by LisaH
Tue May 08, 2018 8:43 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

The notes from my first visit with this neurologist included this: " There may not be a big "Ah Ha!" answer right now, and something may be a lot clearer down the road ". He said to me at the appointment that one of three things will happen. One, I'll either get better and there'll be nothing to fig...
by LisaH
Tue May 08, 2018 11:42 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

At this point, I wouldn't ask any of these doctors for a referral. I'd be better off having my GP refer me. This latest neurologist replied to my email but chose to completely ignore the part about my low lymphocytes on two CBC blood tests. He said this about my sed rate: " Disease processes that go...
by LisaH
Tue May 08, 2018 5:47 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

No reply (yet?) from the latest neurologist. The patient portal shows when a message has been read and he normally replies right away. He read my message early yesterday morning. I'd like to pretend that he took the lymphopenia and elevated ESR seriously enough that he's looking into possible causes...
by LisaH
Mon May 07, 2018 6:57 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

Three of the "specialists" that I am seeing are in different cities but part of the same huge world-renowned hospital. All three seem dismissive about symptoms as well as test results so I don't hold out much hope at this point that they'll solve my medical mystery. My B12 result is obviously on the...
by LisaH
Fri May 04, 2018 10:22 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

The lab's reference range given for B12 was 200-900 so the neurologist thinks my 345 is not the cause of my symptoms.
by LisaH
Fri May 04, 2018 6:16 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

My latest B12 was 345 which this neurologist considered fine and not the cause of my symptoms. He didn't check the others you mentioned.
by LisaH
Thu May 03, 2018 9:35 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

Well... after asking the neurologist (twice) to call the lab to see what's taking so long, he replied with this: "The paper copy of your paraneoplastic panel was faxed to me: normal". That seems odd to me considering all of my other test results (even send outs) have come back to the patient portal ...
by LisaH
Thu May 03, 2018 6:10 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

I've wondered that myself, NHE. :lol: I had a follow-up visit yesterday with the neurologist. The nurse I spoke to on the phone told me that my paraneoplastic panel results were normal but he was concerned about the "spell" I had on Monday. After my check-in with a nurse, the doctor came in and said...
by LisaH
Tue May 01, 2018 10:29 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

It has now been 43 days and still no results for the paraneoplastic panel. I had a follow-up visit with my regular neurologist today and had new symptoms to report. First... I had a terrifying incident day before yesterday. I woke up with a strong urge to urinate and proceeded to get out of bed. I h...
by LisaH
Sat Apr 28, 2018 9:14 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

It has now been 40 days since my blood was drawn and still no result for the paraneoplastic panel. My last update from the neurologist was on the 17th and he said "Still says it's in process. Will let you know". According to what I've read, this type of blood panel shouldn't take nearly this long. I...
by LisaH
Wed Apr 11, 2018 9:18 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

I'm still waiting for the results of the paraneoplastic panel and it has been 24 days! I've spoken to the neurology department several times about this test and have been told that it's still "active and processing". This blood panel looks for cancer antibodies, so I've been on edge waiting for the ...
by LisaH
Sat Mar 31, 2018 8:43 pm
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

Sorry to hear about your frustration but at least I'm not alone! :wink:
by LisaH
Fri Mar 30, 2018 7:47 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

I spoke to Heather in neurology again a few minutes ago. Not only is the neurologist not in today... he's on vacation all next week . That explains a lot. If my VGKC result (which she still says is back and has been reviewed) was negative, he could've told me that much before heading out the door. ~X(
by LisaH
Thu Mar 29, 2018 7:10 am
Forum: Undiagnosed
Topic: Help understanding my latest blood tests
Replies: 40
Views: 4962

Re: Help understanding my latest blood tests

It's definitely frustrating! As for which message is bs... my husband and son both think the neurologist is stalling. They (and I) think he told me the test results aren't back yet because he's trying to figure out what the results mean. He probably knows I'd ask if I tested positive for any antibod...