Search found 6 matches

by Moon11
Sun Dec 03, 2017 12:39 am
Forum: Undiagnosed
Topic: 30 years of this crap
Replies: 14
Views: 5328

Re: 30 years of this crap

So far I only have the radiologist’s report on the MRI of my neck. Cysts were found, the biggest one 5mm. They are Tarlov cysts, and they am infrequently cause trouble. They could be crowding stuff in my neck but they weren’t listed in the summary; I think they are just an incidental finding. I had ...
by Moon11
Mon Nov 27, 2017 6:44 pm
Forum: Undiagnosed
Topic: 30 years of this crap
Replies: 14
Views: 5328

Re: 30 years of this crap

Neurologist has ordered MRIs of my brain and brain stem and cervical spine, plus non-standard blood tests for IgM antibodies and other such abnormalities. I ‘passed’ some of the neurological tests, but ‘flunked’ the balance tests like tandem gait and Romberg’s, etc. Will update if I learn anything. ...
by Moon11
Sat Nov 25, 2017 12:46 pm
Forum: Undiagnosed
Topic: 30 years of this crap
Replies: 14
Views: 5328

Re: 30 years of this crap

I know, (there’s no “kind of MS”) but that’s what the UCLA neurologist said, so you can see why I’m frustrated. It was a blow off; a patronizing dismissal of my symptoms. I think he thought that I wanted to hear MS, but in fact I wanted him to actually figure out what it is.
by Moon11
Fri Nov 24, 2017 11:26 am
Forum: Undiagnosed
Topic: 30 years of this crap
Replies: 14
Views: 5328

Re: 30 years of this crap

Yes, I had a blood panel done, fasting, plus one at ER, and multiple ones over the years. I take vitamin D, since this is Wyoming and we have a long indoor season, and my B12 is good and usually on the high end of normal range, despite being vegetarian for over 45 years. Several years back one docto...
by Moon11
Thu Nov 23, 2017 10:11 am
Forum: Undiagnosed
Topic: 30 years of this crap
Replies: 14
Views: 5328

Re: 30 years of this crap

I’m aware, and also that some are microlesions, and doctors need to really look to find them. My issue is that once their quick glance demonstrates that I don’t have (a clinically diagnosable) MS, they quit looking for another reason for decades of a relapsing-remitting neurological disease. If not ...
by Moon11
Wed Nov 22, 2017 7:02 pm
Forum: Undiagnosed
Topic: 30 years of this crap
Replies: 14
Views: 5328

30 years of this crap

Hi, I’m new to this forum, but not to the group of undiagnosed and frustrated people. I’ll run this past you, as briefly as I can. Background: I’m a 56 year old female who was born and raised in New Jersey. I was married 25 years, raised two great kids, got divorced, and now live with a wonderful ma...

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