Search found 6 matches
- Sun Dec 03, 2017 12:39 am
- Forum: Undiagnosed
- Topic: 30 years of this crap
- Replies: 14
- Views: 5328
Re: 30 years of this crap
So far I only have the radiologist’s report on the MRI of my neck. Cysts were found, the biggest one 5mm. They are Tarlov cysts, and they am infrequently cause trouble. They could be crowding stuff in my neck but they weren’t listed in the summary; I think they are just an incidental finding. I had ...
- Mon Nov 27, 2017 6:44 pm
- Forum: Undiagnosed
- Topic: 30 years of this crap
- Replies: 14
- Views: 5328
Re: 30 years of this crap
Neurologist has ordered MRIs of my brain and brain stem and cervical spine, plus non-standard blood tests for IgM antibodies and other such abnormalities. I ‘passed’ some of the neurological tests, but ‘flunked’ the balance tests like tandem gait and Romberg’s, etc. Will update if I learn anything. ...
- Sat Nov 25, 2017 12:46 pm
- Forum: Undiagnosed
- Topic: 30 years of this crap
- Replies: 14
- Views: 5328
Re: 30 years of this crap
I know, (there’s no “kind of MS”) but that’s what the UCLA neurologist said, so you can see why I’m frustrated. It was a blow off; a patronizing dismissal of my symptoms. I think he thought that I wanted to hear MS, but in fact I wanted him to actually figure out what it is.
- Fri Nov 24, 2017 11:26 am
- Forum: Undiagnosed
- Topic: 30 years of this crap
- Replies: 14
- Views: 5328
Re: 30 years of this crap
Yes, I had a blood panel done, fasting, plus one at ER, and multiple ones over the years. I take vitamin D, since this is Wyoming and we have a long indoor season, and my B12 is good and usually on the high end of normal range, despite being vegetarian for over 45 years. Several years back one docto...
- Thu Nov 23, 2017 10:11 am
- Forum: Undiagnosed
- Topic: 30 years of this crap
- Replies: 14
- Views: 5328
Re: 30 years of this crap
I’m aware, and also that some are microlesions, and doctors need to really look to find them. My issue is that once their quick glance demonstrates that I don’t have (a clinically diagnosable) MS, they quit looking for another reason for decades of a relapsing-remitting neurological disease. If not ...
- Wed Nov 22, 2017 7:02 pm
- Forum: Undiagnosed
- Topic: 30 years of this crap
- Replies: 14
- Views: 5328
30 years of this crap
Hi, I’m new to this forum, but not to the group of undiagnosed and frustrated people. I’ll run this past you, as briefly as I can. Background: I’m a 56 year old female who was born and raised in New Jersey. I was married 25 years, raised two great kids, got divorced, and now live with a wonderful ma...