Search found 36 matches

by texaslove
Sun Jun 02, 2019 12:46 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

6 month check up with neuro last month. I saw the PA, not the main doctor and she has been the 1st mainstream doctor to even acknowledge I may have lyme. Scheduled for another MRI within the next 6 months. Still undiagnosed and holding steady I guess- joint pain in hands and feet is pretty painful; ...
by texaslove
Mon Feb 04, 2019 11:17 am
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

Just posting an update. Morning stiffness in my hands is horrible right now, so I left a message for the second neuro- that, plus tingling up and down spine, and maybe an increased l'hermitte's has really got me scared right now. I start my extra supplements at the end of this week - everything the ...
by texaslove
Sat Jan 26, 2019 12:37 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

I will take another look at reservatrol! Thank you!

As for things to help with the l'hermitte's- I've so far tried yoga, and have a massage booked in a few weekends. I'm not opposed to accupuncture or reiki or thai yoga.
by texaslove
Sat Jan 26, 2019 11:18 am
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

Japanese knotweed contains reservatrol...when I went to the autoimmune class in November...it was advised that MS patients do not take reservatorol (?) I just checked the handout again to make sure I read that right. I went to the chiropractor this past week, and I feel really good for a few hours a...
by texaslove
Fri Jan 25, 2019 4:04 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

i will read that article- thank you Elliot! My LLMD wants me to do Banderol and Samento protocol. I haven't ordered it just yet, but am planning on next week.
by texaslove
Fri Jan 25, 2019 6:22 am
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

Jimmylegs and NHE and everyone...I have been spending hours each day reading books and articles, seeing doctors.nutrionists/health specialists on avereg every 3 weeks or so since I began having trouble five (yes, 5!) months ago (it doensn't seem that long...and seems scary that I am still having iss...
by texaslove
Thu Jan 17, 2019 12:45 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

Hi jimmylegs, thank you so much for responding back to me and I'll tell you my daily regimen! (i wasn't implying that I was going away- so sorry if my post read like that!) morning: cortef 5mg omega 3 4000 mg turmeric 1000mg B12 4000mg vitamin c 1000 mg probiotics (saccromyces boulardi and vsl#30 no...
by texaslove
Thu Jan 17, 2019 10:48 am
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

NHE and jimmylegs- thank you for both responding! It helps me feel less alone. My followup neuro appt is in May, and I fear that I won't know anything else until they order another set of MRIs. Was this an isolated incident with the MS? Will I have more lesions? Will the two small ones I have still ...
by texaslove
Wed Jan 16, 2019 7:04 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

hmm...went to look at September labs and my B6 plasma was 17 ug/L. (weird)

i was also positive igg for mycoplasma pneumonia - but doc said not to worry, a lot of people are
by texaslove
Wed Jan 16, 2019 5:20 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

I received my most recent labs (done right around Christmas) and met with the LLMD today. of note: My vitamin B6 was very high- 58.6 ug/L. vitamin B12 was 927 pg?ml folate more than 20 ng/mL vitamin D, 25 hydroxy was 36.9 ng.mL Chlamydia pn was negative EBV showed antibodies to past infections (it w...
by texaslove
Mon Jan 14, 2019 1:37 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

It's me again! I am meeting with the Lyme doctor this week to review the labs done right before Christmas. In the meantime, the LLMD's office called me and told me that I was being called in (to my local pharmacy) 5 mg of Cortef to take b/c my morning salvary cortisol is very low -I am to start that...
by texaslove
Sun Dec 23, 2018 3:11 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

no zinc or copper testing from April :(
by texaslove
Sun Dec 23, 2018 7:27 am
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

I checked the paperwork (I had the lab make me a copy this time) and serum manganese is not listed...under the nutrition section the only ones checked off are: Vitamin B6 Plasma, Vitamin B12 and Folate, and Vitamin D 25-Hydroxy. I did have magnesium tested in April of this year and it was 2.0 mg/dL....
by texaslove
Sat Dec 22, 2018 10:44 am
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

Well, it's holiday season and I am still kind of in limbo. I had a ton of bloodwork done this morning, will be re-doing the lyme test and also testing for co-infections. I my naturopathic doctor last week just to review everything than has been going on (my former PCP, the one my insurance kicked of...
by texaslove
Sun Dec 02, 2018 1:28 pm
Forum: Undiagnosed
Topic: MS or Lyme
Replies: 83
Views: 4116

Re: MS or Lyme

thank you jimmylegs and Elliot B. :)

On another note - have you heard of NeuroRepair at a health institute in New Mexico?