Search found 16 matches

by AmbiCat
Sat May 18, 2019 6:03 am
Forum: General Discussion
Topic: Optic Neuritis & Corrective Lenses
Replies: 1
Views: 85

Optic Neuritis & Corrective Lenses

So, I've had nearsightedness since I was little. It's pretty significant, but since my first attack that started last month, I developed optic neuritis. The steroids didn't completely eradicate it, though I can see much better in that eye now. My question is this: can you still get corrective lenses...
by AmbiCat
Wed May 15, 2019 4:58 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

In terms of actually exercising, when would you say it's safe to try doing something like bike riding again? Is it too dangerous to attempt with any tremor at all, or might it actually help overall by stimulating a lot of the leg muscles? Do you have access to a stationary exercise bike? If so, it ...
by AmbiCat
Tue May 14, 2019 1:59 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

First day back at work, and thankfully my last day of Dexmethasone. Being on steroids for almost 3 weeks has taken its toll, and I'm hoping that the extreme fatigue dissipates by next week like it did with the SoluMedrol after that one made me so sick. Neuro did warn me before starting this third ro...
by AmbiCat
Sun May 12, 2019 1:34 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

The tremor you mentioned is sometimes called clonus. If you imagine your nerves consist of an upper motor neuron and a lower motor neuron, then the upper is like an on/off switch whilst the lower always aims to contract a muscle. If the upper switch is damaged then the lower nerve just keeps trying...
by AmbiCat
Sat May 11, 2019 2:32 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

There is a lot of misleading information on the WWW. Just because you read it on the web, does not mean it is true. It can often be difficult to get the right answers. I will give you one example. You made the comment "it isn't actually effective for 8-9 months" regarding Copaxone. Not sure where y...
by AmbiCat
Sat May 11, 2019 1:37 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Current DMDs typically do not prevent long term progression and are not advertised to do so. I have been taking Copaxone for almost 6 years and when presented info about it originally by my neurologist, one of the first things I noticed was that progression of MS was clearly shown not to be altered...
by AmbiCat
Sat May 11, 2019 12:11 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

In order to help you make an informed decision, you may wish to read through the prescribing information for these two DMDs. When I was diagnosed, I went through each of the prescribing information documents for the 3 drugs that were available at the time and looked up every word I didn't know in a...
by AmbiCat
Wed May 08, 2019 1:43 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Update: Had my brain MRI this afternoon, and the neurologist called tonight to let me know that there were a lot of lesions on it. Some were brand new and lit up, but he didn't know how old the non-lit ones were, just that they're newer than 4 years, since my brain MRI in 2015 was clean. He can't de...
by AmbiCat
Thu May 02, 2019 3:34 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Yeah I've taken Prednisone oral before and had no issue (for asthma) even with my GERD. The Dexmethasone was a little more rough on my stomach over the weekend, but the IV Prednisone did make me queasy yesterday, and really drowsy. As for ruled out conditions, they've tested everything at this point...
by AmbiCat
Wed May 01, 2019 6:34 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Well, the symptoms weren't gone with the oral steroids, so I started 1g IV prednisone today. Is it normal for symptoms to become seriously exacerbated after a high dose of that, for at least the first day? They hadn't made any improvement since Sunday (last dose of oral was yesterday, Tuesday), but ...
by AmbiCat
Mon Apr 29, 2019 9:47 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

I was symptom free for 8 years after my first attack and my second attack led to my diagnosis. As far as medication goes, I could have taken anything for those 8 years and, if I had, I likely would have concluded that the medication was really helping me. However, being symptom free for 8 years was...
by AmbiCat
Sun Apr 28, 2019 2:40 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

The vitamin D deficiency did indeed start after the FM, but it really only got bad during the year I was housebound (right after diagnosis), and again in my early 20s when I fell into a very deep depression as a result of how hard college was on my body - I had adjusted to FM by then, but since I wa...
by AmbiCat
Sat Apr 27, 2019 7:21 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Thank you guys for all the support. I don't remember if Vitamin D is one of the things he tested for, but I get tested for that on a yearly basis since I was deficient about 7 years ago pretty badly. I also make sure to take multivitamins with D3 in them, but I'm outside a lot more than I used to be...
by AmbiCat
Sat Apr 27, 2019 9:54 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

He tested everything. I had 3 different blood draws this week for pretty much anything that could cause similar symptoms, including B12. I don't know what the exact results were myself since everything was so rushed and I haven't gotten them in the mail yet, but was told every blood test came out no...
by AmbiCat
Fri Apr 26, 2019 7:02 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1596

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Yeah, he did mention that it has to happen two separate times and in two separate places. That's one of the reasons he's getting a brain MRI done, to see if there's damage there as well (I had a clean brain MRI a few years back in one of my migraine checkups, so any spots there would be something tr...