This Is MS Multiple Sclerosis Knowledge & Support Community

My husband has tried all the ABC drugs, Lipitor, ABX protocol, high dose chemo, and steriods iv with no positive change-we are doubtful about any treatment at this point. Docs want him on Tysabri, but we live in rural Alaska and will not have access to Tysabri until the hospital is certified. His MS...

Thank you for your words of support, but I have had to realize this is my husband's disease not mine. He feels I have pushed him to many therapies with no positive results. With only continued progression, hands are curling, falling more with legs unable to have the strength to pull him up; He fell ...

I have not posted for sometime because my husband continues to decline, not any improvement in four months. I am not sure what to say. He tried Lipitor for a short time, but when he took the pulse, he felt too terrible to do both. He has been true to the protocol everyday. I am not sure if he will c...

My husband's doctor is traveling and asked if I had a resource to show how LDN assist MS patients. Do you know of any convincing ones? He sounds open to prescribing it if I can give him some info. I looked at the Library of Medicine-nothing. The UK MS Society page questioned its use. Thanks for the ...

We were not expecting the abx as a quick fix, but were not prepared to see a visible progression as quick as we have. Not only is his walking deteriorating, but his hand dexterity is declining rapidly. I am more hopeful that the abx will help him than my husband is. In the past 3 years, he has tried...

My husband has been on the protocol about 6 weeks, and his progression seems to have increased. His walking seems so tenuous, and his balance has deteriated more. He is falling more. He quite the Copanxone that he felt was not doing much when he started the protocol. He finished his first flagg puls...

Thanks for your thoughts and comments. We are meeting with my husband's doc tomorrow. I hope my husband will remain on the Wheldon protocol, I am just not sure how long he can wait to take stronger abx. His lesions extend into his thoracic spine, and he rather feel poorly from abx than have the dise...

I believe this last test shows my husband has some time of infection or infections. I know David Wheldon discuss polybacterial infections. Maybe this is what the test indicates; however it did match up to the bands for Lyme. I had read an article about tinz... from the same author you mentioned. Sin...

We lived in Kentucky for late 1997-99 (CDC says ticks are not lyme in KY)and my husband has lived in Ca and PA where their are endimic ticks. All the neurologists-(3) have said he does not has lyme and we should accept his progressive ms diagonsis. Yes, he even remembers a rash and pulling off sever...

My husband started the protocol two weeks ago, but if it is Lyme, most lyme doctors recommend stronger abx at the beginning. I am concerned at starting slowly with the abx because his progression has been quick and we want to preserve what he has. I was just curious if anyone's test showed positive ...

Before we found your board and the MS-bacteria connection, my husband was in the process of being tested for Lyme again. Last year both the Elsa and Western Blot were negative/indeterminate. Igenex the lab we used has a broader view point than CDC. We received the last results this week, the IgM was...

Sarah, Thanks for sharing you information. My husband had leg drop when he first paid attention to something going wrong in 2002. I read on the CPn site that a man from Canada had something happen to one leg too. All of your diseases seem to become aggressive after it appears in the leg. I wonder if...

My husband has a progressive form of MS they say. His symtoms came on quickly and he his have extreme problems now, and they believe it to be primary progressive. I read the information about chlamydia pneumoniae from David Wheldon. I found several other articles posted in the Library of Medicine pu...