This Is MS Multiple Sclerosis Knowledge & Support Community

Harry, Once again the door is open and I feel invited into what we Hoosiers call a 'pissing match'. I will not participate with you in such a contest. I will however point out a misunderstanding you must have had. Now that's interesting.... he states that the unknown risks of PML will cause a hard s...

Here is an article with great risk perspective on Tysabri. Enjoy! NEW YORK - Ken Kam, co-founder and chief executive officer of the amateur investor tracking and analysis service Marketocracy, recommends buying the American depositary receipts for shares of Irish biotechnology and drug delivery comp...

Lindsey's movement on the edss is inspirational...tysabri will be back...we just have to do our best to hang in and wait. I moved from 6.5 to 6 with only 2 doses of tysabri! (of course i am back to 6.5 without it) I just keep praying that we can all see improvement and more importantly stabilization...

lol..thanks for the kudos! I cant go on any spinny type rides anymore..but the rollercoasters and thrill rides are still doable. I love em.
Heather

I have thoroughly enjoyed reading all of your posts and hearing about other's experiences. I was diagnosed in 1998 and at the time 'looked fine' ;0) I found myself letting people know as was necessary. My experience was that most people were shocked because of their own pre-determined notions re: MS...

I agree that there seemed to be folks allowed in the Tysabri trials that had a ton of other issues going on. But I also know that in any trial there are always a certain statistical number of 'incidents' that occur, that can, at face value skew the data. That is why statistical math applies. It allo...

i was lucky enough to get 2 doses of tysabri last spring....and it got me off my walker and back to my cane...as well as off all of my anti spasticity meds! I cant wait to try it again...and see what else improves!

Heather

So you're betting that the FDA is going to re-approve Tysabri very soon? I'm thinking it will be approved... but later rather than sooner.

well....fda granted priority review as of yesterday...so sooner is on the table

if the experts can't or refuse to figure why PML occurred in the Sentinel study, I feel very confident to safely resume dosing of Tysabri as a standalone monotherapy for my MS. Put me in the chair and hook up my IV! I am totally ready! My neuro asks me everytime i talked to him if I know any more n...

Amelia, I was lucky enough...and on top of my neuro enough..lol..to receive two Tysabri infusions. I felt better immediately and was feeling better and better as time went on. I quit falling (something that had left me bruised pretty bad the months before). I was able to get around with my cane inst...

Harry I would love to have you state your sources on the opportunistic infections data you shared. It seems you are just relating info from a non expert media reporter and it is fact that they have gotten most of the data wrong over the past 7-8 months. The fact is that opportunistic infection in th...

I am curious to know if any of you 'naysayers' to Tysabri have experienced the drug itself. I am also curious to know if any of you have followed the New England Journal of Medicine's articles that give insight into the safety evaluations. I had 2 doses of Tysabri and was able to go from using my wa...