This Is MS Multiple Sclerosis Knowledge & Support Community

Isabella - what I meant was that I saw a big improvement straight away, but now it seems to have got stuck at this level - does that make sense?!! Anyway, I am very happy with how I am now, but would be only too happy if I were to improve again, which I am told is more than possible .

Ann

Peta Mine turned up at 7.30pm on Friday evening - no worries :lol: . Glad to hear yours also turned up OK albeit on Saturday. Those chaps do seen to be working their socks off getting the deliveries to everyone. I am going through a plateau stage at the moment - not going back, but not getting ant f...

Aikika - I had a telephone call from Daval today and they will be delivering a month's supply of Aimspro to my front door on Friday. Home delivery will be a lot easier for you rather than having to travel all the way down here won't it. Hopefully your new doctor will be much nearer to your home as w...

Yes, the sleeplessness wore off after the first week, thankfully

Ann

The doctor inceased my dosage to twice a week this week Its funny, but he did that for me as well. And I don't suppose we have to be so quiet about it now that it has been splashed about all over the Daily Mail :lol: Update after 4 injections of Aimspro. This week I have been pruning everything tha...

I am one of the lucky patients on an 'informed consent' basis for the goat serum.

This IS working

Ann

I tried it for eight months before saying enough is enough. I was also on the 22mg dose, but I quit at Christmas and haven't looked back. My neuro said that these drugs only work for about 30% of people, so I must have been one of the 70%
Ann

Aikika - I am seeing him on Thursday, but I am under the impression that EVERYTHING has to go through Daval first, he cannot prescribe off his own back. So the first port of call for anyone interested would be www.davalinternational.com. It sounds as if we are both 'informed consent' patients. I wou...

Hi everyone I am on Aimspro/Caprivax and had my second injection on Thursday. It is early days yet, but all the spasms I had shooting up my legs (during the night especially) have disappeared completely. My bladder, which righted itself whilst on LDN, has also continued to function normally to the p...

Diane

Thanks for your good wishes and in answer to your question the injections are sub-q which is just as well as I'm not keen on intra-muscular .

Ann

I have just been accepted onto a separate trial for the drug company alongside the official clinical trial (no placebos :) ). Aikika, did you have to go to Chislehurst in Kent? If so, our paths may cross in the future. My first appointment is at St George's in Tooting in about three weeks' time. As ...

I must be one of the lucky ones. I went to my doctor this morning armed with all the information from the LDN website and he prescribed it for me without any fuss or bother. I was gobsmacked, it took all the wind out of my sails because I thought I was at least going to have an argument. I supposed ...

I also go against the grain as it is my right side that has has all the problems. My left sde is relatively unaffected.

Ann

Hi, I'm Ann from south-east London, England, 47 years old. Diagnosed in 1994 after the birth of my third baby although first symptoms (ON) appeared when I was 21 (but nobody said anything about MS then). I have been married to Andy for 24 years and have three children, two girls 21 and 20 and one so...