This Is MS Multiple Sclerosis Knowledge & Support Community

For some reason that isnt entirely clear, Kim's Blue Cross BLue Shield CareFirst health plan, doesn't want to cover Modafinil anymore. Is there a less expensive way to get it in Canada or is there a less expensive drug that MS patients are taking now?

Ken, I have only just seen all this, because I have been unable to get on to the site for months. Now I will make sure that I keep checking! Happy Christmas to all four of you! Sarah .... and a very Merry Christmas to you and David too! It has been a very long road and we are still traveling. Big P...

Ken sorry for the late reply. I'm rarely on TIMS. I am so glad to hear that Dr S was so supportive. Love him! I would love to talk with Kim. I think I still have her cell number and will give her a call! Btw-you are an awesome husband! And I'm sure Kim knows it! Lori Happy Christmas Lori! Kim would...

Loriyas wrote:Hi Ken,
Any updates?
Lori

Hi Lori, I've been updating the post a few above this one. I think I am up to over 30 edits to it. I have fallen behind, but will try to get it all caught up soon. How are you doing? We pursued stem cells with Sriram's encouragement. Ken

Lori,
Kim and I appreciate your kind thoughts. I don't have to tell you how hard this road is, but we are doing what we need to do because we can. I'll likely have a daily/or so addition. Stay in touch, Ken

From the moment we arrived at the airport, the Clinica Ruiz staff has been attending to our needs and making sure we are cared for. Ulices picked us up at the airport, late Saturday night. We were hours late due to weather. Our home away from home is a very nice two bedroom/bath apartment that the c...

I'm going to start a new post in this thread because ........ KIM HAS GOTTEN INTO CLINICA RUIZ IN MEXICO!!!!! I'll have a lot to say as we go thought this, but I want to respond to the question about why I'm posting here and not in the Stem Cell forum - I think this Stem Cell and Chemotherapy proced...

Have you looked at Celltex? It might cost less and they are based in Texas.

Is this clinic still in operation? I'm trying to find a working website or email address for them. Thanks, Ken

Well I have more of a question than an answer. My wife found some literature regarding stem cell treatments for a variety of problems including MS at a clinic near my house. So I went to a seminar at the clinic tonight. The doctor seemed well informed. He explained how the treatment is done. The st...

Congratulations ReallyReally. Was this with Dr. Burt? What was your EDSS before and what is it now? What was their screening process like to get in? Thanks for posting, Ken

my old posts include links and they don't work. I'd like to include in new post. Please help. Thanks, Ken

Hi Ken Hi Lori, How have you been. I took a quick look at your log, but didn't look updated. We just saw the doc in November (timed the appt with the Keith Urban concert :-D ). He had little that was new and Kim's been sliding. He suggested we might look at stem cells, has one other patient who has...

I have a bunch of articles about Hematopoietic Stem Cell Transplantation (HSCT). I'll keep adding them to this post. Most of the articles revolve around SPMS since that is what Kim has. Burt, Richard et al. 2012 Autologous hematopoietic stem cell transplantation for multiple sclerosis – if confused ...

Hi HUD, thanks for posting. How did you find the center in Israel and do you know of other places on the internet that are good for finding folks who have had stem cell for MS? I was wondering if your HSCT procedure involved chemo. Elliott, I hear you, but here's the thing ... MS is believed to be a...