Search found 80 matches

by Slumby
Fri Jan 08, 2016 11:50 am
Forum: General Discussion
Topic: If I Could Do it Over
Replies: 6
Views: 919

If I Could Do it Over

If I Could Do it Over First, I would make it an assignment, a duty, to go outside and walk. Every day. I lived in Southern California! I had a favorite spot to walk...but I had issues. But to just WalK. Because if you want to hold onto something, you keep doing it. And SwimminG. I went to a weekly M...
by Slumby
Sun Oct 11, 2015 1:41 pm
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Biotene - diahrea?
Replies: 10
Views: 3458

Re: Biotene - diahrea?

I did two days of 100 mg 3x/day.
The third day, I woke up and as soon
as I opened my eyes, it was coming out.
Good morning!
I have since gone down to 100 mg/day
and will slowly ramp back up.
I am positive that it was the Biotin.
by Slumby
Sun Oct 11, 2015 10:14 am
Forum: General Discussion
Topic: Autologous stem cell therapy (adult fat-derived stem cells)
Replies: 13
Views: 2304

Re: Autologous stem cell therapy (adult fat-derived stem cel

Hello I've talked to the people at stemgenex They do not use chemotherapy in their treatment. I feel like it is only a moneymaking venture. They say The body fat is superior to bone marrow and that the method of taking cells from bone marrow is "prehistoric". That the body fat contains hundreds of t...
by Slumby
Thu Aug 27, 2015 12:29 pm
Forum: Daily Life
Topic: Using a catheter
Replies: 2
Views: 3458

Re: Using a catheter

Hello
I used a intermittent catheter for a while, now I have a supra pubic catheter.
I love it. It gives me a lot of freedom.
by Slumby
Sun Dec 21, 2014 12:13 pm
Forum: Drug Pipeline
Topic: Seroquel, to remyelinate?
Replies: 2
Views: 1571

Seroquel, to remyelinate?

http://mssociety.ca/en/help/msupdates/m ... 131118.htm

The Drug Seroquel is being tested for remyelination, in mice with EAE.
I am taking this drug...a web search for Seroquel multiple sclerosis turned this up.
by Slumby
Thu Sep 25, 2014 9:38 pm
Forum: Low Dose Naltrexone
Topic: Why did LDN make me so much worse?
Replies: 11
Views: 15889

Re: Why did LDN make me so much worse?

I started Ldn 4.5 recently, and my spasticity is much, much worse...since Starting the ldn. I thoghnt that maybe it was the compression stockings I need to wear now or stress caused by the decision as to whether to get the baclofen pump or not . I have been wheel chair bound for the past two years. ...
by Slumby
Mon Apr 28, 2014 9:52 pm
Forum: Aimspro
Topic: Coming to America... ?
Replies: 1
Views: 5675

Coming to America... ?

"Data from a centralised retrospective analysis of clinical outcomes from patients with progressive multiple sclerosis were presented at the Consortium of Multiple Sclerosis Centers (CMSC) and Cooperative Meeting with Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) in M...
by Slumby
Fri Mar 07, 2014 10:34 am
Forum: General Discussion
Topic: Contraceptive pill may increase Multiple Sclerosis risk
Replies: 3
Views: 973

Re: Contraceptive pill may increase Multiple Sclerosis risk

I've known for years that, for me, there is a hormonal component as, every month, like clockwork, I feel Grrreat the day before my period starts. Not sure what exactly is happening with my hormones here...but I wish that I knew. Maybe estrogen drops, but testosterone does not. I went on a bcp (at th...
by Slumby
Thu Jan 23, 2014 1:48 pm
Forum: Aubagio (teriflunomide)
Topic: Aubagio
Replies: 51
Views: 42496

Re: Aubagio

Aubagio The dr says that the mri shows no new legions Afte 1 year on aubagio. However, my condition continues to worsen at what I feel is a rapid rate.  Another drug I started about the same time was Norethindrone (I wanted to see if progesterone made a positive change. I gave it a hole year...  It ...
by Slumby
Sat Oct 19, 2013 8:41 pm
Forum: Betaseron
Topic: Scared - any advice?
Replies: 7
Views: 6013

Re: Scared - any advice?

My advice...if you decide to quit, titrate DOWN.
by Slumby
Sat Oct 19, 2013 8:15 pm
Forum: Regimens
Topic: B vitamins
Replies: 9
Views: 3518

Re: B vitamins

My physiotherapy(?) dr. Told me last
visit that insufficient B vitamins leads
To nerve damage!
by Slumby
Fri Oct 18, 2013 10:06 pm
Forum: Medical Marijuana
Topic: Cannabis
Replies: 13
Views: 8747

Re: Cannabis

Here I am a year later. My ms is much worse since april of 2012. But that I blame on moving to a humid city And quitting my ms drug (betaseron) abruptly When i moved. I now wonder if cannabis makes my ms worse as I had a big flare (untreated!) in '09 after returning Home from an unhealthy (read: lot...
by Slumby
Wed Sep 11, 2013 5:05 pm
Forum: Drug Pipeline
Topic: Myelin peptide transdermal patch
Replies: 3
Views: 2720

Re: Myelin peptide transdermal patch

This is very exciting.
by Slumby
Tue Sep 10, 2013 9:27 pm
Forum: General Discussion
Topic: Researchers find possible link between sleep and MS
Replies: 4
Views: 1228

Re: Researchers find possible link between sleep and MS

Just when I am wondering if my recent 12-hour slumbers may be boosting my immune system and contributing to my disease progression.
If ms is truly n autoimmune disease, anyway.
by Slumby
Sat Aug 31, 2013 7:43 pm
Forum: Daily Life
Topic: Facebook?
Replies: 14
Views: 8316

Re: Facebook?

And there is NO cancelling an account.