Search found 216 matches

by mormiles
Fri Apr 29, 2011 12:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Steve M - 18 months have passed
Replies: 9
Views: 2867

Everyone, thanks for the warmth. Cece, he has had one check-up with Dr. Dake six months after the surgery. He should have another, but we have been unable to afford the cost. He will begin receiving Medicare benefits as of July this year, so I'm hoping that will help us afford another check-up (hope...
by mormiles
Wed Apr 20, 2011 1:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Steve M - 18 months have passed
Replies: 9
Views: 2867

Steve M - 18 months have passed

My husband Steve's surgery at Stanford was 18 months ago as of the end of this March. This is significant, because he has SPMS. Since the surgery, he has experienced some progression, but it seems to have stopped. Actually, he's doing quite well now. I attribute this to the passage of the 18 months,...
by mormiles
Tue Mar 30, 2010 7:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 30523

Thanks guys! Fortunately, Steve's MS was very slow in progression till he was middle-aged...and he didn't know he had MS until 2005...didn't know why he had urinary urgency, ED, chronic clumsiness, chronic constipation, why he was sleepy all the time, why he had increasing balance problems, nervous ...
by mormiles
Thu Mar 25, 2010 6:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 30523

Within a few days of my last comment, Steve began to improve and has stayed consistently in better shape---stronger, more energy, and clearer head. Yesterday, he mowed a small yard with a push-type power mower while I was at work (against my strong discouragement). He would not have been able to do ...
by mormiles
Thu Mar 04, 2010 7:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The dangers of false hope ?
Replies: 40
Views: 7407

Hope is indispensable in surviving the daily grind of MS...whether it's reasonable hope or false hope. Hoping any at all may seem foolish to those on the outside, but to the outsiders I offer this argument: 1. Medical discoveries and advances are happening every day. 2. MS is not excluded from the i...
by mormiles
Wed Mar 03, 2010 2:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 30523

Wow! I missed all the nastiness---thanks for the clean-up dear moderator! Thanks for your concern, but we are both very well supplemented. Our respective regimes are based on doctor's recommendations, years of research, and years of trial and error. And yes, it costs an arm and a leg! Steve is doing...
by mormiles
Tue Feb 23, 2010 8:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 30523

Michele, Mutley, et al, This is something for you to stick in the back of your minds. Since Steve's CCSVI treatment at the end of September, he and I have been through round after round of respiratory infections. The effect on Steve has been that he would be done with the acute respiratory symptoms ...
by mormiles
Tue Feb 23, 2010 8:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bird Poison okay...but we need to be cautious with CCSVI???
Replies: 19
Views: 4348

My sister recently sent me an e-mail about Ampyra at the urging of her gentleman friend. This was my reply: "Hi _____, Thanks for sending this. Yes, I've known about it and have considered it for special occasion use. Before Ampyra, 4-ampyridine (a potassium channel blocker) was a drug available by ...
by mormiles
Fri Feb 19, 2010 1:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ella's adventures in Katowice
Replies: 117
Views: 19126

Ella, You have a great host of MSers and MSer lovers pulling for you, but relax. It's possible to make yourself so tense with expectation that you could miss the little signs. If you've ever done yoga, go there in your mind and chill out. What will come will come.
by mormiles
Mon Feb 15, 2010 8:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ella's adventures in Katowice
Replies: 117
Views: 19126

Dear Friend,
Thinking of Ella, you, and your guys. I'll keep watching and praying, even harder now. Peace be with you and yours.
by mormiles
Thu Feb 11, 2010 9:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: US Media Coverage...Begins Now :-)
Replies: 32
Views: 5647

Hey Sammy Jo, How's that placebo effect working for you?

The coverage and your interview are terrific exposure for CCSVI treatment, but I couldn't help snickering about the "placebo effect" comment.

Thanks for this and all your efforts through the years.
by mormiles
Mon Jan 25, 2010 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Dake - a new title
Replies: 11
Views: 2828

Kudos for Dr. Dake! Hmmm...I'd love to be a fly on the walls of the neurology department.
by mormiles
Tue Jan 12, 2010 1:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gibbledygook's Stents
Replies: 227
Views: 33378

Hi Alexandra, Wow! Pregnant at last! I know you've wanted this for a very long time. Congratulations!!! Since Steve had his 3 stents and 1 angioplasty at the end of September, he's had one infection after another. As soon as he recovers from each infection, he begins to improve (even his balance), a...
by mormiles
Wed Dec 30, 2009 6:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The wait is killing me.....so lets kill some time
Replies: 7
Views: 2190

Hi John: Since Steve and I are a couple of old moldy, crusty slices of white bread, we're still listening to our 70's music. He's still stuck on Seals & Crofts, and I like my Pink Floyd, War, Alan Parsons Project, and Joanie Mitchell. Also, he likes Andrea Bocelli, and I like Luciano Pavarotti. A co...
by mormiles
Thu Dec 24, 2009 6:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Update on my husband
Replies: 19
Views: 4733

A lovely Christmas blessing for you two. With MS, the smallest of improvements is cause for joy. May you both have the merriest and most blessed Christmas!