Search found 18 matches

by Markd
Sun Sep 04, 2016 7:44 pm
Forum: Avonex
Topic: For anyone flying
Replies: 4
Views: 9147

Re: For anyone flying

Regarding the polar bear cooler, I recent went to Europe for two weeks, that's six syringes of rebif. Looked for a medical cooler all over the web local business etc. read that polar bear was the best on the market. I picked one up at camper world, cost $75. Since I was leaving the next day and i co...
by Markd
Mon Jun 10, 2013 6:42 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: NOT Everything is..........
Replies: 5
Views: 1980

Re: NOT Everything is..........

Brownie with ice cream......are my desires a symptom or something else, go with non-fat ice cream, orange sherbet is good too............think I'll waddle on down to the ice cream counter
by Markd
Tue Feb 05, 2013 9:45 pm
Forum: Rebif
Topic: help with a new person on rebif
Replies: 5
Views: 5978

Re: help with a new person on rebif

Buy the big bottle of Ibu at Costco. My flu like symptoms lasted about 6 months. The reaction was really handy when I was feeling lazy. Been about 6 years since I've been able to use that excuse.
by Markd
Sun Dec 02, 2012 9:04 pm
Forum: Drug Pipeline
Topic: BG 12
Replies: 8
Views: 2827

Re: BG 12

Hey Lars You stated "I think I'm on my way to the store to try some!" Let us know where you find it and how it worked out.
by Markd
Sat Jun 30, 2012 10:20 pm
Forum: Rebif
Topic: Emotionally Dealing with Rebif
Replies: 17
Views: 12111

Re: Emotionally Dealing with Rebif

Well, I don't know how long gold needles will last but I have been on Rebif for about 7 years. What can I say, I still don't enjoy the shots. However, I have not had symptoms of any note in that time. Haven't really noticed those bad fevers in about 6 years and life has been real reasonable to me so...
by Markd
Sun Apr 15, 2012 5:32 pm
Forum: Rebif
Topic: Splitting pain when injecting
Replies: 2
Views: 5524

Re: Splitting pain when injecting

I have been using Rebif for around 6 years. The only extreme pain I have ever experienced is a spot on my right thigh, seems like I might be hitting a nerve or something. Still an issue after six years. They say a little fluid leaking from the needle adds to the sting so I just move fast. Cap off th...
by Markd
Mon Sep 05, 2011 10:42 am
Forum: Rebif
Topic: Anyone with GOOD Experiences on Rebif??
Replies: 44
Views: 22385

Re: Anyone with GOOD Experiences on Rebif??

Using 6 years. I have no complaints. The first 6 months I used a lot of tylinol to limit the fever after that it was ok. I few injection site reactions etc... no big deal... occasionally a little pain ( one spot on my leg). I have a friend who didn't use the drug when she had a chance, she can't wal...
by Markd
Sun Apr 24, 2011 11:58 am
Forum: Drug Pipeline
Topic: Its your bacteria
Replies: 0
Views: 1924

Its your bacteria

Don't know how many of read this and I apologize if it has appeared in MS before, but it looks like they are on to something regarding what works and what doesn't for some people. http://www.sciencedaily.com/releases/2011/04/110421141632.htm "In the case of a common "friendly" gut bacterium, Bactero...
by Markd
Sat Apr 23, 2011 10:47 am
Forum: Rebif
Topic: Disposing of Needles
Replies: 13
Views: 9498

used needles

I have about 6 years in a plastic container. I break off the needle then throw them all together. Throw the plunger in the garbage. Its every injection I have ever used give or take 3 months, almost 4 gallons worth. Maybe I can use them for an art project someday or will them to my kids as some sort...
by Markd
Sat Apr 23, 2011 10:33 am
Forum: Rebif
Topic: Any side effects from longterm use??
Replies: 4
Views: 8150

Any side effects from longterm use??

:?: Been shooting up for about 6 years now. Other then the red patches on my belly, no real side effects that I can attribute to Rebif. Has anyone read about or experienced anything that could be attributed to long term use, say 5 plus years.
by Markd
Fri Jun 18, 2010 7:08 am
Forum: Regimens
Topic: Vitamin D Studies and board members
Replies: 24
Views: 11346

Thank you both for your reply. I was taking 400 ml and tested about the same. GP recommended 2500/day. I should probably be retested to see if that is enough.
by Markd
Thu Jun 17, 2010 11:27 am
Forum: Regimens
Topic: Vitamin D Studies and board members
Replies: 24
Views: 11346

Vitamin D Studies and board members

Diagnosed 5 years ago with RRMS been a Rebif addict ever since. So far I have been really lucky.... Back when the Vitamin D info was publicized my GP had my Vitamin D levels tested and found them to be very low. I have been eating about 2500mg a day since. My question is how many board members have ...
by Markd
Wed Oct 22, 2008 7:23 pm
Forum: Drug Pipeline
Topic: leukaemia drug can halt, reverse effects of MS
Replies: 5
Views: 2868

leukaemia drug can halt, reverse effects of MS

Check this out Study finds leukaemia drug can halt, reverse effects of MS < shortened url > Yahoo AFP News LONDON (AFP) – Researchers at the University of Cambridge said Thursday they have found that a drug originally developed to treat leukaemia can halt and even reverse the debilitating effects of...
by Markd
Sat Jan 26, 2008 11:06 pm
Forum: Rebif
Topic: surface skin numbness
Replies: 3
Views: 5226

Thanks for the replies.... No Necrois, that has its own lovely effects. I think I just went a little to low on my leg (based on the recommended injection site pictures). Never had any momentary numbness that I noticed, a little pain though. I think it's all worth it, and am just glad Ribif works.

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