This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Dani: I was dx’d at age 49 and had three bands in my spinal fluid. I got two spinal taps . The first one was fine and the second one was bad. I had a terrible headache for two weeks and was flat on my back like you were. If they schedule you for another spinal tap check out this link. It tells th...

Hi Sarah:

Thanks for the reply.

I'm going to keep a close eye on it and get a new cuff if the old one is off.

I was surprised that it stayed up for the whole time I was in the ER. I must have been more nervous than I wanted to admit.

Thanks again, btw I love your work !

Regards

Mick

ewizabeth:

I understand, the 24 hr automatic monitor would clear a lot of things up, especially if the 24 hours includes a trip to the doctor's office . I'll ask for one the next time I go which is on the twelfth of December .

Thanks for the tip

mick

hi ewizabeth

I do have an automatic b/p cuff. I check it often here and its always fine. I'm going to take it with me next time and be sure that its calibrated.

That should be interesting . It will be probably twenty points off.

thanks

Mick

ewizabeth: Thanks for your reply. My dr. has been watching it for a long time. I always came down. then I got sent by ambulance to the emergency room and it stayed up (see my post in the daily life forum). They don't want to give me anything unless it stays up for a long time. I'm sure it's high whe...

Hi: Has anyone developed “quick onset hypertension”? My blood pressure is always high at the dr’s office (150/90) office but then goes back down. I got taken to an emergency room (see my post in daily life) and it stayed up the whole 8+ hours at 160/116 yikes!. I found a story that described a simil...

Just another day in the life of an mser. I’m not going to make a habit of replying to myself. I’m not that crazy yet, but. I called my neuro yesterday because I was very fatigued and had some sweating at night. They said – call your Primary Dr. Primary Dr. was out so I was told to come in and see th...

Just me grumbling again. I moved some stuff around yesterday. Nothing big or anything, and I went real slow. Today I’m really ill with fatigue. It’s days like this that scare me. I tell myself it’s OK to do this now and then. I want to stay as active as I can to retain some stamina but the price is ...

Ewizabeth Thanks for the post, It is a relief to know that this is a common ms struggle. I managed to get some sleep last night so things look brighter today. Actually, the house we live in is a ranch. Everything is on one level (except the laundry). It would probably make sense to stay put for a wh...

Hi Robbie: It does make sense. The delima I face is that I know what I'm no longer capable of doing and I have to keep informing my wife and daughter about the progression. It's just that I don't like being the bearer of bad news all the time. I'm hoping this stabalizes at some point. They say you s...

Ewizabeth It sounds like you know the drill. You have brought up a good point regarding family and fatigue. I know this is very common when a family gets hit with a chronic illness. This ms situation has shifted a huge burden onto my wife. I try to help but then I’m down for days. It’s very hard to ...

Cureo: I am very sensitive to heat. It seemed like a good fit for me but it just made me a little nauseous. The neuro said that the 4-ap helps 1/3 of the people who try it. 1/3 have no effect and the last 1/3 don't tolerate it well. I fell into the last group. They have you try it in three concentra...

Bob:
I/ve had:

Crohn's disease
Asthma
Numerous food aleriges

and of course PPMS - This I believe was triggered by trauma.

Mick

I had asthma as a child. I thought I outgrew it. They tell me it often comes back as an adult.

Mick

CureO: I have tried amantidine but not ACLR. I will definitely look into it. It seems affordable enough. I also tried 4-AP (bird poison) at my Neuros suggestion – no luck. I was very carefull not to exert myself much over the weekend and felt tired on mon. but not ill. Today I feel great. I’ll try t...