Search found 774 matches

by Wonderfulworld
Sun Jul 10, 2016 11:49 am
Forum: General Discussion
Topic: Pregnant with MS,scared
Replies: 8
Views: 846

Re: Pregnant with MS,scared

Hi Sadie Congratulations! I 100% agree with Lyndacarol about vitamin D. Not only is fixing a deficiency good for you, it will be good for your child too. I wasn't on top of that 8 years ago when I had my son and I regret that - children with a vitamin D deficiency have a risk for MS too. You have no...
by Wonderfulworld
Sun Jul 10, 2016 7:48 am
Forum: General Discussion
Topic: Anyone tried MitoQ, or done much study on it?
Replies: 2
Views: 969

Re: Anyone tried MitoQ, or done much study on it?

Many thanks for your detailed reply Scott, I appreciate it a lot.
I will certainly post back here on how I get on if I can order MitoQ to Ireland - I need to check out if it will get past customs. Like you I find Co q10 helps fatigue.
by Wonderfulworld
Fri Jun 24, 2016 3:40 am
Forum: General Discussion
Topic: Anyone tried MitoQ, or done much study on it?
Replies: 2
Views: 969

Anyone tried MitoQ, or done much study on it?

Hi I've seen some research in PubMed on MitoQ the antioxidant supplement, and it seems to be used for hypertension. Just wondering if: a) can you take it safely with Tecfidera, or would the two cancel each other out? - I tried ALA/NAC with Tecfidera but got increases in symptoms 10 days in on the 2 ...
by Wonderfulworld
Sun Mar 24, 2013 1:21 pm
Forum: General Discussion
Topic: Spasticity Drugs: No Luck
Replies: 17
Views: 2449

Re: Spasticity Drugs: No Luck

A fairly low dose of Clonazepam (Rivotril) at night has been a life-saver for me. I had rib cage spascticity (MS hug) and some general mild spasticity in my legs. I am sleeping fine, moving much better and getting less fatigued because the effort is so much less. Maybe worth a try if you have run ou...
by Wonderfulworld
Thu Jan 17, 2013 4:19 pm
Forum: General Discussion
Topic: Not trying to bother anyone
Replies: 19
Views: 2167

Re: Not trying to bother anyone

Chris that is wonderful news-congrats :-D :-D Prepare for your heart to swell 10 times with an unselfish love u never knew u had. I was a stay at home Mum for a few years there. My son is now in school and nearly 5. If u don't mind advice I would: Enjoy just lying in bed watching your baby. I was to...
by Wonderfulworld
Sun Jan 06, 2013 2:15 pm
Forum: General Discussion
Topic: Help! Bladder issues
Replies: 4
Views: 1154

Re: Help! Bladder issues

Hi ExtremeMS Yes I had/have this symptom. I tried all the bladder drugs but they did not work - especially at night. I was advised to have Botox and was waiting for my appointment when I was put on Cymbalta (duloxetine). Bizzarrely, what is a 'negative' side-effect for most turNed out to be a fantas...
by Wonderfulworld
Thu Jan 03, 2013 2:55 pm
Forum: Natural Approach
Topic: Phospatidylserine
Replies: 1
Views: 1558

Re: Phospatidylserine

No but your post just turned up in the search results for 'phosphate' - I just found out today I have low levels of iron and phosphate....a link to this I wonder?
by Wonderfulworld
Thu Sep 13, 2012 7:05 am
Forum: General Discussion
Topic: Hope for people with SPMS???? Finally?????
Replies: 8
Views: 1496

Re: Hope for people with SPMS???? Finally?????

You know 30% reduction feels good when I used to have 4 relapses a year.....
by Wonderfulworld
Thu Aug 23, 2012 1:14 pm
Forum: General Discussion
Topic: A large-scale study of anxiety and depression in MS
Replies: 5
Views: 1585

Re: A large-scale study of anxiety and depression in MS

people with fatigue will score moderately high in the beck depression index just as people with depression will score moderately high in the fatigue index it is not completely easy to distinguish the two I completely agree Cece. My neuro's registrar kept asking me to do the beck depression index bu...
by Wonderfulworld
Tue May 01, 2012 7:05 am
Forum: General Discussion
Topic: Cough medicine ingredient may help treat multiple sclerosis
Replies: 17
Views: 6377

Re: Cough medicine ingredient may help treat multiple sclero

Hey
LR1234 did you continue the dextromethorphan for long? Did it influence your ON last year?
I never did take it because I had to change to Cymbalta for pain, but I am curious if anyone else did.......
by Wonderfulworld
Mon Feb 13, 2012 11:15 am
Forum: General Discussion
Topic: did anything cause your MS?
Replies: 36
Views: 3472

Re: did anything cause your MS?

Sarah I agree that MS often starts before sexual contact, and I too dislike Dr Hawks' inference about sexual activity. What interested me in the Lyme /infected tick thread was that spirochetes can be transmitted by infection, breastmilk and sexual contact. I was wondering if, in genetically predispo...
by Wonderfulworld
Sun Feb 12, 2012 12:17 pm
Forum: General Discussion
Topic: did anything cause your MS?
Replies: 36
Views: 3472

Re: did anything cause your MS?

Now I think Dr. Hawkes is worthy of some consideration. If you have a look at this parallel discussion on Thisisms http://www.thisisms.com/forum/general-discussion-f1/topic19152.html it is showing the distribution of infected ticks. If lyme spirochetes can be transmitted via breastmilk, sexual conta...
by Wonderfulworld
Mon Feb 06, 2012 12:16 pm
Forum: General Discussion
Topic: did anything cause your MS?
Replies: 36
Views: 3472

Re: did anything cause your MS?

See the follow Pubmed article by a Doctor CH Hawkes on sexual transmission and MS: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1738067/pdf/v073p00439.pdf Do you know there is so much unsolved and mysterious about MS perhaps this seemingly mad theory is as deserving as as much consideration as any ot...
by Wonderfulworld
Mon Feb 06, 2012 12:09 pm
Forum: General Discussion
Topic: How many lesions do you have
Replies: 8
Views: 10352

Re: How many lesions do you have

Coeliac disease - if the person is eating gluten - can cause brain-lesions and neuropathy too.
by Wonderfulworld
Sat Jan 28, 2012 12:21 pm
Forum: General Discussion
Topic: did anything cause your MS?
Replies: 36
Views: 3472

Re: did anything cause your MS?

I suppose none of these are certain or proven causes but it is interesting to see so many are shared between us. Mine were: EBV mono age 19 that infected my liver and caused jaundice - LR I notice u had similar. Smoker age 18 - 33 Low vit D status Poor diet Extreme and prolonged stress as a child an...