Search found 2198 matches

by Loobie
Mon Jan 18, 2016 7:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 68134

Re: Notes from CureIous' at Stanford

Well I got the emails and had to come here and check. I don't get out much so probably no whiplash in my future but has anyone else 'felt' their stents as a sore and swollen area right beneath your ear? I suppose that's location related but mine sometimes gets sore and that swollen spot is not on th...
by Loobie
Mon Jan 28, 2013 8:58 am
Forum: Introductions
Topic: New, old member Loobie!
Replies: 3
Views: 855

New, old member Loobie!

Hey all,

After a major extended hiatus, I'm back scrounging around on TIMS! Interested in the AO stuff that is the buzz here lately and actually came to a thread on here from a google search so I decided to see if I remembered my password! I hope I can get in on some good discussions.
by Loobie
Mon Sep 12, 2011 4:10 am
Forum: General Discussion
Topic: Swelling? Inflammation? Pressure in the noggin...
Replies: 12
Views: 2266

Re: Swelling? Inflammation? Pressure in the noggin...

I had much of the same issues. I almost 'stopped moving' as the dizziness got so bad. I'm not trumpeting this at all but the CCSVI procedure took MOST of it away for me. Now I can push myself a lot more in terms of exercise without getting what I used to call "full head". However, it doesn't make mu...
by Loobie
Fri Aug 12, 2011 5:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Massive study disputes Zamboni theory of multiple sclerosis
Replies: 63
Views: 7567

One thing that is OBVIOUS to me, based on the mixed bag of results people have after getting the veins opened up, is that there is much more to be done. I think the fight is really all about down which road do we go? I mean sure the genetic component, and the venous, and the immune all undoubtedly p...
by Loobie
Tue Aug 02, 2011 11:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sweating in MS
Replies: 19
Views: 4310

Before the procedure, and when I was still capable of running, I sweat like a pig. I would get a 1/4 mile in and my shirt would be drenched. Likewise when I was simply hot out, I would also start dripping from my nose straight away. That went away to a point when I started 'getting bad'. After the p...
by Loobie
Thu Jul 28, 2011 1:29 pm
Forum: General Discussion
Topic: Aimspro bladder dysfunction in SPMS study completes
Replies: 10
Views: 2155

I can't do the botox since I have both OAB and the detrussor/sphincter dissynergy that keeps me from even getting close to emptying.
by Loobie
Thu Jul 28, 2011 6:56 am
Forum: General Discussion
Topic: Aimspro bladder dysfunction in SPMS study completes
Replies: 10
Views: 2155

Fingers crossed on this one, that's my most serious symptom.
by Loobie
Thu Jul 28, 2011 6:55 am
Forum: General Discussion
Topic: Nerve Stimulation Technique for Bladder Symptoms
Replies: 14
Views: 3114

I will be taking this to my physiatrist. Thanks Tracy!
by Loobie
Thu Jul 28, 2011 6:51 am
Forum: General Discussion
Topic: Biogen, Bayer MS drugs aren't cost effective, study says
Replies: 4
Views: 1587

The drugs simply don't work. The primary endpoint of the trials was statistical relevance of less lesion load after a short period of time. So that's all they had to meet. There was not one endpoint that had to do with disease progression so this drug wasn't even designed to deal with that. Since an...
by Loobie
Thu Jul 14, 2011 11:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat Intolerance?
Replies: 46
Views: 6272

We'll never know, until it's studied and CCSVI is perfected (let's hope it gets there) if CCSVI is the culprit. I myself don't think so. I know that everyone's central nervous system functions at a lower level in the heat. Think about how heat would zap you even when you were healthy. I mean when I ...
by Loobie
Thu Jul 14, 2011 11:51 am
Forum: General Discussion
Topic: Another study showing that exercise not bad for MS
Replies: 7
Views: 1744

Bob, I have not noticed that at all. I am the king of overdoing it since, as most could tell you, you don't necessarily know you overdid it until afterwards. However, my personality type won't let me NOT eek out the additional rep or whatever. I am just not put together with much restraint!
by Loobie
Thu Jul 14, 2011 11:48 am
Forum: General Discussion
Topic: Do you sweat in heat or not
Replies: 6
Views: 1085

like a whore in church; especially after my CCSVI procedure. Was laying out in the sun this am and was drenched.
by Loobie
Mon Jul 11, 2011 9:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 37917

I'll tell you Dake gets some bad press for the stuff that has happened with stents. All I know is when I saw Siskin, he said he had never seen such open, flowing stents and I saw him basically 2 years post procedure. Vive la stents I say! Plus, he's developing some new ones. I'm a fan of them but to...
by Loobie
Mon Jul 11, 2011 9:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Here's an interesting kettle of fish.
Replies: 10
Views: 1640

Every MRI I've ever had has come back "unremarkable" meaning I don't pop off lesions. Tell that to my EDSS score. Granted I've had the procedure and it had some positive effect on me but not nearly the claims of some others (I'm still jealous of you guys!). However, I've been off the drugs for a whi...
by Loobie
Mon Jul 11, 2011 8:58 am
Forum: General Discussion
Topic: Another study showing that exercise not bad for MS
Replies: 7
Views: 1744

since i started going on my exercise bike, i fell overall better. just dont push yourself too much. There's the rub for me. For me at least, there is a DEFINITE correlation between exercising and feeling good. I get sometimes in that conundrum of not even being able to exercise as I can't exert the...