Search found 100 matches

by hmtucker
Thu Nov 05, 2009 11:54 am
Forum: Tcelna (Tovaxin)
Topic: Good news for Opexa!
Replies: 19
Views: 9190

I am not eligible. I checked. I had previous Tysabri infusions...or so I was told when I inquired. Were you not eligible for the trial because of Tysabri or not eligible for off label because of Tysabri? The rules can be very different when you are not constrained by the research study protocol. It...
by hmtucker
Mon Nov 02, 2009 1:11 pm
Forum: Tcelna (Tovaxin)
Topic: Good news for Opexa!
Replies: 19
Views: 9190

JanethePain wrote:
av8rgirl wrote:I haven't heard squat from the trial coordinator even after sending the news releases etc.
.

The trial part of Campath is still active but is closed for recruiting. Given that, if I were you I would certainly explore the idea of getting Campath "off label."

Mike
by hmtucker
Mon Jun 22, 2009 11:05 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: i start tomorrow
Replies: 4
Views: 2325

Re: i start tomorrow

so.... i got the campath arm of this thing. Congrats! Although I am doing Campath "off label" my treatment followed the CARE-MS II protocol including the anti-nausea med reglan. I am 3 weeks post infusions now. I did not experience any nausea during the infusions or at night but at night my appetit...
by hmtucker
Mon Jun 01, 2009 4:57 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: My Campath Story
Replies: 11
Views: 3751

Hello all, I have now finished the Campath infusion protocol and things went very well. The Campath infusions lasted for 4 hours the first 2 days and then 3 hours for the last 3 days. I did not have any real problems tolerating the Campath as I did not have any fevers, chills, nausea, etc. during th...
by hmtucker
Thu May 21, 2009 6:16 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: My Campath Story
Replies: 11
Views: 3751

Good luck Mike. I am in Tennessee and I keep seeing these new campath stories poping up from Kentucky. It would be cool to actually meet all of you guys at some point. The first week is not bad. If you are like me you probably won't begin to feel the effects until a week or two after the infusions....
by hmtucker
Wed May 20, 2009 8:43 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: My Campath Story
Replies: 11
Views: 3751

I wish you the best of luck and please e-mail or post here what is happening. Make sure they prescribe the acyclovir. I took one a day for 30 days. I also had reglan for nausea and benedryl for the hives during the 5 days of treatment. They are doing iv solumedrol during the treatment aren't they? ...
by hmtucker
Tue May 19, 2009 4:54 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: My Campath Story
Replies: 11
Views: 3751

Couple of questions, if you don't mind. How did you know the place in TN was doing Campath off-label? Primarily, the doc who I had been going to at the research site for Tovaxin as well as the CARE-MS II study told me that the MS clinic in TN was doing Campath off-label. My regular neuro doc here a...
by hmtucker
Mon May 18, 2009 12:46 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: My Campath Story
Replies: 11
Views: 3751

My Campath Story

WOW, what an interesting but very stressful journey to finally get to this point! The short version of the story is that I was a Tovaxin lab rat who received Tovaxin during the 1 year of the Phase IIb trial and then 4 out of 5 vaccinations in the extension phase before Opexa ran out of money and shu...
by hmtucker
Tue Feb 24, 2009 9:10 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath feedback please
Replies: 17
Views: 5819

Hey Mike, Fancy meeting you over here. I'm sorry to here about your randomization to Rebif. Sounds like you may be heading to off label???? Thanks for the update and for the information. Stay in touch. Hey Lars, Yep, I got Rebif and off label Campath is definitely the direction that I'm heading. So...
by hmtucker
Tue Feb 24, 2009 8:11 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath feedback please
Replies: 17
Views: 5819

Re: Campath feedback please

Mike, could you please make this a little clearer what you mean by this? I have found that it is illegal for Campath to be used off label in Australia for MS, and so am considering options of OS. Cure, Here in the US, once the FDA (Food and Drug Administration) approves a drug for use in humans it ...
by hmtucker
Mon Feb 23, 2009 8:55 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath feedback please
Replies: 17
Views: 5819

Campath feedback please

Hello all, I am new to the Campath forum but some of you may recognize me from the Tovaxin forum. I want to for some feedback from you folks, especially the those who have gone through the Campath treatment. Below the paragraph with my questions is a description of my situation if that helps with yo...
by hmtucker
Sun Feb 08, 2009 5:17 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Finally in
Replies: 25
Views: 4924

Re: Finally in

I thought that the objective with Tysabri treatment was to simply block the immune system from getting into the brain. NHE, You're correct, Tysabri is a humanized monoclonal antibody that binds to an alpha-integrin which is a protein involved in the mechanism of how the T-cells cross from the blood...
by hmtucker
Sat Jan 03, 2009 6:22 am
Forum: Tcelna (Tovaxin)
Topic: Termination Appt. and What Did You Switch To
Replies: 81
Views: 16498

Maybe it's time we had a clandestine discussion about Campath here on the Tovaxin site since so many of us are considering it. Pros, cons, effects and side effects, long term efficacy, risk/reward thoughts etc. Thanks again Mike, you may have given us the ultimate Christmas present and inspired me ...
by hmtucker
Tue Dec 30, 2008 3:00 pm
Forum: Tcelna (Tovaxin)
Topic: Termination Appt. and What Did You Switch To
Replies: 81
Views: 16498

I certainly am going to look into it, but Jamie's not interested in spending any time on Rebif. Bob, I certainly have reservations about the Rebif arm as well. I started out this journey on Betaseron and I certainly don't want to go down the interferon road again. But I'll roll the dice on an 80% c...
by hmtucker
Tue Dec 30, 2008 6:49 am
Forum: Tcelna (Tovaxin)
Topic: Termination Appt. and What Did You Switch To
Replies: 81
Views: 16498

Hello all, Things are a little quiet on the Tovaxin board lately but I just received a call from my Tovaxin study group. The latest news is that the Campath (Alemtuzumab) folks have now decided that we former Tovaxin lab rats ARE eligible for the Alemtuzumab CARE-MS II study (see http://clinicaltria...