Search found 59 matches

by agate
Fri Apr 24, 2015 12:04 pm
Forum: Reading Nook
Topic: Reading Group
Replies: 55
Views: 29565

Re: Reading Group

Hi TardisTart,
I haven't been to this board in some years but received an e-mail about your post because I must have subscribed to the thread.

So far as I can tell, a book discussion group didn't get off the ground here.
by agate
Sun Aug 08, 2010 1:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 16931

Hi bluesky, I doubt if you remember me but you were among the very kind people who welcomed me back around 2001 on another MS board, and I've often wondered what became of you. I don't look in here very often, but I found this thread today and just wanted you to know that I hope all is going well fo...
by agate
Sun Aug 08, 2010 12:23 pm
Forum: Reading Nook
Topic: Reading Group
Replies: 55
Views: 29565

JFH, thanks for the recommendations!

whyRwehere, I must apologize. I didn't see your reply until just now! I haven't been on here much at all in recent months. Thanks ever so much for reading my blog!
by agate
Sat May 29, 2010 4:02 pm
Forum: Copaxone
Topic: Does anyone feel their MS has got worse?
Replies: 14
Views: 7822

Message deleted
by agate
Wed Apr 14, 2010 4:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Live Zamboni / Zivadinov CCSVI web forum - April 14th 2010
Replies: 39
Views: 9390

I watched the discussion, and was interested in Dr. Common's report that Dr. Dake of Stanford University has done about 35 of the CCSVI procedures but had complications develop in two of them--and was "asked or told" to stop doing the procedure.... This is probably old news for everyone here but I t...
by agate
Thu Apr 01, 2010 8:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New CCSVI research; Zamboni & Embry pen editorials
Replies: 28
Views: 5903

Thanks for the information! In other words, this journal might be the product of some researchers interested primarily in promoting one idea rather than in representing the spectrum of research on a topic--? If it's so little known, it sounds as if this might be what's going on. On the other hand, s...
by agate
Thu Apr 01, 2010 6:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New CCSVI research; Zamboni & Embry pen editorials
Replies: 28
Views: 5903

The names of many of the authors are the same names that have been cropping up since CCSVI became a hot topic--Drs. Zamboni, Zivadinov and others.
by agate
Thu Apr 01, 2010 11:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New CCSVI research; Zamboni & Embry pen editorials
Replies: 28
Views: 5903

Does anybody know anything about International Angiology as a journal--what its reputation is among medical professionals? I don't know much but it seems possible that some journals might appear "significant" but might really be in the hands of a few people who are interested in promoting some medic...
by agate
Tue Sep 08, 2009 1:02 pm
Forum: Reading Nook
Topic: Reading Group
Replies: 55
Views: 29565

Yes, I've been on MSKK for a year and a half now but am drifting off just now. I recognized your user name and wondered if you're the same person. I've been on this board for a longer time but haven't posted much here at all. Books to recommend? It depends on what you like. I keep a record of books ...
by agate
Mon Sep 07, 2009 9:40 pm
Forum: Reading Nook
Topic: Reading Group
Replies: 55
Views: 29565

But what is the book? The last title that was mentioned in this thread is from 2006.

queenie, maybe I "know" you from somewhere?
by agate
Thu Jul 30, 2009 6:37 am
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11321

Hi Longing, I think it's good that your neurologist took you off the Copaxone. The experts seem to have trouble figuring out what a plain, ordinary, garden-variety IPIR is and what is actually an allergic reaction. As long as they haven't really figured it out, better safe than sorry. I doubt that I...
by agate
Fri Jul 24, 2009 12:59 pm
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11321

To check for blood, after you've pushed the needle in but before you start pushing the plunger, you pull back on the plunger slightly (not far at all). If you see blood in the syringe, that's when some people say you should discard the syringe and start over. I keep forgetting to check for blood in ...
by agate
Mon Jan 19, 2009 8:57 am
Forum: MS in the Golden Years
Topic: Retired and unable to enjoy it! Are you driving?
Replies: 20
Views: 15395

I haven't been here in ages but saw this thread. No, I don't drive but then I never did. I was forcibly retired by MS many years ago but kept on doing occasional free-lance work at home if I could find the work and was able to do it. I still do occasional work, mainly because SSDI doesn't pay quite ...
by agate
Fri Sep 12, 2008 6:19 am
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11321

If it's any comfort to you, I've been on Copaxone for over a year now (since June 2007) and so far haven't had so much as a twinge of an IPIR. I've heard of Dr. Howard Weiner, also big in MS research. It's good that you have a doctor who's on top of things--or maybe not so good if he's so well-known...
by agate
Thu Sep 11, 2008 10:15 pm
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11321

Hi Longing4Cheese, IPIR = immediate post-injection reaction Some people have this rare reaction to a Copaxone shot. I believe it happens to about 10 percent of the Copaxone users. I've never had it (so far) but have read quite a few posts by people who have experienced it. It can be quite mild or so...

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