Search found 58 matches

by superman
Sat Apr 25, 2009 2:55 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: 6th PML Case?
Replies: 13
Views: 3075

Touch program says how Tysabri must be prescribed Tygris program observes how Tysabri patients react (from R'uter and Tysabri websites) TYSABRI is available only through the TOUCH Prescribing Program, which stands for TYSABRI Outreach: Unified Commitment to Health. TOUCH is a restricted distribution...
by superman
Thu Apr 23, 2009 1:02 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: 6th PML Case?
Replies: 13
Views: 3075

European taking TYsabri + long term steroid therapy. This seems quiete strange. Here in France i've have been under Tysabri for nearly two years and heard about Tysabri added to Prednisolone only in case of relapse. The effect of long term steroid therapy is harmful. As well in UK(where i lived for ...
by superman
Fri Mar 06, 2009 2:08 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: 95% sure i'm choosing Tysabri
Replies: 14
Views: 3068

friends

Bringing a friend for an infusion is not a problem.(at least here in France,where we're not so underdeveloped ;-) ) and since you're feeling quite anxious you should definitely come with your friend. Otherwise tysa IV is not different from steroid IV. also little corrction: in my message above i say...
by superman
Thu Mar 05, 2009 1:47 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: 95% sure i'm choosing Tysabri
Replies: 14
Views: 3068

I get my fifth on the 25th in March.
No side effects. Not a single relapse so far(compared to 8 attacks for the 2 years before Tysabri) and a better walking, even though the improvement did reach a limit.
by superman
Sat Jan 24, 2009 11:12 am
Forum: General Discussion
Topic: MS and fever (personal experience)
Replies: 0
Views: 1612

MS and fever (personal experience)

Hi As you may have read I have been on Tysa for 20 months and so far so good... Until this week when I have had some fever. This has reactivated my ms symptoms(right leg hobbling) and made me wonder whether i was having a relapse or not. But since this fever has gone i'm feeling better, the symptoms...
by superman
Thu Dec 25, 2008 1:56 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Fourth PML case in 2008
Replies: 45
Views: 9007

TOUCH program. This program is non existent outside of he US, another reason for the cases in Euro. [/quote] As a french arrogant (?) :wink: guy I can't let you say this. I don't how it is exactly in the rest of Europe but here in France, Tysabri is prescribed under Touch program: monthly blood test...
by superman
Tue Dec 23, 2008 12:47 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Franks Tysabri exp., little sideeffects, no improvement
Replies: 50
Views: 17626

Bonjour Belge, At the beginning i was feeling quite impatient like you. I know as well that i am quite lucky amongst Msers Personally i began feeling little improvements step by step: after 2nd infusion i could stay standing up(not walking, just painting my flat) for a quite long time without feelin...
by superman
Tue Dec 16, 2008 2:48 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Franks Tysabri exp., little sideeffects, no improvement
Replies: 50
Views: 17626

Personally here in France, my neuro who i saw yesterday didn't speak about any break. I'll get my 18th infusion and Tysabri is really meeting its goal: no relapse since April 2007! As well my walking although maybe not as long as i'd like(4 km ,3 miles ie without hobbling is much less than what i us...
by superman
Sat Dec 13, 2008 4:42 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: alcohol ;)
Replies: 6
Views: 4611

From what i read majinua isn't that great, i mean the one you buy illegally, since it is quite often mixed with other "random" products. canabis can be good when administered by chemists who know exactly what they give you. Smoking cigarettes is simply bad. About alcohol i do think it was so bad, i ...
by superman
Sun Nov 16, 2008 5:28 am
Forum: Under 25 with MS
Topic: Understanding
Replies: 7
Views: 6690

For the first years of my MS, I often used to speak out about it to relatives or friends. This tend people to see me just as a sick guy. Since that i prefer to not speak about it, unless i have serious problems: relapse eg. Also, i have a very limited list of people to speak about it. Otherwise, if ...
by superman
Mon Nov 03, 2008 2:25 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Dr Alasdair Coles explains Campath on you tube
Replies: 0
Views: 2183

Dr Alasdair Coles explains Campath on you tube

Below youtube videos from Dr Alasdair Coles(leader of the research on Campath) exlains risks and gains from Campath. ttp://www.youtube.com/watch?v=6QvOiDfvrqg http://www.youtube.com/watch?v=HaYbTvSO0SY http://www.youtube.com/watch?v=SZuRvfFE8pI http://www.youtube.com/watch?v=ZO4VNIQKCok http://www.y...
by superman
Wed Oct 08, 2008 9:23 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri and antibiotics
Replies: 10
Views: 5978

ABX-Tysabri sounds quite risky to me. Tysabri can only be taken as a mono therapy in order to minimize any immunisation problems. I'm not a Dr but from what i know ABX has effects on immune system: it increases T and B lymphocytes' number. (fda) "In the U.S., Tysabri is available only to patients wi...
by superman
Fri Sep 19, 2008 9:27 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: tysabri worsening MS?
Replies: 25
Views: 9036

Hi Cha As a 12 year MS guy, i have some steroid's experience. The effects of steroids aren't due to vitamin decrease or increase. Steroid side effect are often unbearable and there is nothing else to do than taking them early in order to avoid sleep disturbance while taking it. I have never heard vi...
by superman
Fri Sep 12, 2008 1:46 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: sleepiness
Replies: 2
Views: 2508

Hi Veronika, don't worry about your second effect. feeling tired after Tysabri infusion is very common. Some of us experienced it after each infusion. In general, this tends to decrease infusion after infusion. I too experienced it after my very 1st infusion: i slept for the full afternoon following...
by superman
Mon Aug 18, 2008 10:10 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: new brain infections
Replies: 11
Views: 4044

Mr accoutant

sorry, 2/43 000= 0,0046% is the chance to get a pml
whereas there are about 39,000 fatal crashes in the US each year
39 000/300 millions americans=0,013% chance to get killed while driving.
so before stopping tysabri, sell you car!!! :wink: