Search found 70 matches

by daisy
Wed Nov 19, 2008 2:08 pm
Forum: Novantrone
Topic: Novantrone and Leukemia and Greater Heart Damage Risk
Replies: 7
Views: 8336

Novantrone and Leukemia and Greater Heart Damage Risk

My husband was diagnosed in early September 2008 as having Acute Myelogenous Leukemia (AML) Secondary to administration of Novantrone. There are three other patients on his hospital floor with the same problem. I think that the public has been underquoted the risk. If the risk that the Novantrone mf...
by daisy
Wed Nov 19, 2008 1:59 pm
Forum: Regimens
Topic: Everything including the Kitchen Sink
Replies: 43
Views: 18206

On the demyelinating disease front, my husband has continued to make slow but steady improvement. It's amazing how much treating with a high powered cocktail of antibiotics has improved his life and neurologic function. He was told at his late August doctor visit (MS/Antibiotic doctor) that he could...
by daisy
Tue Aug 12, 2008 9:30 am
Forum: Regimens
Topic: Everything including the Kitchen Sink
Replies: 43
Views: 18206

WRWH - Thanks for the post!

Re the genetic testing - I am not sure which lab was used - a physician friend got it ordered for me and helped me interpret. I think all that we had done was well under $1000 US.

Good luck with your husband!
by daisy
Tue Aug 05, 2008 6:39 pm
Forum: General Discussion
Topic: Postpolio/ MS similarity
Replies: 27
Views: 5606

Had once hypothesized that PPS was similar to Varciella. At one point Varicella is "Chicken Pox" with one generally self limiting manifestation and later in life Varicella reactivation presents in another manifestation "Shingles". Previously dormant virus migrates and creates new havoc with differen...
by daisy
Tue Aug 05, 2008 5:40 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 79781

Ken - You are a gem of a guy!

Wise words from the 7 habits by Stephen Covey, "Seek to Understand before Seeking to be Understood".

Good words for dealing with Kim's regular neuro.
by daisy
Fri Aug 01, 2008 4:31 pm
Forum: Regimens
Topic: Everything including the Kitchen Sink
Replies: 43
Views: 18206

Probably should report on these per one of my last posts. I previously classified the following as "Minor Improvement" I'll asterisk * the ones that have continued to improve Agility * Aphasia * Balance * Confusion * Episodic Memory * Frustration Tolerance * Hypotonia * Long Term Memory * Sense of D...
by daisy
Fri Aug 01, 2008 4:22 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 79781

Ken - Having been down this road, perhaps a good tactic to take would be to wait to do any selling/convincing of the conservative local neuro until you have MRI proof. I work in healthcare and have numerous science degrees and I couldn't budge ours with heavy data until he saw the clear MRI proof an...
by daisy
Fri Aug 01, 2008 4:05 pm
Forum: Regimens
Topic: Everything including the Kitchen Sink
Replies: 43
Views: 18206

My husband continues to improve in sort of a slow and steady/ week over week fashion. His balance, stamina, energy are all very good. He is sleeping a normal 8 hours each night and very rarely needs a nap. We are now working on regaining coordination and overall agility. He walks unassisted with eas...
by daisy
Thu Jun 19, 2008 7:33 am
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 79781

Ken - I read each of your excellent posts here carefully. Appreciate your taking the time to provide such detailed information - it's important for those that follow behind ! Don't usually respond to your excellent posts unless you have a question or I have a suggestion. Want to keep your thread cle...
by daisy
Mon May 19, 2008 6:20 pm
Forum: Regimens
Topic: Everything including the Kitchen Sink
Replies: 43
Views: 18206

Since last post, my husband continues to improve - albeit at a slower rate. Improvements of late have been primarily balance and speech related with more sublte improvements in cognitive function and memory. He has improved to the point that he was finally accepted to a day brain rehab program recen...
by daisy
Sat Apr 12, 2008 5:25 am
Forum: General Discussion
Topic: Low body temperature - MS related or just a quirk?
Replies: 42
Views: 23566

My husband's body temp was also routinely in the range of 95.6 to 96.7 F (36.3 to 35.9 C) degrees. Had his thyroid checked multiple ways and at multiple times with results always solidly in normal range. Numerous physicians consulted could offer no explanation for this phenomena which is also appare...
by daisy
Tue Apr 08, 2008 6:06 am
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 79781

200 B illion is correct. B is correct. My husband gets NOW brand "8 Billion" which equals surprisingly 8 Billion probiotics in one capsule is a good one for basic probiotics. Also - groovy but pricy product called Primadophilus Intensive by Nature's Way. It's a powder packet that contains 100 Billio...
by daisy
Mon Apr 07, 2008 10:22 am
Forum: Antibiotics
Topic: are abx used only for progressive MS or also RRMS?
Replies: 31
Views: 9110

Will add that my husband started out with one of the basic versions of an antibiotic protocol that others are doing here Doxycycline 100mg twice daily plus azithromycing 250mg MWF and a little Flagyl. Since his disease was more aggressive and issues more pronouced his antibiotic cocktail became a lo...
by daisy
Wed Apr 02, 2008 6:01 pm
Forum: Antibiotics
Topic: In Pursuit of ABX - May I have coffee with my milkshake?
Replies: 195
Views: 79781

Ken - You really do an excellent job of documenting your and Kim's journey! Re the yeast : Step up the probiotics. 200billion a day in mixed strains is not too much. Most people don't take nearly enough in my opinion (when treating with antibiotics - for anything - much less in long term CAP). Probo...
by daisy
Wed Apr 02, 2008 5:45 pm
Forum: Regimens
Topic: Everything including the Kitchen Sink
Replies: 43
Views: 18206

Mac - "I have not yet begun to fight!" John Paul Jones

To all - Here is the promised link to the MRI views from Sept 2007 to March 2008. They are not at all for the squeamish.

http://www.CPn Help.org/not_for_the_squeamish_bef

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