Search found 30 matches

by burntsienna
Sun May 25, 2014 1:41 pm
Forum: General Discussion
Topic: pregnancy, spasms, safe treatment
Replies: 2
Views: 1050

pregnancy, spasms, safe treatment

hello. I'm 37 and have been dx with MS for 17 years. My mobility is currently quite good although I was a wheelchair user between 2011 and 2013, I did a lot of physio and gym work and regained my legs. I am currently 21 weeks pregnant with my first pregnancy (I adopted my first child 6 years ago) an...
by burntsienna
Tue Oct 11, 2011 7:55 am
Forum: General Medications
Topic: Methotrexate or Azathioprine?
Replies: 7
Views: 5719

Re: Methotrexate or Azathioprine?

Unfortunately, I've tried to take LDN on 3 separate occasions, but it gives me unbearable stomach cramps. the first time I tried it the dose was obviously too high at 4.5 mg. The second time the dose started at 1mg with the intention to work up, but it caused the same stomach cramps. So, I stopped i...
by burntsienna
Tue Oct 11, 2011 3:58 am
Forum: General Medications
Topic: Methotrexate or Azathioprine?
Replies: 7
Views: 5719

Re: Methotrexate or Azathioprine?

thank you for your replies. i just don't know what to decide. I'm just becoming really scared about Aza and cancer, the more i hear about it, and I'm hearing more than I thought I would, but there are things about methotrexate and its toxicity that just don't sit well with me. When it comes down to ...
by burntsienna
Mon Oct 10, 2011 9:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: still sad about scan results
Replies: 12
Views: 1062

Re: still sad about scan results

Did the person doing your ultrasound have experience with CCSVI scans? I'd encourage you to try again. You're in the UK? I have heard good things about EHC clinic, if that would be a possibility. MRVs are not part of the diagnostic process these days, for most IRs. It's a Zamboni-protocol ultrasoun...
by burntsienna
Mon Oct 10, 2011 5:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: still sad about scan results
Replies: 12
Views: 1062

Re: still sad about scan results

i'm pretty sure it was doplar ultrasound. The scanner said that if that had showed anything then I would go on to have an MRV, but it didn't.
by burntsienna
Mon Oct 10, 2011 5:37 am
Forum: General Medications
Topic: Methotrexate or Azathioprine?
Replies: 7
Views: 5719

Methotrexate or Azathioprine?

As I have not been able to tollerate any of the first line DMD treatments (Interferons or Copaxone) my neuro has suggested that I try either Methotrexate or Azathioprine. They both seem to have pros and cons. . . the pros being tablet form, possible anti-inflammatory properties and fairly low day to...
by burntsienna
Mon Oct 10, 2011 5:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: still sad about scan results
Replies: 12
Views: 1062

still sad about scan results

About a year ago I was scanned for CCSVI and there weren't any blockages found, so the recommendation obviously was to have no angioplasty. It took me a little while to get over my disappointment but then just put it out of my mind and moved on. However, I'm feeling a bit blue today after a recent r...
by burntsienna
Mon Oct 10, 2011 5:15 am
Forum: General Medications
Topic: Experiences with Amantadine
Replies: 7
Views: 6879

Re: Experiences with Amantadine

hi. i've been on and off of amantadine for fatigue over the years with very different experiences. The first couple times i had no noticeable effects at all. then a few years ago i tried it again, but this time i wasn't taking any other medication other than the pill. that time it made a huge positi...
by burntsienna
Thu Apr 08, 2010 12:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treatment starts in Kuwait
Replies: 53
Views: 12441

sorry, but it doesn't look like much independent verification is out there that any of this is actually real. (not questioning anyone here, but)
by burntsienna
Wed Apr 07, 2010 10:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treatment starts in Kuwait
Replies: 53
Views: 12441

Exactly. This can be one huge study (more than that). Thank you Kuwait for leading the way. I hope our country is watching this space.. What frustrates me, is that you hear the excuses from doctors, societies and anyone who would have to approve a new treatment being done and funded and the sceptici...
by burntsienna
Wed Feb 17, 2010 10:40 am
Forum: Copaxone
Topic: Where do you get your motivation to keep shooting?
Replies: 19
Views: 4491

thanks. i did do the heat before, ice after last night. i must have hit something i shouldn't have. i'll let you know how tonight goes.
by burntsienna
Wed Feb 17, 2010 9:31 am
Forum: Copaxone
Topic: Where do you get your motivation to keep shooting?
Replies: 19
Views: 4491

Thanks. I think I had a particularly bad shot last night. My leg has still been really quite sore all day today. Everyone I've spoken to says that I shouldn't have had the intense pain for as long as I did last night, so I'll give it another go tonight, this time in my tummy. But I've got to say if ...
by burntsienna
Tue Feb 16, 2010 1:53 pm
Forum: Copaxone
Topic: Where do you get your motivation to keep shooting?
Replies: 19
Views: 4491

paaaiiiin!!!!

shot two today. i don't think i can do this!!

:cry:
by burntsienna
Tue Feb 09, 2010 11:27 am
Forum: Copaxone
Topic: Copaxone Sting Reduction Technique: A Personal Breakthough
Replies: 21
Views: 21089

just read through this. I'm about to start Copaxone next Monday, and am very nervous about all this stinging I hear about. I'm also very worried about lipoatrophy. What I've read says that you shouldn't massage a site you've injected into for at least 24 hours, because doing so could increase the ri...
by burntsienna
Tue Feb 02, 2010 4:04 pm
Forum: Copaxone
Topic: Jaundice with Copaxone?
Replies: 3
Views: 1889

my guess would be that it was a year of Avonex injections. All the interferons need constant monitoring to make sure that the liver doesn't have any damage.