This Is MS Multiple Sclerosis Knowledge & Support Community

Hey Loriyas, Glad to hear the solumedrol burst is over, but yes, it's a major bummer when you find that you have to hit the ORAL steroids too! I do a solumedrol "burst" every two months in order to keep exacerbations at bay. (Diagnosed Feb06, without a MAJOR flare since I began the bursts ...

Hey Elly,
Glad to hear from you... nothing to add... just saying hello!

I'll be at the conference in Holyoke, MA on Wednesday April 4. It's put on by Biogen, so it's of course going to be heavily promoting Avonex etc. Anyway... I'm stoked to just get out and meet folks anyway! Anyone else going??

Oh... maybe I was unclear :oops: Each year I pay $1500 ONE TIME... then they pay for everything. I just absorb it as part of my insurance plan (I pay about $3000 a year and am thankful) We don't have a problem saving for that one time deductable because... well... we know that the drugs alone cost m...

After my $1500 deductable, my insurance pays for everything 100% (up to 5million) It's a blessing, and if I ever lose this insurance (which they TRY to drop me every month) then I'm in trouble. But for now, it's the best deal goin! Pre-filled at Brooks Pharmacy is $3111.95 and through mail order I h...

May Dom and Bob be sentenced to a week's worth of dinners that are undercooked on the inside and more burnt than the seventh circle of hell on the outside.

But meanwhile, would someone please tell his wife to get back in the kitchen? Could of sworn I saw her with some shoes on too...

Certainly come back and post your results and decisions... I will have you in my thoughts!

Hi Elly, I understand where you are coming from, and it was stated very well. In the first flare, my doctors pumped the steroids, did the lps (three of them at three different hospitals...all "positive") They got the flare under control and told me it may never come back... or I may wake u...

Very true, bob... I appreciate the perspective.

Keep in mind I'm a newbie and not as well educated on this as I should be... (a lot of times when trying to understand this disease I make "common sense leaps"... however, I find out more and more that this disease often defies logic) If we are assuming that normal-appearing grey and white...

So with this information, I want to conclude that working on our fast twitch muscles (through polymetric training etc) should make the nerves "distance" that they have to shout a lot shorter. Right? Therefore making them less likely not to "hear" us? I hope this prof eventually d...

That's a great link... do you follow that group often? I understand your hesitation to post because of your spot in the spectrum... but the truth is, we are all on that spectrum with you and want the best for people at all ends. I look forward to reading more on this soon. Nice to be of your aquaint...

I'm wondering if there is a reason that the posts for Avonex seem to be quite old compared to some of the other drugs? I am also curious if people here check in every day, every week, every month... or what the normal "posting time" is. Hope you are all well!!

This was one of the reasons I came off Rebif... swelling along my jawline. The doctor kept trying to convince me that it was not the Rebif... but after speaking with another MSer and reading over my journals (I keep this really nerdy medical journals in order to be sure I can remember dates and reac...

Hey mick, feel free to grumble... I understand what you are saying. Former life: super man/woman... MS life super TIRED man/woman. And it's more than just sleepy... it's mind numbing exhaustion. Naps and protein smoothies help me :) That's all the newbie advice for today... just starting to get my t...