This Is MS Multiple Sclerosis Knowledge & Support Community

"beliefs."

Donated. Although I have little chance of raising the money needed for treatment I can at least support some research which could change politicians minds in the UK. (I would not wait for the neuro establishment to say sorry. )

Have you tried upping your magnesium intake for RLS? I find that it does help me - but then so does the CAP and the LDN, so who knows? The downside of magnesium supplementation of course is that it can give you the trots.

Da ddiwrnod Wallwalker. I too have found that I can now take a hot shower, not lukewarm and like MacK can close my eyes to shampoo and rinse my hair - without touching the walls of the cubicle. I have completed 19 pulses so far and took it uber slow at the beginning and I am glad that I did because ...

It's not just the hep vaccination - "At vaccineinformation , the tetanus vaccine information recommended checking out the pertussis vaccine information for people with serious illnesses (like MS), because there is a pertussis component in the tetanus shot. The pertussis vaccine information had ...

Also be aware that Michelle was RR and not much was said about SPMS and/or PPMS. It was nicely done though and informative for those recently diagnosed and carers.

You can also get an information pack connected with the show.

Shell, Yes it does drive me nuts, but I am even more angry at my neuro who told me that I was progressive, "probably primary" and had nothing to offer but learning how to self cathaterize. Sheesh, thank goodness for the internet which allowed me to find the information about antibiotic tre...

I can confirm Dovechick's reference to gravity playing a part in where Cpn settles especially with regard to skin symptoms. For a number of years before I had the dx of MS I would get recurring "bull's eye" lesions on my lower legs. My doctor said that he didn't know what it was and left i...

largely forgotten data linking bacterial nasopharyngeal infections

Also some similarity with the association of recurrent sinusitis in many cases of MS - and in my case too. Do you think that they have found DW's excellent site as well as CPn Help.org

Glynis, I am a newbie at this too but I agree with everything that gibbledygook has said. When I saw the neuro to confirm the MS diagnosis he said that I was "progressive" MS and had nothing to offer me except a referral to an MS nurse to learn how to live with it. Soon after I found a lin...

I am also following this regime and get my supplements from Vitacost as in Sarah's list. The carrier is UPS and the import costs to the UK are high, but as I get them in quantity it is still cheaper than sourcing them here. Customs don't seem too bothered so long as they get their VAT and import dut...

Tick, tock indeed gwa,...and for those who have been labelled as "progressive"... have no ON involvement.... are not offered "treatment" anyway...

Still, it keeps some people busy and in work I suppose

Or maybe like me the rrms phase is treated as "attention seeking behaviour" and you begin to think that you are a hypochondriac, so stop even going to the doctor. Being patronised is not a pleasant feeling is it? When the diagnosis of "progressive" MS was finally given to me many...