Search found 380 matches

by MaggieMae
Sun Apr 20, 2014 4:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568328

Re: DrSclafani answers some questions

Dr. Sclafani,

I looked back in my old e-mails and I did give updates for the first year (2011-2012) but did not last year. Will do.
by MaggieMae
Sat Apr 19, 2014 6:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568328

Re: DrSclafani answers some questions

Dr. Sclafani, It is three years this month since you treated my husband for CCSVI. Since his first attack was in 1975, you can imagine that much damage was done. However, he continues to maintain the benefits he received from the procedure and even though his walking didn't improve, it has not decli...
by MaggieMae
Tue Feb 04, 2014 5:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Hubbard's update on the FDA
Replies: 46
Views: 6830

Re: Dr. Hubbard's update on the FDA

"Also, the number of people getting the procedure is dropping off." When I read this sentence I had to make this comment. I know many people who would like to have the procedure, but cannot because they can't afford it. Insurance covered it for my husband three years ago, but as you know it is no l...
by MaggieMae
Wed Jul 10, 2013 7:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Alzheimer's linked to vascular disease
Replies: 7
Views: 1260

Re: Alzheimer's linked to vascular disease

Quote: In addition, drugs tested for Alzheimer's disease and other related dementias should consider the impact of the frequent concident presence of cerebrovascular disease on the treatment response of new therapies for Alzheimer's, as most current trials exclude patients with vascular risk factors...
by MaggieMae
Sun Feb 24, 2013 6:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: List of Those Who Had/Scheduled to Have Procedure-Stanford
Replies: 58
Views: 12524

Re: List of Those Who Had/Scheduled to Have Procedure-Stanfo

I started this list over three years ago when the first patients were seen at Stanford. I thought about it the other day. Wondering how many (from this list) still read this forum and how they are doing today.
by MaggieMae
Mon Oct 29, 2012 11:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568328

Re: DrSclafani answers some questions

I'm here and I check this page every day. I always check to see if Dr. Sclafani writes any comments or observations. I also check out CCSVI facebook.
by MaggieMae
Mon Oct 08, 2012 12:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bladder improvement after CCSVI treatment ???
Replies: 8
Views: 1304

Re: Bladder improvement after CCSVI treatment ???

My husband had the CCSVI procedure with Dr. Sclafani in April 2011. He had started in January 2010 with major bladder problems and had botox shots in Feb 2010 and Jan 2011. Hasn't needed botox since. His urologist was expecting that my husband would need botox again this year, but to date he hasn't ...
by MaggieMae
Tue Sep 25, 2012 1:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neurological Res.-Oct. issue on vascular link of MS/CCSVI
Replies: 10
Views: 1353

Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

I think the 'general' neuro's, the ones we meet, are kept away from ccsvi by the higher neuro's in the monkey tree. My neuro also says that he doesn't hear from ccsvi anymore, huh From the comments our neuro has made to us about CCSVI, I couldn't agree more. Wish he would just read the research and...
by MaggieMae
Mon Sep 24, 2012 3:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neurological Res.-Oct. issue on vascular link of MS/CCSVI
Replies: 10
Views: 1353

Re: Neurological Res.-Oct. issue on vascular link of MS/CCSV

Even with all the research that continues to be published on CCSVI and MS, my husband's neuro said to him at his recent
appointment that the interest in CCSVI is fading away. My husband had the procedure with Dr. Sclafani in April 2011 and his neuro has never asked him anything about it.
by MaggieMae
Thu Jun 21, 2012 2:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NY here we come.....
Replies: 34
Views: 3146

Re: NY here we come.....

Dr. Sclafani is a wonderful person and doctor. My husband was treated by him last year. Hope all goes well.
by MaggieMae
Fri Apr 20, 2012 4:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 53024

Re: Hi from Jeff, re. my stent treatment at Stanford

Best wishes to Jeff for continued improvements. "Healing and growth in gray matter" sounds wonderful.
by MaggieMae
Sun Oct 02, 2011 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 116545

Re: Cece's turn

So happy for you Cece and may your improvements continue.
by MaggieMae
Wed Aug 10, 2011 4:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568328

it is difficult to present cases if there are none scheduled. Cases are not being scheduled??? It is odd. The perception of my availability,or my ability to treat remains confused. I can schedule but cannot manufacture patients. Dr. Scalfani, Could this be an issue of insurance coverage? Are patien...
by MaggieMae
Tue Jul 12, 2011 10:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WeWillBeatMS in Brooklyn for Liberation 6/11/11
Replies: 34
Views: 5984

Wewillbeatms,

I sent you a private message a couple of weeks ago about a lyme doctor. I see that you have never read it. Just wanted to let you know to check your private messages.