Search found 3 matches

by joycesvoices
Tue Nov 03, 2009 9:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Marketing CCSVI
Replies: 75
Views: 21571

For a little inspiration, see today's NY Times article, A Conversation with Brian J. Druker M.D. It relates the story of how the cancer wonder drug Gleevec came to market after people affected by chronic myeloid leukemia took their case to the drug's manufacturer. "Through the internet, they ge...
by joycesvoices
Thu Sep 17, 2009 12:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can It Really Be Fixed?
Replies: 5
Views: 2150

Thanks for the clarification, Cheer. Sounds like stenting is the only way to go. And time is what's needed to really answer most of my concerns. Your generous information-sharing is doing so much good for so many people, and I am truly grateful for your explanation of this new line of hope, CCSVI. J...
by joycesvoices
Thu Sep 17, 2009 9:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can It Really Be Fixed?
Replies: 5
Views: 2150

Can It Really Be Fixed?

I've been joyfully reading all the stories of MS improvement here. However, I'm starting to see more accounts of people needing to be re-treated. Maybe the deficient veins in the jugulars draining an MS brain can never be permanently fixed? It reminds me of the efforts engineers have made to keep th...

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