Search found 9 matches

by sammy67
Thu Oct 02, 2008 7:21 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Any others on Ty with these problems
Replies: 3
Views: 2696

thank you, to both of you... Yes, i am seeing a different neuro hopefuly tomorrow....
and thank you for the site suggestion. that has been very helpful....
by sammy67
Thu Oct 02, 2008 3:07 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Any others on Ty with these problems
Replies: 3
Views: 2696

Any others on Ty with these problems

Hi, I have been on Tysabri for 14 mo now. it has been a god send has changed my life... untill 2 mo ago... I also happen to have Crohn's disease, so this med was made for me.... I started just not feeling well at first... more tired then normal.... then muscle and joint pain... feeling like i had a ...
by sammy67
Thu Oct 02, 2008 3:07 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Any others on Ty with these problems
Replies: 0
Views: 2061

Any others on Ty with these problems

Hi, I have been on Tysabri for 14 mo now. it has been a god send has changed my life... untill 2 mo ago... I also happen to have Crohn's disease, so this med was made for me.... I started just not feeling well at first... more tired then normal.... then musule and joint pain... feeling like i had a ...
by sammy67
Wed Aug 01, 2007 3:41 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Deciding on Tysabri
Replies: 14
Views: 7067

Thank you, Yes, I have been following it. I ended up changing MS Doc's after several "2nd" opinions and i am set to start Tysabri tomorrow. I am very excited and a bit scared too. I met with my GI today who is an IBD research Dr. also at a big hosp. and he feels strong that Tysabri is righ...
by sammy67
Thu Jun 21, 2007 3:16 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Deciding on Tysabri
Replies: 14
Views: 7067

i think it's time to find a new Doc......
by sammy67
Wed Jun 20, 2007 5:11 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Deciding on Tysabri
Replies: 14
Views: 7067

thought i would share with you all what my neuro had to say in response to my email to my G.I. doc's I have already shared my thoughts with everyone but she is quite insistent that we discuss openly about her case. I feel that for MS, she has not failed all the approved therapies at this time. So th...
by sammy67
Wed Jun 20, 2007 11:14 am
Forum: Daily Life
Topic: do you think?
Replies: 2
Views: 2806

funny, i have a post under Tysabri and i just said this morning, i am going to print out my post and the responses and show it to my doctors. ThEY DO NOT HAVE A CLUE as to what we go through. there quick fix is always IV Steroids or prednisione. I am so frusterated with my doctors right now. I sent ...
by sammy67
Wed Jun 20, 2007 7:20 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Deciding on Tysabri
Replies: 14
Views: 7067

Thank you both for respondiing. I have written emails to all of my doctors askiing all of them to talk. it is hard having different doc's all needing to work together. It is interesting to me that my Crohn's doc is the one who wants me on Ty, and my MS doc does not. He feel's the risk is too high. I...
by sammy67
Tue Jun 19, 2007 3:44 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Deciding on Tysabri
Replies: 14
Views: 7067

Deciding on Tysabri

Hello, I am new to this forum and am glad i found this place. Here is my situatioin. I have MS, dx almost 5 yrs ago. I also have Crohn's disease, 8+ yrs. I have been on Rebif and Betaseron with no luck. Very sick most of the time and continued with relapses. I have not been on anything for about a y...

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