Search found 51 matches

by Longing4Cheese
Fri Aug 05, 2011 12:05 pm
Forum: Avonex
Topic: Avonex while sick?
Replies: 14
Views: 13360

9 mos later, sick again, want answers

I Googled "Avonex cold" and ended up here. I read through these posts and even saw my own from November 2010. I have a bad cold: aches and pains, sore throat, some sinus goop. My 5 mo. old babies had it first: the girl kicked it right away, and the boy got a very bad case of congestion, which is sti...
by Longing4Cheese
Sun Apr 03, 2011 9:08 am
Forum: Diet
Topic: Swank diet discussion
Replies: 145
Views: 84506

Updated Swank Diet -- absolutely!

I have been doing a modified/updated version of Dr. Swank's diet since I was diagnosed in 2007, and I highly recommend giving it a serious look. By "updated" I mean that the recipes that form the 2nd half of Dr. Swank's book are very dated (think 1950s cooking...1980s at best), and I prefer a diet f...
by Longing4Cheese
Fri Nov 26, 2010 8:15 pm
Forum: Avonex
Topic: Avonex while sick?
Replies: 14
Views: 13360

Avonex while sick -- here goes nuttin'

NHE, you are such a prolific and well-informed member of ThisIsMS -- kudos. I have a cold, and I was wondering if it was a bad idea -- or a really really good idea --- to take Avonex while fighting off a cold. I Googled and I poked all round the Avonex (Biogen Idec) site, coming up with nothing usef...
by Longing4Cheese
Mon Nov 02, 2009 8:16 am
Forum: Rituxan (Rituximab)
Topic: first infusion
Replies: 6
Views: 6931

Would like to hear more about your experience

Thank you for telling us about your experience with Rituxan. I hope you will keep reporting on your condition here, whether you have any or no side effects, improvement (or not) in your symptoms, etc.

Keep moving,
Longing4Cheese (Jack Sprat)
by Longing4Cheese
Fri Sep 18, 2009 2:48 pm
Forum: Diet
Topic: Swank diet discussion
Replies: 145
Views: 84506

I'm sticking with it - read Dr. Jelinek

Especially if one does not have dramatic symptoms, it's hard to determine a direct cause and effect relationship between treatment and symptoms, whether it's drugs or "lifestyle," or that in-between area (in my opinion), what one puts in one's body every day, aka FOOD. I have not shown any gadoliniu...
by Longing4Cheese
Mon Sep 07, 2009 5:32 pm
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11012

Welcome, Vladman

I think it's a good thing to post on a good forum to whatever extent you feel like. I am a pro-active patient compared to most people, and I have been searching hither and yon for information. Of the several sites where I have "joined," I find that ThisIsMS has the most informed and intelligent disc...
by Longing4Cheese
Wed Jul 29, 2009 11:31 pm
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11012

Had reaction to Copaxone, neuro thinks it was allergic

Well, it turns out that, after 6 months almost to the day on Copaxone, I seem to have developed an allergy to it. On June 4 I had a reaction to Copaxone that lasted almost an hour, and included features like a swelling face and mouth, stiff eye muscles (the ones that move the eyeballs), and a tickle...
by Longing4Cheese
Sun Mar 29, 2009 12:11 pm
Forum: General Discussion
Topic: 10 sec's of our ms poster boy
Replies: 26
Views: 3749

Montel is for Montel and about Montel

I read his book Climbing Higher ... what an embarrassing display of self-absorption, even for a "memoir"-genre publication. I really didn't need to know all the ins and outs (ahem...) of his sex life with various "ladies" he was involved with... it wasn't so much the graphicness of his descriptions ...
by Longing4Cheese
Sun Jan 04, 2009 12:06 am
Forum: Copaxone
Topic: Copaxone Sting Reduction Technique: A Personal Breakthough
Replies: 21
Views: 22983

I'll try it

I read this now, in January 2009, and, as a new Copaxone user (5th injection tonight...not fun...maybe a 4.5 sting rating?), I'm looking for anything I can do to make the "hey, that wasn't so bad" experiences more reliably frequent. So I'll try it out. At the very least, I'll get a massage. (I'm not...
by Longing4Cheese
Thu Nov 20, 2008 4:35 pm
Forum: Copaxone
Topic: Copaxone for ppms? (also posted in general disscussion)
Replies: 10
Views: 6287

How they Dx PPMS

If you haven't had any identifiable "attacks" or spells or symptoms that occurred, lasted days to weeks, then got better (or mostly better), then you don't neatly fit into the description of RRMS, which 85% of MSers are. If you have very gradually declining ability to walk, weakness in a limb or a w...
by Longing4Cheese
Wed Nov 19, 2008 11:48 pm
Forum: Copaxone
Topic: Copaxone for ppms? (also posted in general disscussion)
Replies: 10
Views: 6287

I've been RECLASSIFIED -- and will be starting Copaxone

I have had an interesting turn in my MS journey: I was Dx in June 2007, and have seen a total of three different neuros, at least one of whom is a well-known MS researcher and professor at UCLA. Everyone said I had PPMS. However, a few weeks ago I saw a top MS specialist at USC, and he questioned me...
by Longing4Cheese
Sat Oct 11, 2008 10:48 pm
Forum: Antibiotics
Topic: Minocycline Promising for Fragile X Syndrome - autism, MMP-9
Replies: 9
Views: 3977

Minocycline Promising for Fragile X Syndrome - autism, MMP-9

Forgive me if this is already covered -- I did search for "autism" in the Antibiotics forum and got zero results. So, this may be very interesting news... UCR Researchers Propose Minocycline as a Promising Drug for Patients with Fragile X Syndrome RIVERSIDE, Calif. – A UC Riverside-led team of biome...
by Longing4Cheese
Tue Oct 07, 2008 11:27 pm
Forum: Natural Approach
Topic: Alpha Lipoic Acid
Replies: 4
Views: 2942

Hit the online body building sites for inexpensive supplemts

I got a POUND of N-Acetyl L-Carnitine for about $32 (incl. shipping) from www.trueprotein.com, a body-building supplements site. It was hard to find the supplements area at first; click on Formulas and then pull down to Custom Solutions. You can dial in custom blends of supplements by percentages; y...
by Longing4Cheese
Fri Sep 12, 2008 12:01 pm
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11012

The Weiners

Yes, I've read Howard Weiner's book, Curing MS, and heard him speak at the same event where I heard Leslie P. Weiner (it was at the Nancy Davis Foundation "Roundtable" (actually several tiers of tables, facing a conference room with several hundred chairs set up; about 2/3 filled with audience membe...
by Longing4Cheese
Thu Sep 11, 2008 10:37 pm
Forum: Copaxone
Topic: avoiding IPIRs with copaxone
Replies: 21
Views: 11012

PPMS and Copaxone; this site is great

Thanks for the clarification. I actually thought that was a very common reaction. I have a friend on Avonex, and of course have read many accounts online about people's struggles with the once weekly "shot night" phenomenon. I have been imagining that the reaction you describe is fairly typical, wit...

Go to advanced search