Search found 5352 matches

by cheerleader
Thu Jan 10, 2019 3:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Beijing Institute--neurosurgeons treating jugular veins
Replies: 2
Views: 536

Beijing Institute--neurosurgeons treating jugular veins

Hi all, Wanted to check in and share some ongoing research. The Beijing Institute for Brain Disorders has been using stents to repair slowed jugular venous flow, reduce collateral veins, improve intracranial hypertension and cerebral perfusion in a variety of patients. The Beijing Institute for Brai...
by cheerleader
Thu Jan 04, 2018 2:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI dead - surely an apology needed from Cheerleader
Replies: 40
Views: 4530

Re: CCSVI dead - surely an apology needed from Cheerleader

Hi Centenarian- 1. Sadly, the results of those who had maintained blood flow were NOT separated from those who restenosed. They were reported together in the "treated" group. So, we don't know what the improvements were for those who were treated and maintained venous flow. BTW, it's not "blood lett...
by cheerleader
Thu Dec 07, 2017 10:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Brave Dreams clinical trial of venous PTA
Replies: 6
Views: 1368

Re: The Brave Dreams clinical trial of venous PTA

Thank you for discussing the complete results and linking the full paper! Yes, it's hard to know how the results might have gone had blood flow been restored for more than 54% of the participants....hard to judge the true value of a procedure when it is not completed. We may never know the truth...b...
by cheerleader
Thu Dec 07, 2017 9:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI dead - surely an apology needed from Cheerleader
Replies: 40
Views: 4530

Re: CCSVI dead - surely an apology needed from Cheerleader

Oh, dear Bromley. Did you read the full JAMA paper, or simply the editorial comments? Here is the complete paper. https://jamanetwork.com/journals/jamaneurology/fullarticle/2664001#editorial-comment-tab The delayed effect of venous PTA 6 months after the procedure on the magnetic resonance biomarker...
by cheerleader
Sun Oct 15, 2017 12:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: brain drain
Replies: 5
Views: 1409

Re: brain drain

:?: Could this be linked to CCSVI?? Hi Mark-- Having spoken with both Jonathan Kipnis and Maiken Nedergaard about this---their answer is yes. As the jugular veins are the drainage outlet for these newly discovered lymphatic vessels, any type of slowing, blockage, stenosis, valvular issues or hamper...
by cheerleader
Wed May 24, 2017 2:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ISNVD 2017 in Italy
Replies: 31
Views: 4110

Re: ISNVD 2017 in Italy

Hi M.A., Rogan and Cece-- The science is taking a long time, but the fact that Dr. Zamboni's Brave Dreams results will be published later this year is actually a good thing. Dr. Zamboni wanted to wait to make any announcements, until all of the neurologists and vascular specialists had a chance to r...
by cheerleader
Fri Apr 28, 2017 9:58 am
Forum: General Discussion
Topic: Potential cause found - another RAB32 link
Replies: 8
Views: 1292

Re: Potential cause found - another RAB32 link

Why, Elliot! Your sarcastic comment is right on point! :-D :razz: Elevated levels of Rab32 and endoplasmic reticular (ER) stress have been found related to disrupted blood flow and endothelial dysfunction. Already published by vascular researchers. Contributors to ER stress include low levels of NO ...
by cheerleader
Mon Mar 13, 2017 3:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Apology needed from Cheerleader and Cece
Replies: 54
Views: 5720

Re: Apology needed from Cheerleader and Cece

I'm glad Cece was nice and tactful to Bromley, she is a much better human than I am! Bromley was always condescending and nasty to me on this forum. F him. I did this all for my incredible husband, Jeff Beal, and I shared info here with friends.. Jeff had actual jugular stenosis, which was documente...
by cheerleader
Wed Nov 02, 2016 11:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: steven novella's article on CCSVI
Replies: 3
Views: 906

Re: steven novella's article on CCSVI

Hi Cece-- Hope you're well! We have been really busy, and I'm not on here any more. still writing my blog and over at Facebook. Neuros are making a preemptive strike, as Dr. Zamboni will be discussing his Brave Dreams trial at the upcoming Veith vascular conference, and they want to get ahead of the...
by cheerleader
Fri Jun 17, 2016 7:06 am
Forum: General Discussion
Topic: Cerebral microbleeds in MS patients....
Replies: 4
Views: 765

Re: Cerebral microbleeds in MS patients....

As dicussed at ISNVD this year, pulsatile flow creates a risk for CMBs. http://stroke.ahajournals.org/content/43/10/2631.abstract http://isnvd.org/sites/default/files/Accepted%20Conference%20Abstracts%20-%20Oral.pdf Treating venous outflow abnormalities (with a temporary use of anti-coagulation ther...
by cheerleader
Fri Jun 17, 2016 5:19 am
Forum: General Discussion
Topic: Cerebral microbleeds in MS patients....
Replies: 4
Views: 765

Re: Cerebral microbleeds in MS patients....

7T machines are allowing researchers to see beyond white matter lesions. Plasmic particles leak thru "fragile" capillaries (a term used by Dr. Roy Swank in the 1950s) Blood in brain tissue causes oxidative stress, demyelination, iron deposition and inflammation. The vascular evidence continues. Sign...
by cheerleader
Thu Jun 16, 2016 11:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gene NR1H3 recently discovered interacts with endothelium
Replies: 4
Views: 1166

Re: Gene NR1H3 recently discovered interacts with endotheliu

Hi Frodo-- you were not alone in noticing this :) (although no one in the medical press nor the researchers even mentioned it.) Mutations of this specific gene are found in vascular disease. I actually wrote up a whole blog post on this discovery. http://ccsviinms.blogspot.com/2016/06/gene-implicate...
by cheerleader
Wed Jun 08, 2016 8:17 am
Forum: Regimens
Topic: Reversing Endothelial Dysfunction
Replies: 183
Views: 58479

Re: Reversing Endothelial Dysfunction

The Endothelial Health Program, eight years later.


http://ccsviinms.blogspot.com/2016/04/t ... years.html
by cheerleader
Wed Jun 08, 2016 8:15 am
Forum: Regimens
Topic: Reversing Endothelial Dysfunction
Replies: 183
Views: 58479

Re: Reversing Endothelial Dysfunction

Polyphenols, the most abundant anti-oxidants which are found in plants reduce oxidative stress and maintain endothelial health. A shift in the functions of the endothelium towards vasoconstriction, proinflammatory and prothrombic states characterise improper functioning of these cells, leading to en...
by cheerleader
Mon May 30, 2016 8:26 am
Forum: General Discussion
Topic: Diet that mimics fasting may reduce MS symptoms
Replies: 16
Views: 2684

Re: Diet that mimics fasting may reduce MS symptoms

Calorie restriction/fasting also increases nitric oxide bioavailability, decreases oxidative stress and heals the endothelium. Important, as the endothelium is the interface between our immune and vascular systems. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2894368/ http://circres.ahajournals.org/c...